I'm living inside of this Perfectly Wonderful World.
Deborah E:The body is sending up a flare saying, "No!
Deborah E:No!
Deborah E:Hey, I need help!
Deborah E:I'm on the edge of death!
Deborah E:If you do not help me during this diabetic low blood sugar- seizure!"
Deborah E:Get the picture?
Deborah E:The body's screaming for help.
Deborah E:It's saying, "I need sugar or I'm gonna die."
Deborah E:I mean, literally.
Michael Anderson:Join Deborah E, multi-award-winning singer, podcaster, and
Michael Anderson:speaker, who proves that being diagnosed with a life-changing illness as a child,
Michael Anderson:along with countless hospitalizations, and a family who told everyone she'd be dead
Michael Anderson:before she reached puberty, does not have to stand in the way of life well-lived.
Narrator:The DiabeticReal podcast and the content of its website are presented
Narrator:solely for educational purposes.
Narrator:And the views and opinions expressed by guests are theirs alone.
Narrator:They do not necessarily reflect that of the host of the podcast.
Narrator:The content is not intended to substitute for professional medical diagnosis of
Narrator:advice or treatment ongoing or otherwise.
Narrator:Be sure to always seek the advice of your physician or other qualified
Narrator:healthcare provider with any questions regarding your health care.
Deborah E:Well, let's see.
Deborah E:This is a story about rural doctors.
Deborah E:About little boys, or a little boy.
Deborah E:Well, you know, this story actually has a lot of moving pieces.
Deborah E:It's an easy story to tell, and yet it's a difficult story to tell.
Deborah E:So, how about I just start, and we'll see where this goes.
Deborah E:It has to do with a rural area.
Deborah E:It's a place where my husband and I moved many, many, many years ago.
Deborah E:Many decades ago, actually.
Deborah E:I think that rural areas are very beautiful, usually, uh, the place is
Deborah E:beautiful, the people are generally beautiful, as in, you know, nice
Deborah E:values, the simplistic living.
Deborah E:I like rural areas.
Deborah E:I mean, I grew up in a rural area.
Deborah E:I think they're nice places, generally speaking, and for anyone living in a
Deborah E:rural area, I mean, don't disrespect for anything that I'm about to
Deborah E:say in, in this podcast episode.
Deborah E:So, but this particular experience that I had is not really to the credit
Deborah E:of rural areas, but actually, in all fairness, it's not to the credit of one
Deborah E:particular person, and we'll get there.
Deborah E:eventually in this story, but, but it is something that, that, you know,
Deborah E:the purpose of this particular podcast episode, for those of you who may have
Deborah E:chronic illnesses or challenges or things like that, it is something to be
Deborah E:wary of and something to be aware of.
Deborah E:with your chronic illness.
Deborah E:So listen to the story and if it fits, great, you know, talk
Deborah E:it aside and be aware of it.
Deborah E:If it is something that you need to know, um, for your situation and if not, Hey,
Deborah E:just listen to the story and don't pay any attention at all as far as your own life.
Deborah E:But let's, uh, move forward.
Deborah E:So anyway, it's another one of those situations, another
Deborah E:case where I almost died.
Deborah E:And no, I'm not just saying that, uh, You know, as we learned last
Deborah E:episode, it's not just, I'm not just saying that to get attention because
Deborah E:I definitely don't need the attention.
Deborah E:I don't want the attention, I don't need the attention, and I'm
Deborah E:not doing it to get attention.
Deborah E:It really is a situation where it is a close call.
Deborah E:But anyway, no, seriously, I almost died because of the rural
Deborah E:component of where we lived.
Deborah E:And I say that a lot as far as almost dying because it's true.
Deborah E:A lot.
Deborah E:So, let's set the stage so we understand the situation.
Deborah E:We'd purchased some land way out west in Minnesota.
Deborah E:Part of it was an inheritance from family.
Deborah E:We'd scraped up money.
Deborah E:We were a young family, small kids.
Deborah E:We worked hard to pull it all together, all those earnings.
