When I'm asked this question, so many stories come to mind.
Speaker ABut I love telling stories about songwriting because I do a lot of songwriting with people.
Speaker ABut nine times out of 10, 9.9 times out of 10, the people I'm working with have never written a song before, have never touched an instrument before.
Speaker AAnd I invite songwriting in as a way to express themselves.
Speaker ASo people look at me like I can't write a song, and I say, you don't have to do the heavy musical lifting.
Speaker AI do that.
Speaker AYou tell me your story.
Speaker ASo I'm thinking about a young woman who.
Speaker AWe did a lot of live music together for relaxation.
Speaker ABut she told me about her son and her son was 2 at the time, just a really little guy.
Speaker AAnd she said, I want to give him something that he can always have because I know that I'm not going to be around for the rest of his life.
Speaker ASo I'd like to write something for him that he can have at his wedding.
Speaker ASo she and I wrote a song for her son, her two year old son, that he would then be able to play when he got married, whenever that was.
Speaker ASo she and I guided her and I asked her, you know, what do you want your son to feel when he hears this song?
Speaker AWhat do you want him to think about when he feels sad or misses you?
Speaker AWhat are some words of wisdom you want to pass on?
Speaker ASo she would tell me all of this and together we crafted it into verses in a chorus and recorded it together.
Speaker AShe would speak the verses, she'd say, you know, I want you to always remember this.
Speaker AI want you to always think of this.
Speaker AAnd I would play music in the background and then I sang the chorus because she didn't want to sing.
Speaker BYeah.
Speaker CI'm not.
Speaker BAre you familiar with the.
Speaker BAre you familiar with the music in memory organization by any chance?
Speaker BBecause I see some parallels there to the work that you do and the work that they do.
Speaker AI am, I am.
Speaker AWere you interviewing them recently?
Speaker AIn a little.
Speaker BWe spoke to them a couple months ago actually.
Speaker AYeah, I think I saw that.
Speaker AThat's awesome.
Speaker ASo, yes, I am familiar with their work and I think we are all different sides of the same coin, as it were, or like different elements of the same sphere.
Speaker ALike we are all doing the same thing.
Speaker AWe just approach it differently, which is so cool.
Speaker AAnd that goes for performers and teachers, therapists, music and memory practitioners, researchers.
Speaker AWe're all doing the same thing.
Speaker AIt's just we're approaching it from different angles.
Speaker ASo I love the work of the music and memory Folks, I think it's extraordinary.
Speaker BYeah, for sure.
Speaker BYeah, I agree.
Speaker BWhich is kind of the reason why we even wanted to have the conversation with you to begin with, because I'm just.
Speaker BWe're both so really fascinated at the connection that music and just mental health and Alzheimer's and memory have in general.
Speaker BIt's incredible.
Speaker BReally, really fascinating stuff.
Speaker ADefinitely.
Speaker CSo when you started with the hospital, was this still a brand new program at that point or did they have something existing?
Speaker AIt was.
Speaker AThey didn't have anything.
Speaker AAnd I'm really lucky that my mentor took a chance on me.
Speaker AHe was head of psychiatry and psychosocial care, we call it.
Speaker ASo Dr.
Speaker AGary Roden said, okay.
Speaker AHe said, I'll take a chance on you.
Speaker AAnd I did a student internship for about a year and a half.
Speaker ASo I worked there as a student.
Speaker AAnd he said, you know, kind of show us what this is and then we'll take it from there.
Speaker AI did a research project and hung out with lots and lots of patients and families, and by the end of my time as a student, there was a high demand for the service.
Speaker ASo then it turned into a position.
Speaker COh, wow, that's.
Speaker CYeah.
Speaker BCan you share some kind of the research that you have done to show the effectiveness of your work?
Speaker AAbsolutely.
Speaker AYeah.
Speaker AI certainly started out researching the experience of being a recipient of music therapy while on a palliative care floor.
Speaker ASo we have a 12 bed palliative care floor at Princess Margaret.
Speaker AAnd I captured people's experiences through interviews and recording our sessions.
Speaker AAnd the two main themes that came out of that were comfort and connection.
Speaker AThey felt so fundamentally comforted by having the music, it feeling really connected to this idea of lullaby, of being soothed, of being cared for without words.
Speaker ASo when they heard music, live music especially, that's what came up.
Speaker AAnd really connecting to their.
Speaker AEither their identities, their family members, themselves.
Speaker ATo me, there was a sense of really linking.
Speaker AAnd that didn't happen really with recorded music as much as it did with live music, but certainly there were elements.
Speaker AI recently finished my doctoral research and that was in the experience of music therapy during assisted dying, which we know is now legal in Canada.
Speaker ASo that was the focus of my.
Speaker AThe last few years.
