Welcome to the ADHD Women's Wellbeing Podcast.
KateI'm Kate Moore Youssef and I'm a wellbeing and lifestyle coach, EFT practitioner, mum to four kids and passionate about helping more women to understand and accept their amazing ADHD brains.
KateAfter speaking to many women just like me and probably you, I know there is a need for more health and lifestyle support for women newly diagnosed with adhd.
KateIn these conversations, you'll learn from insightful guests, hear new findings and discover powerful perspectives and lifestyle tools to enable you to live your most fulfilled, calm and purposeful life wherever you are on your ADHD journey.
KateHere's today's episode.
KateToday we have Dr.
KateTom Nicholson here.
KateNow, Dr.
KateTom is a lecturer, he's an academic at Northumbria University and he's also a neurodiversity and mental health specialist.
KateHe has his own company in neuro inclusion training and has a vast amount of knowledge, knowledge in this area of mental health and neurodiversity.
KateSo I just wanted to welcome you to the podcast.
KateI'm really, really excited to just get stuck in.
Dr. Tom NicholsonThank you.
Dr. Tom NicholsonI'm really excited to be here and on the tail end of Neurodiversity Celebration week.
Dr. Tom NicholsonIt's quite a nice way for me to sort of round off that week and have hopefully a positive, enjoyable conversation about ADHD and what's happening in the research at the moment?
KateYeah, and that what I'm really interested in is because you've got a pH, you are an academic, you're a lecturer, so you're really at the forefront of the research that's coming out.
KateSo we kind of like hear, you know, hear about this much later down the line, but actually you're there at the forefront.
KateSo can you tell us a little bit about your research and maybe the PhD that you did and the topic that was on?
Dr. Tom NicholsonYeah, absolutely.
Dr. Tom NicholsonI think what's also probably of relevance that I'm also neurodivergent myself.
Dr. Tom NicholsonSo I was diagnosed ADHD at 5 years old and I am autistic also.
Dr. Tom NicholsonAnd so my interest in this research kind of stemmed from my experience and my experience growing up, my educational experience.
Dr. Tom NicholsonSo what my research does, what my PhD was on, was understanding the experiences of parents across the ADHD diagnostic journey.
Dr. Tom NicholsonSo thinking about what experiences do parents have across that one, two, potentially three year journey of waiting lists and assessment and then getting the diagnosis, what stories do parents craft and develop to understand that experience?
Dr. Tom NicholsonWhat stories about themselves as parents, as mothers, as fathers, what stories about their children and then also how the journey itself changes those stories.
Dr. Tom NicholsonSo perhaps thinking one of the things I was really interested in was the story you think you're going to have before the assessment, does that match with a story that you actually have post diagnosis about what does ADHD mean to you, what mean to you as a mother, mean to you as a father?
Dr. Tom NicholsonAnd how you see your children and then the language of disability and positivity within that.
Dr. Tom NicholsonAnd how do you make sense of that journey, that child often very challenging journey.
KateYeah.
KateI mean is that actually fascinating?
KateBecause when you say the word stories, do you mean like the beliefs that we hold and the stigma that we have seen and I guess our conditioning and our how we've perceived neurodivergence?
Dr. Tom NicholsonThat and more.
Dr. Tom NicholsonIt's very much how do we construct and make sense of our experience.
Dr. Tom NicholsonSo that sense making and that story could include who are the protagonists, who are the helpful figures in your story, in your journey, who are the antagonists, who are, what are the people or systems or barriers that present challenges and problems to overcome on that journey?
Dr. Tom NicholsonAnd then on top of that, how, what is the role of sort of societal pressure on the pressure that we place on mothers, on fathers, the system and how the systems of healthcare and education interplay within our stories and in how some stories are filled with interactions with say healthcare or social care, whereas other stories and parental stories are filled with educational challenges.
Dr. Tom NicholsonAnd one thing that definitely came out in all stories was fighting and battles and fighting for diagnosis.
Dr. Tom NicholsonAnd I'm sure we'll go into loads of detail because there's so much to talk about here.
Dr. Tom NicholsonYeah, the story was almost any way in which parents make sense of what is happening to them, for them, with them.
KateWow.
KateSo this was your PhD project, I guess.
KateWhat drove you to this?
KateWas it a personal endeavor?
KateWas it something that you were seeing while you were working in the mental health arena?
KateLike what was the sort of the driver there for you?
Dr. Tom NicholsonIt was very funny enough.
Dr. Tom NicholsonI actually wrote about this in my thesis because it's a really interesting thing you get to do in PhDs is explore your own sense making through that journey.
Dr. Tom NicholsonAnd what drove me to ADHD in general so is was my early experiences.
Dr. Tom NicholsonSo I was diagnosed adhd.
Dr. Tom NicholsonMy mom was a mental health nurse.
Dr. Tom NicholsonI described my early life family wise as attachment focused and loving and supportive and my educational journey as institutionally abusive.
Dr. Tom NicholsonI was told my entire educational journey that I was the problem, that I was a bad child, I would be in prison by the time I was 16 or I would never amount to anything.
Dr. Tom NicholsonAnd this was from 5, 6 years old.
KateSo those are the stories that we're talking about.
Dr. Tom NicholsonYes.
Dr. Tom NicholsonAnd this, this was a story that was given to me.
Dr. Tom NicholsonSo my story was one of the typical bad child, naughty child, adhd, bad boy ADHD and the lack of hope that came with my story.
KateYeah.
Dr. Tom NicholsonHowever, I was particularly fortunate in that my story changed a little bit when I went to high school and found people who were more supportive, more inclusive, who gave me a better story, a more positive one, which acknowledged my neurodivergent challenges, but supported and bolstered and nurtured my ADHD neurodivergent strengths.
Dr. Tom NicholsonAnd then from there I had this sort of driving passion that I never wanted and I don't want any other children or young people to have the experiences I had.
Dr. Tom NicholsonAnd so I went into mental health nursing and I was a ADHD nurse in the neurodevelopmental assessment pathway.
Dr. Tom NicholsonSo I was responsible for the assessment, diagnosis, treatment and intervention of young autistic and ADHD children in Newcastle and Gateshead.
