Speaker A

When I'm asked this question, so many stories come to mind.

Speaker A

But I love telling stories about songwriting because I do a lot of songwriting with people.

Speaker A

But nine times out of 10, 9.9 times out of 10, the people I'm working with have never written a song before, have never touched an instrument before.

Speaker A

And I invite songwriting in as a way to express themselves.

Speaker A

So people look at me like I can't write a song, and I say, you don't have to do the heavy musical lifting.

Speaker A

I do that.

Speaker A

You tell me your story.

Speaker A

So I'm thinking about a young woman who.

Speaker A

We did a lot of live music together for relaxation.

Speaker A

But she told me about her son and her son was 2 at the time, just a really little guy.

Speaker A

And she said, I want to give him something that he can always have because I know that I'm not going to be around for the rest of his life.

Speaker A

So I'd like to write something for him that he can have at his wedding.

Speaker A

So she and I wrote a song for her son, her two year old son, that he would then be able to play when he got married, whenever that was.

Speaker A

So she and I guided her and I asked her, you know, what do you want your son to feel when he hears this song?

Speaker A

What do you want him to think about when he feels sad or misses you?

Speaker A

What are some words of wisdom you want to pass on?

Speaker A

So she would tell me all of this and together we crafted it into verses in a chorus and recorded it together.

Speaker A

She would speak the verses, she'd say, you know, I want you to always remember this.

Speaker A

I want you to always think of this.

Speaker A

And I would play music in the background and then I sang the chorus because she didn't want to sing.

Speaker B

Yeah.

Speaker C

I'm not.

Speaker B

Are you familiar with the.

Speaker B

Are you familiar with the music in memory organization by any chance?

Speaker B

Because I see some parallels there to the work that you do and the work that they do.

Speaker A

I am, I am.

Speaker A

Were you interviewing them recently?

Speaker A

In a little.

Speaker B

We spoke to them a couple months ago actually.

Speaker A

Yeah, I think I saw that.

Speaker A

That's awesome.

Speaker A

So, yes, I am familiar with their work and I think we are all different sides of the same coin, as it were, or like different elements of the same sphere.

Speaker A

Like we are all doing the same thing.

Speaker A

We just approach it differently, which is so cool.

Speaker A

And that goes for performers and teachers, therapists, music and memory practitioners, researchers.

Speaker A

We're all doing the same thing.

Speaker A

It's just we're approaching it from different angles.

Speaker A

So I love the work of the music and memory Folks, I think it's extraordinary.

Speaker B

Yeah, for sure.

Speaker B

Yeah, I agree.

Speaker B

Which is kind of the reason why we even wanted to have the conversation with you to begin with, because I'm just.

Speaker B

We're both so really fascinated at the connection that music and just mental health and Alzheimer's and memory have in general.

Speaker B

It's incredible.

Speaker B

Really, really fascinating stuff.

Speaker A

Definitely.

Speaker C

So when you started with the hospital, was this still a brand new program at that point or did they have something existing?

Speaker A

It was.

Speaker A

They didn't have anything.

Speaker A

And I'm really lucky that my mentor took a chance on me.

Speaker A

He was head of psychiatry and psychosocial care, we call it.

Speaker A

So Dr.

Speaker A

Gary Roden said, okay.

Speaker A

He said, I'll take a chance on you.

Speaker A

And I did a student internship for about a year and a half.

Speaker A

So I worked there as a student.

Speaker A

And he said, you know, kind of show us what this is and then we'll take it from there.

Speaker A

I did a research project and hung out with lots and lots of patients and families, and by the end of my time as a student, there was a high demand for the service.

Speaker A

So then it turned into a position.

Speaker C

Oh, wow, that's.

Speaker C

Yeah.

Speaker B

Can you share some kind of the research that you have done to show the effectiveness of your work?

Speaker A

Absolutely.

Speaker A

Yeah.

Speaker A

I certainly started out researching the experience of being a recipient of music therapy while on a palliative care floor.

Speaker A

So we have a 12 bed palliative care floor at Princess Margaret.

Speaker A

And I captured people's experiences through interviews and recording our sessions.

Speaker A

And the two main themes that came out of that were comfort and connection.

Speaker A

They felt so fundamentally comforted by having the music, it feeling really connected to this idea of lullaby, of being soothed, of being cared for without words.

Speaker A

So when they heard music, live music especially, that's what came up.

Speaker A

And really connecting to their.

Speaker A

Either their identities, their family members, themselves.

Speaker A

To me, there was a sense of really linking.

Speaker A

And that didn't happen really with recorded music as much as it did with live music, but certainly there were elements.

Speaker A

I recently finished my doctoral research and that was in the experience of music therapy during assisted dying, which we know is now legal in Canada.

Speaker A

So that was the focus of my.

Speaker A

The last few years.

