Deborah E:

I'm living inside of this Perfectly Wonderful World.

Deborah E:

The body is sending up a flare saying, "No!

Deborah E:

No!

Deborah E:

Hey, I need help!

Deborah E:

I'm on the edge of death!

Deborah E:

If you do not help me during this diabetic low blood sugar- seizure!"

Deborah E:

Get the picture?

Deborah E:

The body's screaming for help.

Deborah E:

It's saying, "I need sugar or I'm gonna die."

Deborah E:

I mean, literally.

Michael Anderson:

Join Deborah E, multi-award-winning singer, podcaster, and

Michael Anderson:

speaker, who proves that being diagnosed with a life-changing illness as a child,

Michael Anderson:

along with countless hospitalizations, and a family who told everyone she'd be dead

Michael Anderson:

before she reached puberty, does not have to stand in the way of life well-lived.

Narrator:

The DiabeticReal podcast and the content of its website are presented

Narrator:

solely for educational purposes.

Narrator:

And the views and opinions expressed by guests are theirs alone.

Narrator:

They do not necessarily reflect that of the host of the podcast.

Narrator:

The content is not intended to substitute for professional medical diagnosis of

Narrator:

advice or treatment ongoing or otherwise.

Narrator:

Be sure to always seek the advice of your physician or other qualified

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healthcare provider with any questions regarding your health care.

Deborah E:

Well, let's see.

Deborah E:

This is a story about rural doctors.

Deborah E:

About little boys, or a little boy.

Deborah E:

Well, you know, this story actually has a lot of moving pieces.

Deborah E:

It's an easy story to tell, and yet it's a difficult story to tell.

Deborah E:

So, how about I just start, and we'll see where this goes.

Deborah E:

It has to do with a rural area.

Deborah E:

It's a place where my husband and I moved many, many, many years ago.

Deborah E:

Many decades ago, actually.

Deborah E:

I think that rural areas are very beautiful, usually, uh, the place is

Deborah E:

beautiful, the people are generally beautiful, as in, you know, nice

Deborah E:

values, the simplistic living.

Deborah E:

I like rural areas.

Deborah E:

I mean, I grew up in a rural area.

Deborah E:

I think they're nice places, generally speaking, and for anyone living in a

Deborah E:

rural area, I mean, don't disrespect for anything that I'm about to

Deborah E:

say in, in this podcast episode.

Deborah E:

So, but this particular experience that I had is not really to the credit

Deborah E:

of rural areas, but actually, in all fairness, it's not to the credit of one

Deborah E:

particular person, and we'll get there.

Deborah E:

eventually in this story, but, but it is something that, that, you know,

Deborah E:

the purpose of this particular podcast episode, for those of you who may have

Deborah E:

chronic illnesses or challenges or things like that, it is something to be

Deborah E:

wary of and something to be aware of.

Deborah E:

with your chronic illness.

Deborah E:

So listen to the story and if it fits, great, you know, talk

Deborah E:

it aside and be aware of it.

Deborah E:

If it is something that you need to know, um, for your situation and if not, Hey,

Deborah E:

just listen to the story and don't pay any attention at all as far as your own life.

Deborah E:

But let's, uh, move forward.

Deborah E:

So anyway, it's another one of those situations, another

Deborah E:

case where I almost died.

Deborah E:

And no, I'm not just saying that, uh, You know, as we learned last

Deborah E:

episode, it's not just, I'm not just saying that to get attention because

Deborah E:

I definitely don't need the attention.

Deborah E:

I don't want the attention, I don't need the attention, and I'm

Deborah E:

not doing it to get attention.

Deborah E:

It really is a situation where it is a close call.

Deborah E:

But anyway, no, seriously, I almost died because of the rural

Deborah E:

component of where we lived.

Deborah E:

And I say that a lot as far as almost dying because it's true.

Deborah E:

A lot.

Deborah E:

So, let's set the stage so we understand the situation.

Deborah E:

We'd purchased some land way out west in Minnesota.

Deborah E:

Part of it was an inheritance from family.

Deborah E:

We'd scraped up money.

Deborah E:

We were a young family, small kids.

Deborah E:

We worked hard to pull it all together, all those earnings.