Dr. Tom NicholsonBut then when I was in there, I saw more of these systemic barriers.
Dr. Tom NicholsonI saw more of the challenges and the long waiting lists and not quite feeling like that was enough, that I was making enough impact.
Dr. Tom NicholsonSo what's the next step?
Dr. Tom NicholsonIt was then do a PhD, getting to research, try and find a way to impact on policy and impact on more people and change the sort of societal or the cultural narrative.
Dr. Tom NicholsonAnd that was around the time when I also developed my personal trip, my ADHD neurodiversity training business.
Dr. Tom NicholsonSo I've been straddling kind of to a tightrope almost of the academic research focused work on improving research in this area and then also supporting the training and the education and the understanding of adhd, both to health, social and educational environments, but also to the general public.
Dr. Tom NicholsonSo I did have a public lectures on ADHD as well and navigating neurodiversity.
Dr. Tom NicholsonSo kind of my entire life has been adhd, both from a, a challenge perspective.
Dr. Tom NicholsonEarly on to then the.
Dr. Tom NicholsonMy career.
Dr. Tom NicholsonMy careers.
Dr. Tom NicholsonAnd again, so doing a PhD just felt like a natural next step for me because I am one of the fortunate people who I am particularly strong academically, but I struggle in other areas.
Dr. Tom NicholsonAnd so yeah, it's been.
KateCan I ask, I mean obviously you're saying that your mum was a mental health nurse.
KateSo where, how old were.
KateSorry, what era, what date were you diagnosed?
KateJust so I can gauge kind of 1996.
Kate1996.
KateOkay.
KateSo sort of, yeah.
KateSo ADHD was sort of coming out.
KateIt was being diagnosed in boys.
KateThe stigma was there.
KateEveryone's talking about Ritalin and it's that kind of like mid-90s stigmatized view on what ADHD looks like.
KateAnd we sort of did.
KateI remember, I remember that exact time.
KateI was 16 and my brothers were both diagnosed.
KateProbably late 80s, early 90s.
KateNo, I would say probably late 80s.
KateThey were both diagnosed and like you say there are these stories and like your mum is kind of like the hero in this situation because she was obviously at the forefront and she was thinking there's no way my kid's going to be written off like this.
KateSo do you feel that you had this advocate on your side?
Dr. Tom NicholsonOh, I could talk about how wonderful my mom was for hours.
Dr. Tom NicholsonSo my mom was the type of mom.
Dr. Tom NicholsonSo it was unconditional love at all times.
Dr. Tom NicholsonIt was acknowledging my challenges.
Dr. Tom NicholsonBut she was fighting the school.
Dr. Tom NicholsonShe was constantly going into the school.
Dr. Tom NicholsonShe was challenging the status quo when the school were constantly putting me on report cards and giving me punishment based systems.
Dr. Tom NicholsonMy mom went into the school in 1996, 97 and told them it would use a positive behavior report to use positive behavior strategies which are now the gold standard behavioral management for neurodivergent young people.
Dr. Tom NicholsonShe saw how I was being treated at school and how I was constantly being punished.
Dr. Tom NicholsonAnd then she vowed to stop punishing me at home and stopped telling me off and always extolled the positives and the virtues.
Dr. Tom NicholsonYou know, I used to tap and I would bang my hands all the time.
Dr. Tom NicholsonAnd it was my mom who bought me a drum kit so that I would have in drum lessons so that I would have something to feel good about myself and to feel some sort of self esteem around.
Dr. Tom NicholsonAnd I got, I was doing, yeah.
Dr. Tom NicholsonGrade 5 drums.
Dr. Tom NicholsonI was in a Djembe African percussion ensemble as the lead soloist at one point which is very unusual for the northeast of England.
Dr. Tom NicholsonAnd I don't know if you can see in the background but I've got a drum kit in the background now which My son, my 20 month year old son and we play the drums together.
Dr. Tom NicholsonSo yeah, my mom has been just that absolute rock throughout my entire journey.
Dr. Tom NicholsonAnd she was the.
Dr. Tom NicholsonI've got pictures of my graduation where she's just beaming.
Dr. Tom NicholsonYeah, but that her story and her journey because she still has these doubts about her parenting ability during that time because of what she was told by society at that time.
Dr. Tom NicholsonShe was told by teachers that she wasn't good enough.
Dr. Tom NicholsonShe was told by teachers it was her Fault I was a naughty boy.
KateYeah.
Dr. Tom NicholsonAnd those stories, unfortunately haven't changed as much as we would like to see, and that was one of the findings from my thesis, was that we're still seeing those same mother blaming, parent shaming stories, but we're also seeing some real positives.
Dr. Tom NicholsonAnd I love that you described her as like the hero of the story or the protagonist, because that was also one of my findings, is that mothers particularly have to put on the mantle of being the advocate, the hero, the protagonist, the valiant parent who fights against the system.
KateYeah.
Dr. Tom NicholsonAnd that's exhausting.
KateI mean, that's hugely validating for everyone who's got kids who are also neurodivergent themselves, themselves.
KateBecause there is a theme.
KateYou know, I've done it with my kids.
KateI've been the advocate.
KateI've been the one that has emailed teachers, got on the phone, got to school, done those things because of my, thank goodness, my knowledge in this area that my family history, my own understanding of my ADHD and seeing it present in my kids in different ways.
KateMy husband's been a bit more hesitant because he's just not been part of this world.
KateEven though we both believe he has ADHD himself, he's not had an official diagnosis, but the more he, he understands, he's like, definitely I had adhd and it was just channeled in very different ways, but he still wasn't armed with the knowledge.
KateAnd so it's been an exhausting journey for me.
KateI'm going to talk personally because you're advocating for your child, you want your child, you get, I mean, again, this sense of justice, of having ADHD is so profound in us that we will not accept someone, you know, treating our kids badly or saying something negative or lowering their self esteem when we know it's already taking a beating internally.
KateAnd I hear this a lot with other women as well, that they are getting their own diagnoses after their children.
KateSo they're navigating that themselves, processing, grieving, all of the stuff that they're going through.
KateBut, you know, being parents, we do prioritize our kids, you know, hopefully, and want to kind of make the world a better place for them.