Speaker A

And another research project that we're working on is the experience of adolescents and young adults doing group music therapy.

Speaker A

So that's been really cool too.

Speaker B

Why did you, just out of curiosity, why did you decide to focus on music related to assisted dying?

Speaker A

So, great question.

Speaker A

When it became legal in Canada and people started requesting it at the hospital, they asked Me to be there.

Speaker A

And it.

Speaker A

It threw me for a loop.

Speaker A

I didn't expect that.

Speaker A

I don't know why I didn't expect that, but I just thought, wow, why music?

Speaker A

Why music as part of MAID is the acronym Medical Assistance in Dying.

Speaker A

And I kept getting asked to come to these procedures and to work with these people beforehand and to connect with their family after.

Speaker A

And I got really curious and it really affected me being in this work.

Speaker A

And I thought, I need to.

Speaker A

I need to look at this from a research perspect.

Speaker A

So I had the privilege of working with 10 people and 10 caregivers that were connected with each person.

Speaker A

And I got to spend time with them in the weeks leading up to their procedure and then during their assisted death and then connected with their family after.

Speaker A

So lots and lots of interviews.

Speaker A

And I titled the study Exit Music.

Speaker A

And that's been.

Speaker B

Is that after Radiohead?

Speaker A

It was very much inspired by Radiohead.

Speaker B

I love that.

Speaker A

Good call.

Speaker B

Wow.

Speaker B

That's fascinating.

Speaker B

Fascinating stuff.

Speaker B

I'm really.

Speaker B

Yeah.

Speaker B

I'm blown away at the connection that music has to our brains.

Speaker B

And do you know, maybe what it is about live music that might be the.

Speaker B

A little bit more resonating with people as opposed to recorded music.

Speaker A

Yeah.

Speaker A

Yeah.

Speaker A

So I think that, you know, the connections and the associations are.

Speaker A

They're always strong with music, but I always think that it's the reactions I can have and the adaptability of the live musician that I notice.

Speaker A

If someone starts to cry, I slow the music down.

Speaker A

If someone starts to fall asleep, I watch for reactions and I then can comment on them afterwards or gently explore them with people.

Speaker A

I've watched loved ones literally curl up with their.

Speaker A

With their person in their hospital bed because they hear a song that meant something to them at their wedding, and.

Speaker A

And then they can tell me stories and then I can react to that as opposed to.

Speaker A

The recording is so amazing and beautiful, but it won't slow down or stop or hand you a Kleenex box if you start.

Speaker A

Yeah.

Speaker B

That physical connection and the energy that's shared in the room is probably so impactful as well.

Speaker A

Exactly.

Speaker A

It's all about the relationship.

Speaker A

Like with any, you know, psychiatrist, therapist, counselor, that connection you make with someone and people have to trust you in order to let you sing for them.

Speaker A

I think when you're very vulnerable and that trust can often be very therapeutic in and of itself, that I show up even if things are crappy.

Speaker A

And I think that's the power of the live music therapist for sure.

Speaker C

What does your typical workday look like.

Speaker A

Hmm.

Speaker A

I'm often in interdisciplinary rounds in the morning, so that means our whole team meets and our whole team discusses every patient.

Speaker A

So that happens at the hospice, that happens on palliative care, that happens in bone marrow transplant.

Speaker A

So I try and show up to as many team meetings as I can, and then I offer my perspective from what I've seen from the patient.

Speaker A

And I often get new referrals that way.

Speaker A

So, you know, the physiotherapist might say, hey, Sarah Rose, like, our guy in this room is having a really hard with energy and motivation.

Speaker A

Can you meet with them?

Speaker A

Or hey, Sarah's.

Speaker A

This person is close to the end of life.

Speaker A

They probably have a few hours left and the family wanted to have some music.

Speaker A

Can you meet with them?

Speaker A

So I kind of get.

Speaker A

Triage is the word.

Speaker A

I get my referrals.

Speaker A

I think about who I'm going to see, and then I've got the day ahead of me to connect with different people and have sessions.

Speaker A

But right now I have two graduate students working with me, which is so great.

Speaker A

I have that once a year for a few months.

Speaker A

And so I'm teaching a lot as well, which is really fun.

Speaker A

Yeah.

Speaker C

Wow.

Speaker C

How do you prepare yourself mentally, daily or even throughout the day?

Speaker A

This is.

Speaker A

It always feels like the million dollar question because it can change day to day.

Speaker A

And I feel like it's something that palliative care providers in particular, but healthcare workers in general have to ask themselves every day.

Speaker A

And some days I'm better than others.

Speaker A

It's certainly tough to show up to the work every day.

Speaker A

At times, I rely really heavily on my team, like the docs and the nurses and the social workers and everyone from the housekeepers to the support staff.

Speaker A

We all really rely on each other and check in with each other, like, how are you doing?