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The septal defect is almost like you have those crack in a straw. The

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straw doesn't suck properly. And then the vetus return is just

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incorrect plumbing. So one of my four tubes was just

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going into the wrong spot, and it was at that point where, you know,

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it takes the sensor out and they go away and they come back.

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And at the time, I had been planning a trip with a friend to

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go on a ski expedition to Pakistan, and I told the doctor all

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about it. He's like, oh, yeah, you know, we'll probably get this figured out for

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you by then. This is, like, six months from now. And the cardiologist comes

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back, and he goes, looks at me, and I say to him, before he says

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anything, I'm like, I'm probably not going to Pakistan this year, am I? And he

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kind of looks at me and laughs. He's like, I'm sorry, bud. You're not going

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to Pakistan this year. We're going to get you scheduled for open heart surgery in

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the next month.

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Welcome to open heart surgery with Boots, a

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podcast for heart patients by me, a heart

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patient. Join me as I take you on a journey through the

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intricacies of the human heart, revealing the

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triumphs and challenges of those who

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undergo the life changing event of heart

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surgery. We're not just exploring medical procedures.

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We're delving into the human experience.

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Be sure you hit subscribe and also

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leave a review. That means the world to

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me, and I read every single one. Also, if you

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have a story to share or want to hear something that I haven't

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covered on this program, you can send me an email, which is

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linked in the show notes. But without further delay, let's

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get to this week's episode. Welcome

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back to another episode of Open Heart Surgery with Boots. I am Boots

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Knighton, your host, and today is such

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a special treat. I feel like I say that

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every week with every heart patient I have the honor of

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interviewing, but this week feels extra special, and I'll tell you

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why. I want to bring you my new friend

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and heart buddy, Billy Haas, who is a

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mountain guide. And he had open heart

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surgery, and he is totally back out in the

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world. Like, climbing new peaks, putting in new

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routes. He's a mountain guide. He is an

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instructor for the American Avalanche Institute, and

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it's like he hasn't missed a beat. And I cannot

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wait to dive in with Billy and get

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to the heart of the matter, pun totally intended,

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to figure out how the heck he is

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thriving despite his heart

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challenge. And he just seems to have risen to the

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challenge and succeeded and has totally

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reached new heights. Also, pun intended, the pun opportunities

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are endless with him. So, Billy, thank you for coming

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to this podcast to share your knowledge,

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your inspiration. I am grateful to you. You are a

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busy dude. You are constantly going new places. So

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thank you for taking the time to sit down with me today and share

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your story. Yeah, thank you, Boots. Good morning. I know this

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has been a little bit of time in the works, but I'm glad I kind

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of found time. And this, yeah, should be really fun. So

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you're out climbing peaks anyway, despite everything you've been

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through. And I talked to so many heart

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patients who have wanted to get back

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to their life, and life is just so

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radically different after heart surgery for all of us.

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I know for myself, I continue to try to get

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back to, you know what I the reason why I moved to the

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tetons for those just finding me. I live in Victor,

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Idaho. Billy lives down in Utah,

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and he also comes up to the tetons to

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guide up here for exim mountain guides. And

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you and I love to play in the mountains. That's why we live here.

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And I continue to struggle to get back to the

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mountains. And so this is a bit of a selfish

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episode for me because I need that

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inspiration. I need that hope that, like, maybe one day I

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can get back to what I used to do. And so I'm just

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so excited to unpack all of that with you today.

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Tell us first, like, set the scene of

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what happened. Just give us your heart

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story as it unfolded.

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Yeah, it was kind of a surprise,

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like, for many, but for me, it started, this is going to sound

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like kind of silly, but this is how it happened. Working as a mountain guide.

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I was up in Alaska guiding Denali,

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and I'm not a big, or wasn't at the time a big coffee drinker.

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Still. I'm not. And, you know, you get stuck in a

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camp, you're there for days, there's a storm.

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And I just kind of sat around with a bunch of guides and

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drank a bunch of coffee. What that did is it gave me a lot of

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basically pvcs or, you know, these kind of

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extra, extra heartbeats. And I thought I was, you know, at one point I look

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at one of the other guys, I'm like, man, I think I'm having a heart

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attack. And they're like, you're probably fine. You probably just drank too much

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coffee. Which ended up being true. But I got back and I had been like,

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kind of complaining about that and stuff. And I've got a little bit of family

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history with heart disease, but we ended up finding out that I

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was more like, it wasn't something that would be genetic. Like, my

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grandpa had rheumatic fever, which damaged his heart and things like that.