KateSo it's a, it's incredible that you are honing in on these because, you know, all the conversations I've had on the podcast, we've never really kind of gone there because there is a lot of guilt shaming and you know, parents, you need to be doing this or you should be doing better or you shouldn't Allow them to do this or that.
KateYou know, if anyone knows about parenting an ADHD child, there's certain things that you cannot force them to do.
KateAnd it's.
KateIt's really hard work sometimes incredible in other times.
KateBut it can be really challenging.
KateAnd we see it's like a mirror as well.
KateSo they can trigger us, we can trigger them.
KateWe see ourselves, you know, thinking, oh, I don't want to them to make the same mistakes.
KateSo we overcompensate and then we project and there's just this whole cauldron of all sorts of things going on.
KateBut essentially, I think what you're doing right now is validating our experiences.
KateMessy.
KateAnd sometimes we don't have the answers.
KateWe don't know what we're doing, and sometimes we are making mistakes.
KateBut I wonder if what you found in your thesis was that if there was an underlying love and, you know, constant advocacy for your child.
KateAnd what you said, I wrote that down.
KateThis, the positive reinforcement, if we focus on that, were you seeing a better outcome?
Dr. Tom NicholsonHey, so it was.
Dr. Tom NicholsonIt was a really interesting question.
Dr. Tom NicholsonAnd I think it was less.
Dr. Tom NicholsonIt was varied.
Dr. Tom NicholsonI would support.
Dr. Tom NicholsonI would say it was a varied response.
Dr. Tom NicholsonBecause I think what's really important to know is that obviously everyone's individual journeys are different and everyone's experience are different.
Dr. Tom NicholsonAnd some of the length of time that they're waiting for diagnosis, the core occurring, multiple diagnoses for those who are potentially twice marginalized, if they're LGBTQ plus or if they are a minority group in some of that way.
Dr. Tom NicholsonBut what was really fascinating, I think this is helpful to kind of almost answer your question, is to explore what the typical story was.
Dr. Tom NicholsonBecause if we know the typical story and then some of the offshoots, then we can start seeing where are those pressure points.
Dr. Tom NicholsonBecause all parents, both mothers and I had a father, only one father in my study, which is actually fairly typical of ADHD research, is really struggling to recruit fathers.
Dr. Tom NicholsonAnd very much if we can support fathers, we can also support mothers.
Dr. Tom NicholsonAnd I think that's a really interesting area to discuss as well.
Dr. Tom NicholsonBut all parents talked about an early recognition of there being something different.
Dr. Tom NicholsonThey described it often as a problem, but they were aware of their children being different or divergent in some way prior to diagnosis.
Dr. Tom NicholsonAnd so they would seek this diagnosis and they would seek that journey, and they would start that journey.
Dr. Tom NicholsonAnd what the diagnosis was for a lot of, from almost all parents was, was understanding.
Dr. Tom NicholsonIt's about finding understanding, not just for you to understand your child, but for the child to understand themselves and also for the world to understand the child as well.
Dr. Tom NicholsonSo it was this real diagnosis was very much about understanding and developing understanding for all parents in my study.
Dr. Tom NicholsonAnd then we start coming up against the barriers of the system and the fight that you have to have.
Dr. Tom NicholsonAnd this is where it varies in terms of how much of a battle each parent has with that system.
Dr. Tom NicholsonSome parents talked about really validating school experiences or at least having a single validating educationalist or teacher who was helpful.
Dr. Tom NicholsonBut most talked about the system being fundamentally broken, about having to wait way too long, about be feeling like the, the system itself breaks you as a parent.
Dr. Tom NicholsonIt's so burdensome and so invalidating and so challenging towards your self affect and who you think you are.
Dr. Tom NicholsonThat parents are going off sick from work, that one are stopping work altogether.
Dr. Tom NicholsonMost and again all mothers, mothers are breaking down because of what the system and the diagnostic process is doing to them.
Dr. Tom NicholsonMothers who saw themselves as strong people, emotionally strong and then the just constant setbacks and blaming and whatnot.
Dr. Tom NicholsonAnd so you end up with.
Dr. Tom NicholsonI found sort of three different types of, I call them archetypes of mother on that journey.
Dr. Tom NicholsonThree different types of mother that we see and we can also.
Dr. Tom NicholsonAnd mothers can oscillate a little bit across these.
Dr. Tom NicholsonSo we've talked about that sort of good heroic mother, you know, the mother who strives for everything for her child.
Dr. Tom NicholsonShe will do everything she possibly can to improve the life of her child.
Dr. Tom NicholsonShe will advocate, but she.
Dr. Tom NicholsonBut on a more insidious level, our ADHD mothers are on the diagnostic journey, are forced to portray themselves as good mothers.
Dr. Tom NicholsonThey have to prove that they are good mothers so that their needs and their concerns are taken seriously.
Dr. Tom NicholsonSo it's almost like I am a good mother, therefore my children's behavior or non typical behavior is not my fault.
Dr. Tom NicholsonSo can you assess for ADHD please?
Dr. Tom NicholsonThere's almost this like need to justify and show that you are good enough, you are already a good parent, you're already a good mother.
Dr. Tom NicholsonAnd then I can be taken seriously which is just additional burden and work.
Dr. Tom NicholsonThat's the sort of one of the more positive archetypes.
Dr. Tom NicholsonThe second one I called, they call the guilty, the broken or the fragile mother.
Dr. Tom NicholsonAnd these are moms who are broken emotionally by the system.
Dr. Tom NicholsonAgain, the ones who become mentally unwell, their well being is so decimated because of this societal violence that occurs towards them.
Dr. Tom NicholsonThis sort of forcing of well, have you tried this?
Dr. Tom NicholsonThis is your fault or even you are responsible for your children not Being successful or having these difficulties and that being too much for many, understandably so.
Dr. Tom NicholsonAnd yeah, that's where we saw.
Dr. Tom NicholsonI, I saw mothers going off sick from work, quitting work altogether because of the journey.
Dr. Tom NicholsonAgain, not, not about parenting an ADHD child.
Dr. Tom NicholsonThis is not about the additional typical parenting burdens and challenges and fun.