Deborah E:We worked with the county and purchased a modular home that was repossessed,
Deborah E:you know, kind of like a car.
Deborah E:That's how it works with, with modular homes.
Deborah E:And we worked with the state to file special paperwork to
Deborah E:get the land and so forth.
Deborah E:So we were really excited, you know, I mean, this was, we, you know, crossed
Deborah E:all our T's, dotted all our I's.
Deborah E:We worked really hard to make this work.
Deborah E:And this was like our dream home at this point.
Deborah E:It was Minnesota.
Deborah E:It was You know, Minnesota is a land of 10, 000 lakes, true,
Deborah E:but this was our little lake.
Deborah E:We now had eight acres of beautiful, peaceful, lush land in rural
Deborah E:Minnesota, starting our life together, uncomplicated, just our little
Deborah E:fairy tale, our fairy tale marriage.
Deborah E:It was like Goldilocks and the Three Bears, but this was the just right part.
Deborah E:It wasn't too hot.
Deborah E:It wasn't too cold.
Deborah E:It was just right.
Deborah E:Now for the event, the medical event.
Deborah E:As you know, listening to this podcast, I have diabetes, type 1 diabetes,
Deborah E:and I have that fun, yeah, that fun type 1 type, that type 1 type.
Deborah E:Boy, that's a tongue twister if you say that too many times in a row.
Deborah E:Not all type 1 diabetes or diabetics have the Kind that have the seizures, but it
Deborah E:seems that I'm blessed with that one.
Deborah E:I have the type that yes, if the blood sugar drops too low, I actually
Deborah E:have a seizure and I have the ability to have the tonic-clonic seizures.
Deborah E:Now, What that means is, you know, we refer to the tonic-clonic seizures.
Deborah E:I'm able to go completely unconscious.
Deborah E:There are several different types of seizures.
Deborah E:For instance, partial seizures.
Deborah E:That's where you sort of daze out.
Deborah E:Like you're starting, you're, you know, staring out into space.
Deborah E:And then there's tonic-clonic, tonic-clonic.
Deborah E:And that's when you're a hundred percent unconscious.
Deborah E:And because of that, your body just, for instance, just drops on the floor.
Deborah E:Or wherever you are.
Deborah E:Because You have no awareness, because you're unconscious, and
Deborah E:you're not aware of your surroundings.
Deborah E:You can't hold yourself up if you're completely unconscious, so you just
Deborah E:literally Of course, there's many other kinds of seizures as well, but
Deborah E:that's, that's a topic for another time.
Deborah E:Now, it just so happens, I'm also epileptic.
Deborah E:Let's not go there right now because that will only confuse matters as
Deborah E:far as what we're discussing today.
Deborah E:So, in other words, not only am I blessed with type 1 diabetes,
Deborah E:but I'm blessed with epilepsy.
Deborah E:Isn't that special?
Deborah E:That is so special.
Deborah E:But at this time in my life, when this event occurred, when we
Deborah E:lived in rural Minnesota, I did not know that I was epileptic.
Deborah E:And actually, in this situation, it was the diabetes that was causing the seizure.
Deborah E:And not the epilepsy.
Deborah E:So, whether I had known or not, it didn't matter because it was the low
Deborah E:blood sugar that caused the seizure.
Deborah E:So, again, it doesn't matter that we know we're epileptic, we don't
Deborah E:know we're epileptic, any of that.
Deborah E:So, for the story, we're just going to set that one aside.
Deborah E:Confused yet?
Deborah E:Alright.
Deborah E:How about we look at it from the body's point of view?
Deborah E:Okay?
Deborah E:So, we're going to look at it from the body.
Deborah E:When the blood sugar drops to, let's say 16.
Deborah E:Yes, that did happen to me one time actually, but I'll save that
Deborah E:for, you got it, another time.
Deborah E:Well, when type 1 diabetic body has a blood sugar that drops to,
Deborah E:say, 16, what do you think happens?
Deborah E:You got it, death.
Deborah E:When it goes past that point, it simply has gone too far, too low, and
Deborah E:there's no lower, and the body dies.