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So I kept complaining, kept complaining. Eventually, my wife, who, she works as

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an ICU nurse, she was like, you know what? I'm sick and tired of your

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complaining that you had something happen on Denali. I'm just going to make you a

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cardiologist appointment, and then I don't have to listen to you

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complain anymore. So I kind of go in there to the cardiologist, and I'm like,

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hey. So I had this thing happen. Like, I don't know what it was, but

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I'm telling you, there's something wrong. He's like, do you have any other symptoms? Anything

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else? I'm like, no, not really. I'm just, I'm telling you, it was weird.

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And I almost felt embarrassed being there, almost as I'm

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like, I'm like a healthy 30 at the time I was there. I'm like

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a healthy 30 year old endurance athlete. Like, what the heck am I doing at

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a cardiologist appointment? And sure enough, I thought he was

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actually pretty cool that he did this. He's like, well, you know what? You're here.

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Let's check some things out. Probably nothing. And

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echo, you know, ecgdeh, uh,

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they did a calcium score test,

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and in the, a few days later, in the echo, he calls me up. He's

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like, hey, so you actually have a little bit of right side

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enlargement. Really, really minor, really minor. But generally, when we see

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that, we want to follow up with a CT or, sorry, um,

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MRI. And it was in the MRI that they ended up

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seeing some right to left shunting. And at that point, they

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kind of said to me like, hey, you actually probably do have something. It's got

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nothing to do with a coffee and those skip heartbeats, but you actually do have

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something. It's probably something called a septal defect. Generally, they're

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pretty easy to fix, but we need to get some more

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imaging to see how big and how we're going to fix it.

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So that's when they did a trans esophageal echocardiogram.

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And that was actually kind of a funny story because

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the sedation, because, you know, they give you some lidocaine to

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numb the throat, and then they put you under mild sedation. I was, I felt,

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like, fully awake for it, and I was kind of, like, gagging on the

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probe the entire time. They're like, look, if we sedate you

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anymore, if we sedate you anymore, we're going to put you to sleep, and then

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you're going to be here for a long time. You don't want that. So either

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just kind of take it right now, or this is

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going to be a much bigger thing than you want. So it's like, all right,

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just do it. And I could hear the

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cardiologist kind of, like, explaining some things

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to the resident he was with. And at that point, I'd

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done enough research to kind of understand some things and what they were talking about

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a little bit. And it kind of went from like, okay, okay. Mmm,

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mmm, mmm. You know,

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and it was after the te that they learned that I had a pretty

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large septal defect, but I also had an

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anomalous pulmonary vein, so they call it partially

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anomalous venous return. So one of my pulmonary veins

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that's bringing oxygenated blood back from my lungs

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was kind of going into my superior vena

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cava, essentially just recirculating a quarter of

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my. Of the blood, the oxygenated blood returning from my

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lungs. So it was like they give you all these

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analogies to try and help lay people understand, but it was like, you know,

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the. The septal defect is almost like you have those crack in a straw.

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The straw doesn't suck properly. And then the Venus returned. It's just

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incorrect plumbing. So one of my four tubes was just going

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into the wrong spot, and it was at that point where, you know,

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it takes the sensor out and they go away and they come back.

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And at the time, I had been planning a trip with a

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friend to go on a ski expedition to Pakistan. And I told the

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doctor all about it and stuff. He's like, oh, yeah, you know, we'll probably get

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this figured out for you by then. This is like six months from now. And

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the cardiologist comes back and he goes, looks at me, and I.

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And I say to him before he says anything, I'm like, I'm probably not going

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to Pakistan this year, am I? And he kind of looks at me and laughs.

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He's like, I'm sorry, bud. You're not going to Pakistan this year. We're going to

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get you scheduled for open heart surgery in the next month. Wow.