Dr. Tom NicholsonThis was about seeking diagnosis.
Dr. Tom NicholsonAnd just literally the process of seeking diagnosis and seeking that validation breaking you down.
KateIs that because there's a higher chance of the mother being neurodivergent themselves and struggling with overwhelm and just feeling like they're drowning in.
KateWhether it's the paperwork, whether it's the remembering to fill in forms or is that, is that part of it?
Dr. Tom NicholsonThat's, that is very much part of it.
Dr. Tom NicholsonAnd there's a super fascinating finding I had which was about how the stories of parents, mothers who already have a diagnosis of ADHD themselves were different from those who were non neurodivergent mothers.
Dr. Tom NicholsonAnd part of that extra challenge, yes, it was the additional burden, was the fact that it's harder to go through all this paperwork.
Dr. Tom NicholsonIt's harder to remember all these appointments when you are your ADHD yourself.
Dr. Tom NicholsonIt's more challenging.
Dr. Tom NicholsonIt's, you're already emotionally potentially dysregulated.
Dr. Tom NicholsonYou have, you've already had difficulties with shame and being blamed your entire life anyway.
Dr. Tom NicholsonAnd then medical professionals using language like disability and disorder and mother's going, I never thought considered myself disabled, I never considered myself to be broken.
Dr. Tom NicholsonBut the way that it's being portrayed in my child is now I'm having to face, well, hang on, am I disabled?
Dr. Tom NicholsonAm I a disabled person?
Dr. Tom NicholsonI'm seeking disability support through the league, through the sort of social care systems for my child.
Dr. Tom NicholsonAnd then it's forcing you to recontextualize your own identity as a mother in relation to adhd, which was something I've never seen in the literature before about how a childhood diagnosis forces you to face your own diagnosis in a different way, really interest.
Dr. Tom NicholsonAnother really interesting example was one mother who saw her ADHD as her nemesis.
Dr. Tom NicholsonIt was not a superpower, it was not positive.
Dr. Tom NicholsonIt was something she wanted to be rid of, she wanted to medicate.
Dr. Tom NicholsonShe did not like her own adhd.
Dr. Tom NicholsonIt was her anathema, her nemesis.
Dr. Tom NicholsonBut she didn't want her children to see their ADHD in that language and so had to forcibly change and alter her own perception of her own ADHD so that her children would be able to see that modeled behavior of actually adhd.
Dr. Tom NicholsonIsn't this Negative thing.
KateYeah.
Dr. Tom NicholsonAnd that again, when I talk about stories, the story of yourself has to change.
KateYeah.
KateOh.
Dr. Tom NicholsonWhich is work.
Dr. Tom NicholsonAnd that's what I talk about, work, parenting work, contextual, conceptual work.
Dr. Tom NicholsonAnd there is one more type of mother.
KateGo, go, go.
Dr. Tom NicholsonAnd this is a mother you.
Dr. Tom NicholsonYou were kind of talking about with yourself just before, Kate, where you talked about, you know, a lot about ADHD already, and that's really beneficial.
Dr. Tom NicholsonAnd this is where our insider or informed mothers come in.
Dr. Tom NicholsonOur informed mothers are mothers who they either already know about ADHD because they are professionals, they've worked in healthcare or social care or education, so they have a decent level of awareness, or they've read all the books, they've read the journal articles, they've been listening to podcasts such as yours for the past two years.
Dr. Tom NicholsonThey feel knowledgeable about adhd.
Dr. Tom NicholsonAnd so they're going into these assessments with the right language, with the language that they know will get people to listen to.
Dr. Tom NicholsonThey're using nice guidelines, they're using best clinical practice guidelines to get preferential treatment in the sense of saying, actually, if I make a complaint, it's going to be listened to more, because I know what words to use.
Dr. Tom NicholsonI know what you need to do in line with the Equality act or the Disability Discrimination Act.
Dr. Tom NicholsonI know what needs to happen here, and I will fight for it using my knowledge or using the people who I know who work for SIPs or CAMs.
Dr. Tom NicholsonAnd those informed or insider mothers typically got faster diagnoses or faster assessments, or almost nearly exclusively went private and went for private diagnosis, which I thought was really interesting, and also displays another one of those in inequalities in ADHD diagnosis, that if you have the funds and the financial resources and the capital, then you can get quicker assessments, potentially more robust assessments, or more inclusive assessments of more than just one condition or one difficulty.
Dr. Tom NicholsonAnd you can get it within weeks and not years.
Dr. Tom NicholsonSo, yeah, that's all the mothering roles.
KateIt's unbelievable, the layers, the so many layers that we're talking about here.
KateI don't know any other mental health condition or however you want to describe.
KateYou know, ADHD with so many complexities and so many different things attached to it, because it's.
KateIt's there.
KateIt's part of our genetic makeup.
KateWe've probably seen it through the generations.
KateAnd, you know, you mentioned at the beginning, we're at the tail end of your neurodiversity celebration week.
KateAnd I sort of.
KateI'm not entirely comfortable with it.
KateI've not embraced it.
KateAs much as I thought I would, because the word celebration, I'm not, what am I celebrating?
KateI'm not celebrating people's mental health being in such dire, you know, dire straits that they've had, you know, suicidal ideation and addiction problems and disordered eating.
KateAwareness, yes, we need awareness, we need to talk about it, we need to normalize and.
KateBut the celebration for me feeds into the.
KateIt's a superpower, it makes you really creative, it makes you a fantastic entrepreneur, which it can do.
KateBut there's always two sides to everything.
KateAnd if you are a fantastic entrepreneur, there's a very high chance that maybe you are a workaholic and you may have OCD and you may have depressive times and all these different things.
KateIt's not just, you know.
KateAnd that's why I like to have these conversations the podcast, because there's moments where I do celebrate ADHD and there's moments where I've cried on this podcast because it's so heartbreaking and I've seen it play out in my family.
KateIt is so interesting because my parents, I think, still have a negative story about adhd.
KateThey don't quite see any of the other stuff around it.
Dr. Tom NicholsonYeah, this is, I agree.
Dr. Tom NicholsonAnd I have the same sort of tentative, trepidatious response to celebration events because yes, we can celebrate our neurodivergent strengths, but I consider them contextual strengths.