Deborah E:

We worked with the county and purchased a modular home that was repossessed,

Deborah E:

you know, kind of like a car.

Deborah E:

That's how it works with, with modular homes.

Deborah E:

And we worked with the state to file special paperwork to

Deborah E:

get the land and so forth.

Deborah E:

So we were really excited, you know, I mean, this was, we, you know, crossed

Deborah E:

all our T's, dotted all our I's.

Deborah E:

We worked really hard to make this work.

Deborah E:

And this was like our dream home at this point.

Deborah E:

It was Minnesota.

Deborah E:

It was You know, Minnesota is a land of 10, 000 lakes, true,

Deborah E:

but this was our little lake.

Deborah E:

We now had eight acres of beautiful, peaceful, lush land in rural

Deborah E:

Minnesota, starting our life together, uncomplicated, just our little

Deborah E:

fairy tale, our fairy tale marriage.

Deborah E:

It was like Goldilocks and the Three Bears, but this was the just right part.

Deborah E:

It wasn't too hot.

Deborah E:

It wasn't too cold.

Deborah E:

It was just right.

Deborah E:

Now for the event, the medical event.

Deborah E:

As you know, listening to this podcast, I have diabetes, type 1 diabetes,

Deborah E:

and I have that fun, yeah, that fun type 1 type, that type 1 type.

Deborah E:

Boy, that's a tongue twister if you say that too many times in a row.

Deborah E:

Not all type 1 diabetes or diabetics have the Kind that have the seizures, but it

Deborah E:

seems that I'm blessed with that one.

Deborah E:

I have the type that yes, if the blood sugar drops too low, I actually

Deborah E:

have a seizure and I have the ability to have the tonic-clonic seizures.

Deborah E:

Now, What that means is, you know, we refer to the tonic-clonic seizures.

Deborah E:

I'm able to go completely unconscious.

Deborah E:

There are several different types of seizures.

Deborah E:

For instance, partial seizures.

Deborah E:

That's where you sort of daze out.

Deborah E:

Like you're starting, you're, you know, staring out into space.

Deborah E:

And then there's tonic-clonic, tonic-clonic.

Deborah E:

And that's when you're a hundred percent unconscious.

Deborah E:

And because of that, your body just, for instance, just drops on the floor.

Deborah E:

Or wherever you are.

Deborah E:

Because You have no awareness, because you're unconscious, and

Deborah E:

you're not aware of your surroundings.

Deborah E:

You can't hold yourself up if you're completely unconscious, so you just

Deborah E:

literally Of course, there's many other kinds of seizures as well, but

Deborah E:

that's, that's a topic for another time.

Deborah E:

Now, it just so happens, I'm also epileptic.

Deborah E:

Let's not go there right now because that will only confuse matters as

Deborah E:

far as what we're discussing today.

Deborah E:

So, in other words, not only am I blessed with type 1 diabetes,

Deborah E:

but I'm blessed with epilepsy.

Deborah E:

Isn't that special?

Deborah E:

That is so special.

Deborah E:

But at this time in my life, when this event occurred, when we

Deborah E:

lived in rural Minnesota, I did not know that I was epileptic.

Deborah E:

And actually, in this situation, it was the diabetes that was causing the seizure.

Deborah E:

And not the epilepsy.

Deborah E:

So, whether I had known or not, it didn't matter because it was the low

Deborah E:

blood sugar that caused the seizure.

Deborah E:

So, again, it doesn't matter that we know we're epileptic, we don't

Deborah E:

know we're epileptic, any of that.

Deborah E:

So, for the story, we're just going to set that one aside.

Deborah E:

Confused yet?

Deborah E:

Alright.

Deborah E:

How about we look at it from the body's point of view?

Deborah E:

Okay?

Deborah E:

So, we're going to look at it from the body.

Deborah E:

When the blood sugar drops to, let's say 16.

Deborah E:

Yes, that did happen to me one time actually, but I'll save that

Deborah E:

for, you got it, another time.

Deborah E:

Well, when type 1 diabetic body has a blood sugar that drops to,

Deborah E:

say, 16, what do you think happens?

Deborah E:

You got it, death.

Deborah E:

When it goes past that point, it simply has gone too far, too low, and

Deborah E:

there's no lower, and the body dies.