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Wow. So that was kind of the

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diagnosis. I'm just thinking about you and

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Denali having. I mean, my husband Jason has also

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been on Denali. And, yeah, you do sit there

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for some days. For many days sometimes. And

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I'm just thinking about how that started for you, that is

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so intense. I'm

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just glad that, like, you actually didn't have a heart attack on Denali, because that

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would not have necessarily gone very well. Yeah,

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well, it is something that happens, people, because you do put a lot of

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stress on your heart.

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Cardiac events at high altitude are not uncommon.

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We weren't terribly high. We were at 11,000ft, which

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is particularly for where we're coming from,

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not super high. And it's funny

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because what I was having was just a result of

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me having too much caffeine. And I

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just am really sensitive to caffeine. I still am. So it

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was like totally separate. It wasn't actually anything to do

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with what I had, but it was what led me to go to see a

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doctor. So there's like a subtle joke I have with my

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wife. That coffee saved my life in a way.

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Hey, whatever it takes, because we need you here

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you are dealt this news. Walk us

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through. Like, how did that land? Like, here you had. It

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was such a 180, right? Yeah. And it

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was something that I think, you know, I've had

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orthopedic injuries before, ACL repairs, things like that.

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Like, you know, you get those kind of. That kind of news and it's like,

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okay, this is like what you expect. I'm a skier or stuff like that. You

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know, I have to have this kind of surgery. That kind of surgery. I smashed

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my face once and had to have that fixed, you know, and

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that's something where you're like, okay, this makes sense. This is

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like, I'm like a human machine and we need to fix, like,

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this arm of it or something like that. But with this one, it was

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like a little different. Like, I wasn't thinking about, am I going to be able

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to do this skiing this year or that climbing this year? I was more

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like, did I just lower my life expectancy? Like, you know, like,

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am I going to live like. Like how, you know, am I going to have

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a weak heart for the rest of my life? And so I think it hits

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quite a bit more than some other styles of

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injuries or things like that. I remember coming

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home that afternoon, and maybe it was just the sedative

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wearing off or whatever they had me on, but I was less. Like, I felt

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cold and clammy. I kind of felt nauseous for the whole day. I was like.

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I was. Yeah, I was really upset. And

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I think the good thing was, and I'll probably say this 500

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times, but, you know, my wife Diana, through the whole thing,

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was about as important as anyone in

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one explaining things to me, but also being

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optimistic. And, I mean, that's many partners and

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many friends and, you know, that's kind of their. I don't want to say their

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role, but that's the role they end up assuming. But it's. It is really

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important to have that. Yeah. Oh, yeah.

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And you're lucky because she's, like a medical professional, too, so

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she really better than anyone could. She

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could be your advocate, your educator, like, all the

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things. Exactly. Yeah. Yeah. You were. So then

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you were scheduled within the month at University of

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Utah. Yep. Yep. So it was. Yeah, it was early

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winter when I had that te. And

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I think, yeah, then I was scheduled for. It was a little over a month,

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but it was like, February 1 was when I had my surgery.

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And I remember prior to that, I worked quite a bit

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just to get as much work in before the surgery. But I also skied as

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much as humanly possible. I put in, like, some of my biggest days ever.

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A lot of big solo days. Like, I did have some of these, like,

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vision quest style solo skis.

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And then right the day before my surgery. Oh,

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go ahead. I was just gonna say I want to set the

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scene for our listeners. Cause I have

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listeners all over the country and

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59 other countries. And

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when you have a big day, I want

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people to understand what that means. Cause it's really

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incredible what you do with your machine

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that, you know, is your body tell people, because, like, it's hard for

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people to understand. Like, I know what your big day is. I

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used to have them myself. But, like, brag about yourself. Like, it's

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amazing what you were still able to do despite

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being born differently. Yeah. And it's. It's

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funny because having no symptoms, like, I played a. I played college lacrosse.

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I, you know, fell into this career as a yemenite

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ski athlete and endurance athlete and never had a symptom. And it's

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amazing how your body can compensate throughout all of that. My understanding

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is, with my two problems in combination,

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there's a few common diagnosis points.

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One is at birth. The other is generally in your

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teenage years because. Or as you know, kids

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start to mature because they can't really do activity,

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and they have trouble with activity. And then the other point is that death,

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because it's usually the cause of death. And I think, like, the life expect is,

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like, mid fifties or something. Untreated was what I was told.