Speaker AAnd another research project that we're working on is the experience of adolescents and young adults doing group music therapy.
Speaker ASo that's been really cool too.
Speaker BWhy did you, just out of curiosity, why did you decide to focus on music related to assisted dying?
Speaker ASo, great question.
Speaker AWhen it became legal in Canada and people started requesting it at the hospital, they asked Me to be there.
Speaker AAnd it.
Speaker AIt threw me for a loop.
Speaker AI didn't expect that.
Speaker AI don't know why I didn't expect that, but I just thought, wow, why music?
Speaker AWhy music as part of MAID is the acronym Medical Assistance in Dying.
Speaker AAnd I kept getting asked to come to these procedures and to work with these people beforehand and to connect with their family after.
Speaker AAnd I got really curious and it really affected me being in this work.
Speaker AAnd I thought, I need to.
Speaker AI need to look at this from a research perspect.
Speaker ASo I had the privilege of working with 10 people and 10 caregivers that were connected with each person.
Speaker AAnd I got to spend time with them in the weeks leading up to their procedure and then during their assisted death and then connected with their family after.
Speaker ASo lots and lots of interviews.
Speaker AAnd I titled the study Exit Music.
Speaker AAnd that's been.
Speaker BIs that after Radiohead?
Speaker AIt was very much inspired by Radiohead.
Speaker BI love that.
Speaker AGood call.
Speaker BWow.
Speaker BThat's fascinating.
Speaker BFascinating stuff.
Speaker BI'm really.
Speaker BYeah.
Speaker BI'm blown away at the connection that music has to our brains.
Speaker BAnd do you know, maybe what it is about live music that might be the.
Speaker BA little bit more resonating with people as opposed to recorded music.
Speaker AYeah.
Speaker AYeah.
Speaker ASo I think that, you know, the connections and the associations are.
Speaker AThey're always strong with music, but I always think that it's the reactions I can have and the adaptability of the live musician that I notice.
Speaker AIf someone starts to cry, I slow the music down.
Speaker AIf someone starts to fall asleep, I watch for reactions and I then can comment on them afterwards or gently explore them with people.
Speaker AI've watched loved ones literally curl up with their.
Speaker AWith their person in their hospital bed because they hear a song that meant something to them at their wedding, and.
Speaker AAnd then they can tell me stories and then I can react to that as opposed to.
Speaker AThe recording is so amazing and beautiful, but it won't slow down or stop or hand you a Kleenex box if you start.
Speaker AYeah.
Speaker BThat physical connection and the energy that's shared in the room is probably so impactful as well.
Speaker AExactly.
Speaker AIt's all about the relationship.
Speaker ALike with any, you know, psychiatrist, therapist, counselor, that connection you make with someone and people have to trust you in order to let you sing for them.
Speaker AI think when you're very vulnerable and that trust can often be very therapeutic in and of itself, that I show up even if things are crappy.
Speaker AAnd I think that's the power of the live music therapist for sure.
Speaker CWhat does your typical workday look like.
Speaker AHmm.
Speaker AI'm often in interdisciplinary rounds in the morning, so that means our whole team meets and our whole team discusses every patient.
Speaker ASo that happens at the hospice, that happens on palliative care, that happens in bone marrow transplant.
Speaker ASo I try and show up to as many team meetings as I can, and then I offer my perspective from what I've seen from the patient.
Speaker AAnd I often get new referrals that way.
Speaker ASo, you know, the physiotherapist might say, hey, Sarah Rose, like, our guy in this room is having a really hard with energy and motivation.
Speaker ACan you meet with them?
Speaker AOr hey, Sarah's.
Speaker AThis person is close to the end of life.
Speaker AThey probably have a few hours left and the family wanted to have some music.
Speaker ACan you meet with them?
Speaker ASo I kind of get.
Speaker ATriage is the word.
Speaker AI get my referrals.
Speaker AI think about who I'm going to see, and then I've got the day ahead of me to connect with different people and have sessions.
Speaker ABut right now I have two graduate students working with me, which is so great.
Speaker AI have that once a year for a few months.
Speaker AAnd so I'm teaching a lot as well, which is really fun.
Speaker AYeah.
Speaker CWow.
Speaker CHow do you prepare yourself mentally, daily or even throughout the day?
Speaker AThis is.
Speaker AIt always feels like the million dollar question because it can change day to day.
Speaker AAnd I feel like it's something that palliative care providers in particular, but healthcare workers in general have to ask themselves every day.
Speaker AAnd some days I'm better than others.
Speaker AIt's certainly tough to show up to the work every day.
Speaker AAt times, I rely really heavily on my team, like the docs and the nurses and the social workers and everyone from the housekeepers to the support staff.
Speaker AWe all really rely on each other and check in with each other, like, how are you doing?