Deborah E:In the case of a type 1 diabetic that can have seizures, it is like a warning
Deborah E:mechanism that goes off before death.
Deborah E:The body is sending up a flare saying, "No!
Deborah E:No!
Deborah E:Hey, I need help!
Deborah E:I'm on the edge of death!
Deborah E:If you do not help me during this diabetic low blood sugar seizure!"
Deborah E:Get the picture?
Deborah E:The body is screaming for help but saying, "I need sugar or I'm gonna die.
Deborah E:I mean, literally!"
Deborah E:Yeah, the body is screaming for help, and that's what that seizure is.
Deborah E:So, regardless of epilepsy that day, that event, my blood sugar was low.
Deborah E:I needed help, as in, I needed sugar.
Deborah E:And my body was screaming out, sending up flares, asking for
Deborah E:help, in the form of sugar.
Deborah E:In other words, my body was screaming, I am type 1 diabetic
Deborah E:and I need help, please help me.
Deborah E:It didn't matter if I had blonde hair and was wearing a pink dress,
Deborah E:or if I had epilepsy, because that was not the issue at hand.
Deborah E:See what I mean?
Deborah E:Front and center.
Deborah E:Diabetic in need.
Deborah E:Okay, so the curtain parts.
Deborah E:We're at our house in the woods, by the lake.
Deborah E:I'm getting ready for church.
Deborah E:I go into a seizure, unconscious, from low blood sugar, as I just described here.
Deborah E:I even hit a head on the stove, and by the way, I dent the handle of the stove.
Deborah E:Yeah, ouch.
Deborah E:Ouch, big ouch, but I didn't feel it because of course I'm unconscious.
Deborah E:My husband calls the ambulance and pretty much he calls the ambulance
Deborah E:because he's worried about my head that head injury, you know I mean he can
Deborah E:treat the seizure you can treat the low blood sugar, but he's pretty he's
Deborah E:worried about this head injury now I mean you dent the stove with your head.
Deborah E:That's it's a little bit concerning anyway, so Now, let's pause for a moment
Deborah E:and let's talk about this hospital, right?
Deborah E:The ambulance is on the way out to pick me up, but let's, let's talk
Deborah E:about the hospital where they're headed once they pick me up.
Deborah E:It was a very tiny hospital.
Deborah E:It was smaller than many clinics in other city, in other cities.
Deborah E:The really sad issue was not the size, but something more than that.
Deborah E:A week or so before, maybe a few weeks, there had been a little boy who had
Deborah E:fallen between the bleachers at a sporting event at the local high school.
Deborah E:He was only four years old.
Deborah E:Sure, he hurt himself, but not to a point where it should have been more than a
Deborah E:night in the hospital and then go home.
Deborah E:This little boy never did get to go home with his family.
Deborah E:What was supposed to be some basic bruises ended up being a head injury
Deborah E:that killed him in that same hospital.
Deborah E:They did not examine him as thoroughly as they should have,
Deborah E:and this poor little child died.
Deborah E:Yes, that never should have happened.
Deborah E:It was in the news.
Deborah E:It was, it was awful.
Deborah E:It just, it should not have happened.
Deborah E:So now we come back to my situation as a type 1 diabetic.
Deborah E:Obviously, my husband Let the paramedics know that I was a type one diabetic.
Deborah E:And fortunately, the initial treatment was for that in the ambulance.
Deborah E:Or I wouldn't be here talking to you right now on the podcast.
Deborah E:But the actual initial treatment was, well, actually
Deborah E:it wasn't by the paramedics.
Deborah E:It was by my husband before the paramedics got there.
Deborah E:And as I said, the real reason for the ambulance was because I
Deborah E:hit my head in the head injury.
Deborah E:But It became a fiasco by the time I got to the hospital.
Deborah E:The doctor in the ER at the hospital, if you could call it an ER, swore up and
Deborah E:down that this was an epileptic seizure.
Deborah E:Now, I may have found out since then that I have epilepsy, but the point
Deborah E:is, as I said earlier, the event at the moment was a diabetic seizure
Deborah E:because of the low blood sugar.