Dr. Tom NicholsonYou know, Michael Phelps's ADHD is contextually, his hyperactivity is contextually very strong and it's a benefit when he's swimming.
Dr. Tom NicholsonBut it wasn't a strength at school when he was told that he would never amount to anything.
KateExactly.
Dr. Tom NicholsonA talk to Loughborough University just two days ago on it was about productivity in higher education and adhd.
Dr. Tom NicholsonBut fundamentally I was talking about celebration and neurodiversity Celebration week.
Dr. Tom NicholsonAnd I was saying, yes, we can celebrate, but at the same time, let's not lose sight of the fact that we have a five times risk of suicide, dying by suicide.
Dr. Tom NicholsonWe are eight times more likely to have a depressive disorder, seven times more likely have an anxiety disorder.
Dr. Tom NicholsonWe are over represented in prisons, we are over represented in the socioeconomically deprived areas.
Dr. Tom NicholsonAnd it's thinking that we can, we can celebrate, but can we also challenge, can we, can we, we don't have a week to challenge the systems as much.
Dr. Tom NicholsonAnd I think for a lot of people who I've worked with, clinically and otherwise, is there isn't a lot to celebrate because of the lives that they've had.
Dr. Tom NicholsonThe traumas they've experienced, the educational traumas, the lifetime traumas.
Dr. Tom NicholsonAnd the celebration of neurodiversity feels premature for them because we still have the systemic societal barriers and stigma.
Dr. Tom NicholsonAnd what you're talking about with your parents still having that negative perception of adhd, a huge proportion of the people I meet and work with also still have that negative perception because it's continuing to damage the lives of children, young people, parents, adults, et cetera.
Dr. Tom NicholsonIt's often quite nuanced, these discussions, and it's got to be balanced because we don't want to go too far in the other direction and talk so much about strengths that we don't get, HR policies that support us, talk so much about superpowers that we don't get reasonable adjustments.
Dr. Tom NicholsonAnd we don't acknowledge the sort of discrimination that occurs in schools when we punish ADHD children for standing inappropriately of which is a diagnostic symptom of hyperactivity, or we punish children for shouting out loud or being late to lessons or lectures, when that's core symptomology.
Dr. Tom NicholsonIt's a core symptom of what we would expect to see.
Dr. Tom NicholsonAnd yeah, so it's, it is a.
Dr. Tom NicholsonIt is a really tricky place to be.
Dr. Tom NicholsonAnd I've wrote a bit about this, about the, how the neurodiversity paradigms, these positive paradigms are fantastic and really are helpful.
Dr. Tom NicholsonAnd I predominantly come from a social model.
Dr. Tom NicholsonI predominantly come from this positive paradigm.
Dr. Tom NicholsonBut you also can't deny the objective lived experience of impairment for some people, where the intensity and level of their inattention, hyperactivity and impulsivity is to the point where they actually really struggle to function, even when society is set up supportively for them, when they are by themselves at home wanting to have a conversation with their wife and they are so inattentive that they're struggling to do that.
Dr. Tom NicholsonOr maybe they never get a partner because they struggle so much to communicate.
Dr. Tom NicholsonBut one, one.
Dr. Tom NicholsonAnd it's, yeah, it's this fine line.
Dr. Tom NicholsonAnd then how do we pair in medication?
Dr. Tom NicholsonHow can we, how do we conceptualize medication when we want to be this purely positive social model change environments perspective, when we're also acknowledging that medication is helpful to us.
Dr. Tom NicholsonAnd how do you balance that?
Dr. Tom NicholsonAnd that was part of my findings as well as how do parents balance that?
Dr. Tom NicholsonADHD medications efficacy is incredibly well evidenced and well researched.
Dr. Tom NicholsonBut what, what are we medicating?
Dr. Tom NicholsonTo what extent are we meditating?
Dr. Tom NicholsonWe can't.
Dr. Tom NicholsonYou can't medicate someone out of a terrible school system and A shame, failed school system.
Dr. Tom NicholsonIt's a journey and a challenge on parents.
Dr. Tom NicholsonAnd again, the burden of childcare predominantly falls on mothers.
Dr. Tom NicholsonSo it's predominantly mothers who are affected by this and that additional burden, that cognitive load is overwhelming for many, understandably so.
KateYeah.
KateAnd then you throw in sort of like privilege, like you mentioned before, that sometimes it really is luck of the draw, you know, your socioeconomic situation, you know, if you can afford to go private, you can then afford therapy and coaching, you can afford to be titrated and stay, you know, in the system with medication.
KateLike so much of it is dependent on whether you can afford all the support.
KateAnd it is completely overwhelming of remembering, you know, to take your blood pressure or get your child to make sure that they get weighed and all these different things.
KateAnd when you've got more than one child who's neurodivergent it and you're working full time and you are juggling life because being a mum, being a woman right now at the moment is really, really hard work.
KateWe've got all these expectations on us and we want to do the best for our kids and we're dropping balls all the time and then that those, the dropping of the balls then feeds into the self shame and to the judgment and to the critical voice that we've already got going on of I should be doing more, I should know more, I should be helping them more.
KateAnd then if we've got a situation at school, like you say, if we haven't got that support system at school, we really see, you know, and I've seen it, I feel so grateful and lucky that my kids on the whole have had certain teachers, I'm not saying all teachers, but certain teachers who have got them, whether they've understood it's neurodivergence or not, they just kind of get their personality and they've guided them towards the subjects, they've held them, you know, if they've not handed their homework in time or they've had to be punished, you know, stupid detentions.
KateAnd one teacher has, you know, saw that my daughter kept getting detentions and basically just said, well, let's go over your maths homework together.
KateLet's use this time to kind of reinforce your maths again.
KateLike these little, these people, the teachers can play such a pivotal role in building a child instead of crushing a child.
KateAnd I'm keen to understand the tom back, you know, when you were diagnosed and what they were saying about you.
KateAnd now look at you, I mean, highly academic, being able to Achieve what you've achieved and to direct and channel all your energy and focus into what you're doing now is incredible.
KateWas there a point where you kind of I can't do this.
KateOr were you always fascinated in academia and last question.