Deborah E:

In the case of a type 1 diabetic that can have seizures, it is like a warning

Deborah E:

mechanism that goes off before death.

Deborah E:

The body is sending up a flare saying, "No!

Deborah E:

No!

Deborah E:

Hey, I need help!

Deborah E:

I'm on the edge of death!

Deborah E:

If you do not help me during this diabetic low blood sugar seizure!"

Deborah E:

Get the picture?

Deborah E:

The body is screaming for help but saying, "I need sugar or I'm gonna die.

Deborah E:

I mean, literally!"

Deborah E:

Yeah, the body is screaming for help, and that's what that seizure is.

Deborah E:

So, regardless of epilepsy that day, that event, my blood sugar was low.

Deborah E:

I needed help, as in, I needed sugar.

Deborah E:

And my body was screaming out, sending up flares, asking for

Deborah E:

help, in the form of sugar.

Deborah E:

In other words, my body was screaming, I am type 1 diabetic

Deborah E:

and I need help, please help me.

Deborah E:

It didn't matter if I had blonde hair and was wearing a pink dress,

Deborah E:

or if I had epilepsy, because that was not the issue at hand.

Deborah E:

See what I mean?

Deborah E:

Front and center.

Deborah E:

Diabetic in need.

Deborah E:

Okay, so the curtain parts.

Deborah E:

We're at our house in the woods, by the lake.

Deborah E:

I'm getting ready for church.

Deborah E:

I go into a seizure, unconscious, from low blood sugar, as I just described here.

Deborah E:

I even hit a head on the stove, and by the way, I dent the handle of the stove.

Deborah E:

Yeah, ouch.

Deborah E:

Ouch, big ouch, but I didn't feel it because of course I'm unconscious.

Deborah E:

My husband calls the ambulance and pretty much he calls the ambulance

Deborah E:

because he's worried about my head that head injury, you know I mean he can

Deborah E:

treat the seizure you can treat the low blood sugar, but he's pretty he's

Deborah E:

worried about this head injury now I mean you dent the stove with your head.

Deborah E:

That's it's a little bit concerning anyway, so Now, let's pause for a moment

Deborah E:

and let's talk about this hospital, right?

Deborah E:

The ambulance is on the way out to pick me up, but let's, let's talk

Deborah E:

about the hospital where they're headed once they pick me up.

Deborah E:

It was a very tiny hospital.

Deborah E:

It was smaller than many clinics in other city, in other cities.

Deborah E:

The really sad issue was not the size, but something more than that.

Deborah E:

A week or so before, maybe a few weeks, there had been a little boy who had

Deborah E:

fallen between the bleachers at a sporting event at the local high school.

Deborah E:

He was only four years old.

Deborah E:

Sure, he hurt himself, but not to a point where it should have been more than a

Deborah E:

night in the hospital and then go home.

Deborah E:

This little boy never did get to go home with his family.

Deborah E:

What was supposed to be some basic bruises ended up being a head injury

Deborah E:

that killed him in that same hospital.

Deborah E:

They did not examine him as thoroughly as they should have,

Deborah E:

and this poor little child died.

Deborah E:

Yes, that never should have happened.

Deborah E:

It was in the news.

Deborah E:

It was, it was awful.

Deborah E:

It just, it should not have happened.

Deborah E:

So now we come back to my situation as a type 1 diabetic.

Deborah E:

Obviously, my husband Let the paramedics know that I was a type one diabetic.

Deborah E:

And fortunately, the initial treatment was for that in the ambulance.

Deborah E:

Or I wouldn't be here talking to you right now on the podcast.

Deborah E:

But the actual initial treatment was, well, actually

Deborah E:

it wasn't by the paramedics.

Deborah E:

It was by my husband before the paramedics got there.

Deborah E:

And as I said, the real reason for the ambulance was because I

Deborah E:

hit my head in the head injury.

Deborah E:

But It became a fiasco by the time I got to the hospital.

Deborah E:

The doctor in the ER at the hospital, if you could call it an ER, swore up and

Deborah E:

down that this was an epileptic seizure.

Deborah E:

Now, I may have found out since then that I have epilepsy, but the point

Deborah E:

is, as I said earlier, the event at the moment was a diabetic seizure

Deborah E:

because of the low blood sugar.