Deborah E:And I know, we don't have to repeat that again, but it's a low blood sugar.
Deborah E:And a bigger point it was.
Deborah E:I didn't know this doctor from Adam, which means he didn't know me and
Deborah E:he didn't have my medical records.
Deborah E:Remember, we just moved here to a dream house in this particular area.
Deborah E:We'd just gotten there.
Deborah E:The doctors that I had were in another area.
Deborah E:With all the fun times with my diabetes, I'd had the pleasure
Deborah E:of knowing several medical staff in a city about 40 miles away.
Deborah E:The city was St.
Deborah E:Cloud, Minnesota.
Deborah E:It was a fair- sized city.
Deborah E:It wasn't Minneapolis.
Deborah E:It wasn't St.
Deborah E:Paul.
Deborah E:But it wasn't as rural as the little place where I was now.
Deborah E:The key thing was that there were Doctors in St.
Deborah E:Cloud who had my medical records and who knew me, they
Deborah E:could look up my information.
Deborah E:So, my husband begged the doctor in a small rural hospital to treat
Deborah E:me according to my type 1 diabetes.
Deborah E:And this doctor that we did not know, Refused.
Deborah E:I was like, who gives him the right?
Deborah E:My husband was finally able to convince him to call over
Deborah E:to the medical staff in St.
Deborah E:Cloud.
Deborah E:Now it gets interesting.
Deborah E:Everyone in this little hospital in this little rural town in
Deborah E:Minnesota could literally, and I mean literally, hear The doctor from St.
Deborah E:Cloud, screaming over the phone at the rural doctor, She is type 1 diabetic!
Deborah E:I dare say the doctor in St.
Deborah E:Cloud was even more frustrated than we were.
Deborah E:Fortunately, the beauty of type 1 diabetes is that once you get enough
Deborah E:sugar in the system, and especially once my brain cells came back online
Deborah E:with having had this disease almost all my life, Things start to balance.
Deborah E:I start to get involved in my own self care.
Deborah E:I don't tend to like others caring for me, especially when they would
Deborah E:rather argue with me about what disease I have or do not have, than
Deborah E:to treat me for the disease I have.
Deborah E:Or do not have.
Deborah E:And the beauty about being the patient is you can do this thing
Deborah E:called AMA, against medical advice.
Deborah E:Oh, I'm not here to say that I recommend it.
Deborah E:But versus being the next statistic, like that poor, dear, precious little
Deborah E:four-year-old boy that week before, no.
Deborah E:I decided to simply walk out of the hospital with my husband.
Deborah E:My blood sugar had adequately risen so that I was safe.
Deborah E:It seemed that if I had a concussion from hitting my head on the stove, I was okay.
Deborah E:So it was definitely time to leave that little hospital.
Deborah E:And sadly, even though we loved our little lake, We loved our little home.
Deborah E:Shortly thereafter, we left that little rural town and we moved
Deborah E:somewhere where people would listen when I said, I am a type 1 diabetic.
Deborah E:And you've been listening to DiabeticReal, and I'm your host, Deborah E.
Michael Anderson:Thank you for listening to this episode of DiabeticReal.
Michael Anderson:For more information about this podcast, as well as links and fun
Michael Anderson:stuff related to DiabeticReal, visit us on our website at diabeticreal.
Michael Anderson:com.
Michael Anderson:Now we'll listen as Deborah E.
Michael Anderson:herself.
Michael Anderson:sings one of her favorite songs.
Michael Anderson:The song is called Perfectly Wonderful World, written by Denny Martin
Michael Anderson:and Jaimee Paul, engineered by me, of course, your host, Michael, in
Michael Anderson:our Seaside Records studio here in lovely Los Angeles, California.
Michael Anderson:It was on the number one ReverbNation charts for over a
Michael Anderson:year and still charts very well.
Michael Anderson:So, have a pleasant moment and listen to Perfectly Wonderful World.
Deborah E:Yes, I'm living inside of this Perfectly Wonderful World.
Deborah E:Oh.
Deborah E:Mmm.