KateI always do this about 10 questions in one.
KateDo you think that the autism has helped you with your academia or is that me just stigmatizing autism?
Dr. Tom NicholsonGreat question.
Dr. Tom NicholsonSeries of questions.
Dr. Tom NicholsonI'll try and do them in chronological order as best I can.
Dr. Tom NicholsonAnd so all of my training, actually I, all of my training I deliver about a third of it is around the research evidence and the academic perspective, but in a digestible way.
Dr. Tom NicholsonSome of it is on the clinical perspective of ADHD and what we know clinically and what helps and what is supportive and what are the evidence based things that are effective and helpful.
Dr. Tom NicholsonAnd then the last part is always about my own journey and my own story and I my own narrative.
Dr. Tom NicholsonSo I'm very open about my experiences and I bring report cards to my sessions and I read out the report cards and I've got a few of them here just on my other screen to talk about the story that I was told.
Dr. Tom NicholsonThis is my year 6 end of year report card written by the head of the year.
Dr. Tom NicholsonOh dear.
Dr. Tom NicholsonPerhaps we are going to have to curb this streak of independence so that Tom isn't quite so noticeable.
Dr. Tom NicholsonHis interest and genuine enthusiasm for the world around him is great to see and should help him gain approval.
Dr. Tom NicholsonWe hope so.
Dr. Tom NicholsonAnd so what I learned at school was that you need to gain people's approval and you shouldn't be independent.
Dr. Tom NicholsonMy personality and social development for a whole year was summed up in one sentence.
Dr. Tom NicholsonTom likes to be the center of attention and can be quite, quite disruptive to achieve this Now I love being the center of attention I get.
Dr. Tom NicholsonI'm a public speaker, I'm a professional public speaker.
Dr. Tom NicholsonI love being on a stage in front of hundreds of people.
Dr. Tom NicholsonIt is my joy, it is my happy place.
Dr. Tom NicholsonBut I was told at school that that was undesirable, that that is not something that you should want.
Dr. Tom NicholsonYou know, I've got more.
Dr. Tom NicholsonTom remains a frustrating, a very frustrating student.
Dr. Tom NicholsonTom is lazy.
Dr. Tom NicholsonTom is struggles to know when it is an appropriate time, when any appropriate time to speak.
Dr. Tom NicholsonThis is an issue that Tom can easily resolve because the belief was that I could easily resolve these things.
Dr. Tom NicholsonMy report card says one of my goals on my report card.
Dr. Tom NicholsonTom will not use his hands to fiddle with any possessions, completely impossible goals.
Dr. Tom NicholsonAnd so unfortunately when I was about 11 again.
Dr. Tom NicholsonSo all of my peers, I was being bullied by my peers as well as my teachers and my peers told me like, I wasn't welcome.
Dr. Tom NicholsonI was told I went on holiday to Florida and I came back because my mom and dad won a little bit of money on the Lucky Sevens football.
Dr. Tom NicholsonAnd we didn't go on holiday very all the time.
Dr. Tom NicholsonAnd I was told by a teacher when I was seven that it was so much better when you weren't here.
Dr. Tom NicholsonAnd then in year six, I went on to Majorca and I came back and another teacher told me, tom, it was so much better when you weren't here.
KateOh, my God.
Dr. Tom NicholsonAnd so what happened again, horrific.
Dr. Tom NicholsonBut what happens in that time is you start then believing that the world, everyone would be so much better when you weren't here if you weren't here.
Dr. Tom NicholsonYou start really believing that actually everybody would be better off.
Dr. Tom NicholsonAnd then that five times increased risk of suicide starts making a lot of sense.
Dr. Tom NicholsonSo I was 11 and suicidal for a couple of years.
Dr. Tom NicholsonAnd you know what got me through that was just, was my mom was my.
Dr. Tom NicholsonMy loving parents, was my loving family.
Dr. Tom NicholsonAnd so my narrative was very much, you are a failure and you are broken and you are defective.
Dr. Tom NicholsonAnd.
Dr. Tom NicholsonAnd I'll be honest, I think I probably, I probably held that narrative till about 26, 27, even through some of my work, my clinical work of myself, because we carry our school bags our entire life and we carry those stories our entire life.
Dr. Tom NicholsonBut there were also individual teachers who challenged that narrative, who discovered that I was really good at some things, that I was academically quite strong.
Dr. Tom NicholsonSo I always loved, I always loved learning.
Dr. Tom NicholsonI loved the process of learning, but I despised education.
Dr. Tom NicholsonI hated education because I hated those environments.
Dr. Tom NicholsonAnd what I learned, in spite with some teachers, was that you could love learning for the sake of learning.
Dr. Tom NicholsonYou could love learning because fun.
Dr. Tom NicholsonAnd I was being taught history with role play and figurines by Mrs.
Dr. Tom NicholsonWright at Cromwell High School.
Dr. Tom NicholsonShe's incredible.
Dr. Tom NicholsonAnd Mr.
Dr. Tom NicholsonSpurs was teaching me that I was really good at it and I could finish my work really quickly.
Dr. Tom NicholsonSo he'd give me extra work and extra work and I would.
Dr. Tom NicholsonDidn't tell us, I don't know if you could do this.
Dr. Tom NicholsonSo I'd fall, I'd show him that I could do it and I would do as much as I could to get it done.
Dr. Tom NicholsonAnd then I ended up getting an extra GCSE just in my lessons because of how much extra work I did.
Dr. Tom NicholsonAnd then in my A levels, I went to I didn't take lunch breaks because I didn't like being outside as much.
Dr. Tom NicholsonSo I ended up getting an extra A level.
Dr. Tom NicholsonAnd what these three, these two teachers shown showed me is that actually I was really academically strong.
Dr. Tom NicholsonAnd then I was then put on two gifted and talented programs and I was on the young gifted and talented register.
Dr. Tom NicholsonI was sent to Oxbridge on an aspiration day.
Dr. Tom NicholsonSo I was gifted and talented, but that was missed for 15 years.
Dr. Tom NicholsonAnd I was told I was a crap student and a bad student who couldn't learn.
Dr. Tom NicholsonAnd yet from 15 onwards I was told actually you are exceptional to use the language.