Deborah E:

And I know, we don't have to repeat that again, but it's a low blood sugar.

Deborah E:

And a bigger point it was.

Deborah E:

I didn't know this doctor from Adam, which means he didn't know me and

Deborah E:

he didn't have my medical records.

Deborah E:

Remember, we just moved here to a dream house in this particular area.

Deborah E:

We'd just gotten there.

Deborah E:

The doctors that I had were in another area.

Deborah E:

With all the fun times with my diabetes, I'd had the pleasure

Deborah E:

of knowing several medical staff in a city about 40 miles away.

Deborah E:

The city was St.

Deborah E:

Cloud, Minnesota.

Deborah E:

It was a fair- sized city.

Deborah E:

It wasn't Minneapolis.

Deborah E:

It wasn't St.

Deborah E:

Paul.

Deborah E:

But it wasn't as rural as the little place where I was now.

Deborah E:

The key thing was that there were Doctors in St.

Deborah E:

Cloud who had my medical records and who knew me, they

Deborah E:

could look up my information.

Deborah E:

So, my husband begged the doctor in a small rural hospital to treat

Deborah E:

me according to my type 1 diabetes.

Deborah E:

And this doctor that we did not know, Refused.

Deborah E:

I was like, who gives him the right?

Deborah E:

My husband was finally able to convince him to call over

Deborah E:

to the medical staff in St.

Deborah E:

Cloud.

Deborah E:

Now it gets interesting.

Deborah E:

Everyone in this little hospital in this little rural town in

Deborah E:

Minnesota could literally, and I mean literally, hear The doctor from St.

Deborah E:

Cloud, screaming over the phone at the rural doctor, She is type 1 diabetic!

Deborah E:

I dare say the doctor in St.

Deborah E:

Cloud was even more frustrated than we were.

Deborah E:

Fortunately, the beauty of type 1 diabetes is that once you get enough

Deborah E:

sugar in the system, and especially once my brain cells came back online

Deborah E:

with having had this disease almost all my life, Things start to balance.

Deborah E:

I start to get involved in my own self care.

Deborah E:

I don't tend to like others caring for me, especially when they would

Deborah E:

rather argue with me about what disease I have or do not have, than

Deborah E:

to treat me for the disease I have.

Deborah E:

Or do not have.

Deborah E:

And the beauty about being the patient is you can do this thing

Deborah E:

called AMA, against medical advice.

Deborah E:

Oh, I'm not here to say that I recommend it.

Deborah E:

But versus being the next statistic, like that poor, dear, precious little

Deborah E:

four-year-old boy that week before, no.

Deborah E:

I decided to simply walk out of the hospital with my husband.

Deborah E:

My blood sugar had adequately risen so that I was safe.

Deborah E:

It seemed that if I had a concussion from hitting my head on the stove, I was okay.

Deborah E:

So it was definitely time to leave that little hospital.

Deborah E:

And sadly, even though we loved our little lake, We loved our little home.

Deborah E:

Shortly thereafter, we left that little rural town and we moved

Deborah E:

somewhere where people would listen when I said, I am a type 1 diabetic.

Deborah E:

And you've been listening to DiabeticReal, and I'm your host, Deborah E.

Michael Anderson:

Thank you for listening to this episode of DiabeticReal.

Michael Anderson:

For more information about this podcast, as well as links and fun

Michael Anderson:

stuff related to DiabeticReal, visit us on our website at diabeticreal.

Michael Anderson:

com.

Michael Anderson:

Now we'll listen as Deborah E.

Michael Anderson:

herself.

Michael Anderson:

sings one of her favorite songs.

Michael Anderson:

The song is called Perfectly Wonderful World, written by Denny Martin

Michael Anderson:

and Jaimee Paul, engineered by me, of course, your host, Michael, in

Michael Anderson:

our Seaside Records studio here in lovely Los Angeles, California.

Michael Anderson:

It was on the number one ReverbNation charts for over a

Michael Anderson:

year and still charts very well.

Michael Anderson:

So, have a pleasant moment and listen to Perfectly Wonderful World.

Deborah E:

Yes, I'm living inside of this Perfectly Wonderful World.

Deborah E:

Oh.

Deborah E:

Mmm.