Dr. Tom NicholsonAnd I went straight from.
Dr. Tom NicholsonI told.
Dr. Tom NicholsonApparently I told my mom when I was about 13, I said, Mom, I am going to be in education till I'm 30 and I'm going to do a PhD just because I thought it sounded cool.
Dr. Tom NicholsonAnd then I got my first degree and my first degree was ancient history.
Dr. Tom NicholsonAnd I did that because I thought it was interesting.
Dr. Tom NicholsonI read a book, a fiction book on it and I thought was interesting.
Dr. Tom NicholsonSo I just did a degree in it, you know, completely impulsively, didn't really think it through and loved, but loved it.
Dr. Tom NicholsonMy did I always see myself as doing something like this?
Dr. Tom NicholsonKind of, but more because I thought it was interesting, not because I wanted to like be in academic or be in academia.
Dr. Tom NicholsonI just always, always love the process of finding stuff out and taking things apart and learning them, but not practically.
Dr. Tom NicholsonI'm terrible with my hands, you know, I can't put up a shelf, but I can write an essay in two hours.
Dr. Tom NicholsonSo it's like I my strength.
Dr. Tom NicholsonAnd to link with what you were saying about my.
Dr. Tom NicholsonI think it's potentially a bit of an autistic way of thinking.
Dr. Tom NicholsonFor me, this quite rigid cognitive way of thinking is I can pick up information really quickly and I can detract my emotion from that information quite comfortably.
Dr. Tom NicholsonSo I can change my opinion.
Dr. Tom NicholsonMy opinion can be changed, my perspective can be changed.
Dr. Tom NicholsonI'm not.
Dr. Tom NicholsonI'm able to slightly unemotionally explore the research and concepts and allow.
Dr. Tom NicholsonAnd I'm very comfortable being challenged and that's like intellectually challenged and having my theories challenged and things like that.
Dr. Tom NicholsonAnd so I think that does hold you in really good stead for academia and for academic work.
Dr. Tom NicholsonBut it also makes friendships and relationships challenging.
Dr. Tom NicholsonIt makes friendships more challenging because not everybody thinks like that, you know, not everybody is as detracted from their, their emotions and their ideas or their principles or their beliefs.
Dr. Tom NicholsonAnd so I love debates and I love the process of debates and not everyone loves that.
KateYeah.
Dr. Tom NicholsonSo it's a really.
Dr. Tom NicholsonAlthough it might sound like I've had some have been really fortunate that I am academically quite strong and that is my, my area of strength.
Dr. Tom NicholsonI don't want to detract from the continual, constant difficulties that are just slightly different for those who are academically successful or achieve academically.
Dr. Tom NicholsonI'm hoping I'm writing an abstract with my coach and a colleague about what they call twice exceptionality.
Dr. Tom NicholsonSo being gifted, high iq, high achiever and being neurodivergent or adhd.
Dr. Tom NicholsonAnd how do you fit into that story?
Dr. Tom NicholsonHow do you fit into that narrative?
Dr. Tom NicholsonBecause you have different difficulties sometimes.
KateDo you find that you burn out because.
Dr. Tom NicholsonYeah, yeah.
Dr. Tom NicholsonOh yeah, yeah.
Dr. Tom NicholsonI've got to be really careful.
Dr. Tom NicholsonAnd I burnt out during my PhD, but that was also in part due to Covid and lockdown and going from speaking to, you know, 100, 200 students a day to only speaking to one person for a year because everyone else was on a screen and not turning their cameras on and losing all of that social interaction.
Dr. Tom NicholsonAnd then I do constantly have plates spinning.
Dr. Tom NicholsonYou know, I finished my PhD and what most people would say then was lovely, I'll have a rest.
Dr. Tom NicholsonAnd my brain went straight to, so what's the next challenge?
Dr. Tom NicholsonWhat's the next big thing?
Dr. Tom NicholsonSo now I'm training for an Ironman triathlon, which is.
KateI wasn't expecting you to say that.
Dr. Tom NicholsonSo 2.4 mile swim, 120 mile bike ride and then a marathon all in one go.
Dr. Tom NicholsonIt'll take us about three years to train for it because that's how my brain works.
Dr. Tom NicholsonIt works with these big challenges and I really love that.
Dr. Tom NicholsonBut that is also exhausting.
Dr. Tom NicholsonYou know, I, as I said, I have a toddler, I have my own business, I'm an academic, I have a wife and I have a home.
Dr. Tom NicholsonAnd balancing all of that whilst also wanting to do a Iron man for some reason.
Dr. Tom NicholsonAnd like that, last year I read 75 books because I love reading.
Dr. Tom NicholsonReading is my special interest.
Dr. Tom NicholsonSo yeah, burnout is consistently earth, an underlying threat.
KateBring it back to, I guess what you're doing in companies.
KateAre you finding now that people are opening up to being accommodating at work?
KateAnd that is just a matter of time that all companies, bearing in mind that the women mostly who I coach are coming to me and they're burnt out from being in their corporate jobs because the companies and the, you know, the jobs and the careers they're in are just not right for their ADHD brains and nervous systems.
KateSo do you see a change happening, a wave of change?
Dr. Tom NicholsonI do, I do see more.
Dr. Tom NicholsonI've got an appetite for this sort of stuff.
Dr. Tom NicholsonYeah.
Dr. Tom NicholsonWhy?
Dr. Tom NicholsonBut what I have found is buy in is often a little bit tricky.
Dr. Tom NicholsonSo it's demonstrating to organizations that they, that this sort of ADHD neuro inclusion training or just ADHD awareness training would be helpful.
Dr. Tom NicholsonOften you think you.
Dr. Tom NicholsonA lot of.
Dr. Tom NicholsonI still see that resistance of do we really need.
Dr. Tom NicholsonThis is really important for us.
Dr. Tom NicholsonAnd then once you get in there and once I get in there and then do that first session, suddenly it's will you train all of our staff?
Dr. Tom NicholsonWill you train the managers?
Dr. Tom NicholsonWill you, will you get involved and do more?
Dr. Tom NicholsonWhat else can you do?
Dr. Tom NicholsonWe need more people in.
Dr. Tom NicholsonAnd I think it's.
Dr. Tom NicholsonOnce you're in there and once you, once you've had some of these conversations, there's a lot of openness.
Dr. Tom NicholsonI'm finding a lot more than I've ever seen to adapt and to make changes and to support the neurodivergent staff or stakeholders, whether they be students, pupils or patients.
Dr. Tom NicholsonBut I am still finding the resistance of the do we really need this?
Dr. Tom NicholsonHow did.
Dr. Tom NicholsonHow do we justify the expense almost what is the metric?
Dr. Tom NicholsonHow can you prove that this will lead to further profitability or productivity or employee wellness?
Dr. Tom NicholsonAnd it's.
Dr. Tom NicholsonIt's hard to get that in just an email, isn't it?
Dr. Tom NicholsonBut yes, that I am seeing things improve, but I'm also seeing in some areas things going backwards.
Dr. Tom NicholsonI'm seeing in some areas in the nhs, because of the crisis that we're in, in terms of staffing, that we're falling back on even more deeply entrenched medical models.
Dr. Tom NicholsonWe're seeing more sort of disorder, negative based medical language.
Dr. Tom NicholsonWe're seeing the splitting apart of holistic person centered organ teams and treatment pathways to more rigid binary.
Dr. Tom NicholsonThis is the ADHD assessment pathway, this is the autism assessment pathway.
Dr. Tom NicholsonIf you want your ADHD diagnosis, it's this pathway and it's three years long.
Dr. Tom NicholsonIf you want autism after that, that's another year, as opposed to a neurodevelopmental mental health assessment.
Dr. Tom NicholsonAnd that's again, it's funding, it's challenging.
Dr. Tom NicholsonBut in the corporate space, yes, I am seeing things improve, which is really heartening.
Dr. Tom NicholsonAnd in schools I'm seeing some wonderful practice.
Dr. Tom NicholsonI still see a lot of bad practice, I still see a lot of horrific things, but I'm seeing some truly revolutionary stuff.
Dr. Tom NicholsonNormally by individuals who are paving the way and trailblazing.
Dr. Tom NicholsonAnd I think that's what we have to bear in mind, is that individuals can make massive differences for another individual or for teams or for hundreds of people, but the burden shouldn't just be on those who are neurodivergent in those organizations.
KateYeah.
Dr. Tom NicholsonWhich I think is something that happens, you know, and also what we're seeing is, as you say, women in these spaces who are.
Dr. Tom NicholsonWho are experiencing this sort of intersectional challenge of both being a woman and being neurodivergent and that dual stigma, that dual challenge.
Dr. Tom NicholsonAnd then what I'm also really interested in is when we add in further intersectionality, if you were a black woman in a.
Dr. Tom NicholsonIn a corporate environment, or if you are a trans woman or you're gay or queer.
Dr. Tom NicholsonAnd I've got a PhD starting, I'm supervising a PhD that starts in October on the experiences of LGBTQ + parents of ADHD children.
Dr. Tom NicholsonBecause that's an area of research that just has not be.
Dr. Tom NicholsonIt's uninterrupt, it's scarce.
Dr. Tom NicholsonIt's just nothing there.
Dr. Tom NicholsonSo how are those experiences different?
Dr. Tom NicholsonAnd this, like, this is a separate conversation about what I'm interested in is how do we support fathers on that ADHD journey and to understand.
Dr. Tom NicholsonTo be involved in going to appointments, to be involved in going to school appointments more to acknowledge their own adhd.
Dr. Tom NicholsonBecause if we can support fathers, we can also better support mothers.
Dr. Tom NicholsonWe can share that burden.
Dr. Tom NicholsonWe can reduce that burden and begin going through that new fatherhood journey.
Dr. Tom NicholsonMyself, very recently, that sparked a new area of interest for me of how do we do it?
Dr. Tom NicholsonHow do we get dads involved more?
Dr. Tom NicholsonI mean, I think it starts from pre birth, but maybe we can stop sending dads away on the first night of the child's life and put that.
Dr. Tom NicholsonSend that implicit message that this is Mom's responsibility.
Dr. Tom NicholsonEven though mom has just gone through potentially a significant bodily trauma surgery or what have you, how do we get that?
Dr. Tom NicholsonAnd then how do we make sure dads get involved in research?
Dr. Tom NicholsonHow do we do that?
Dr. Tom NicholsonAnd I think that's probably a project that's coming in the next few years about we need to get dads involved so that we can support and empower mums more.
KateI think that's so powerful, so, so important.
KateAnd I.
KateYeah, that for me, you know, I normally kind of feel it in my body once I hear something quite profound.
KateAnd that for me is huge, huge, huge, huge.
KateSo I really do hope that you.
KateYou get to do that while resting, while enjoying your books and your drumming and your iron man and being a dad as well.
KateAnd I just want to thank you so, so much.
KateI mean, I think we could have carried on talking, but I kind of like to keep the conversations under an hour.
KateThat's my remit for the podcast.
KateBut I just want to say thank you so much for the work that you're doing and what you're doing to help this community, because it's huge and the fact that you are at the forefront of the research and then you are simplifying things so the wider communities can understand what's going on.
KateJust want to thank you so much.
Dr. Tom NicholsonThank you very much and thank you for letting me come on and talk about this stuff.
Dr. Tom NicholsonIt's sometimes quite hard to get what happens in our universities out to as many people as possible.
Dr. Tom NicholsonI'm not the only one doing this sort of work.
Dr. Tom NicholsonThere's some real cutting edge work happening in the ADHD space at universities.
Dr. Tom NicholsonI've got colleagues doing work here and we want people to hear it because actually, what we're seeing in practice is 10, 20 years out of date.
KateYeah.
Dr. Tom NicholsonWhat the research is saying now.
KateI really hope you enjoyed this week's episode.
KateIf you did and it resonated with you, I would absolutely love it if you could share on your platforms or maybe leave a review and a rating wherever you listen to your podcasts.
KateAnd please do check out my website, adhdwomenswellbeing.co.uk for lots of free resources and paid for workshops.
KateI'm uploading new things all the time and I would absolutely love to see you there.
KateTake care and see you for the next episode.