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But by the way, it is amazing because, like,

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to know I didn't do anything to help this because I didn't know about

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it, but my body, for whatever it was, was just able to compensate well.

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But that compensation does damage to your heart. And

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that's why I had that right side enlargement. So while I did compensate well, it

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still needed to be fixed. And, I mean, for me, like, you know,

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I go out there and I'm doing some of these big days right before. Right

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before my surgery. And I think one of them was this solo day in the

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Wasatch range here. And I think I skied like, 14 or 15,000

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vertical feet and kind of linked up some technical

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lines in one of our larger alpine zones. And the

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whole time I just had, like, a huge smile on my face. I remember, like,

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every peak, every line I skied, I was just, like, beaming,

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and I was, like, kind of scared about what was going to happen.

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But that was a really good day. Like, I'll never forget that day for the

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rest of my life. And luckily, I can sort of picture where that is,

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and it's beautiful. And I want to tell the listeners, this isn't

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lift service skiing. You were climbing

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the mountain and skiing down. It's called ski mountaineering.

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And it takes an incredible amount of endurance to

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be able to do that. Even with a good heart. I mean, your heart is

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still good. I don't want to imply that it was bad. I'm really

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careful about how I word things. Cause

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words really matter. And I even don't like saying the

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word congenital heart defect because I just like to

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think of it as born differently because I know for me,

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it has an emotional impact when I think of defect

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versus be, just being born differently. But that's my own

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journey. No, and I feel the same. Like, I remember

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I would have these mopey moments where I'm just like, well, I guess I'm just

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not, you know, a normal person. Like, I guess I'm a

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broken person. Yeah, no, I agree with that, though. Like. Cause I had

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those. I had those moments of, like, feeling sorry for myself. And a lot of

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it was just because of that. Yeah, I have a feeling

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we heart patients throw the best pity parties.

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Probably the woe is me,

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but I. And I think it's necessary. I mean, there's. I just

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aired an episode yesterday with a really great

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emergency room nurse up in Canada, and

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it was amazing. She's like, I just want to. She said, I want to give

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you and your listeners permission to grieve.

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And I. I really grieved when I

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was diagnosed in 2020, and I did

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grieve that year. But then I had to get on with things. I had to

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get on with saving my life. And my mom died

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and, you know, like, all these things were happening. Plus it was Covid

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dumpster fire, and I

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think I still have a little more grieving to do. And it just

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comes in waves. So, yeah,

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it's like, be in the pity party and then let it pass.

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So then what? That way, it doesn't get stuck in you and, like. Cause, you

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know, like, emotions can get stuck if we don't allow them to, like,

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express themselves. And then. But then it is time to climb the

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peak and smile and get on with living and be in

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today and what we have, what we've been given today.

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Yeah, that's something I tell myself all the time. Like, it's okay to feel

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like crap right now, so just. That's how it is, you know? And

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I think that's totally fine. Yeah. Okay, so you had a

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kick ass day before surgery. Good for you.

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Bravo. And then it was surgery day, and it was. Yep. And I,

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you know, again, it was kind of nice because having my wife,

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you're not like, an insider in a sense, but you get prepped

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with what's going to happen. All these things. Everything's kind of explained to you, not

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just from a healthcare provider, but by someone you really, really

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trust. And I remember

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they must pump you up on valium or something right before you go into

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the. To the operating room. But I was like. I was riding a high.

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I was like, thumbs up. Let's do this. I remember very adamantly that

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I would not let them pick me up from the bed that they

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wheeled me in on. I think I kind of pissed some people off because of

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this. I was like, I would like to sit onto my own bed, not get,

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like, wheeled in here and then, like, lifted. And

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I was a bad patient sometimes, but, yeah,

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I could go into that a little bit. I definitely was, like, not a good

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standard patient in some ways, but, yeah. And then you

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wake up and you're like. You wake up and. From open heart surgeon, as

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I'm sure you probably remember, boots, like, you're supremely messed up.

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There's tubes coming out of you left and right,

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you know, like, you're really messed up. And

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I remember being incredibly nauseous, and I was

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so scared that if I threw up, I would, like, ruin something.

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Like, I would, like, throw up on my wound or I'd, like, break my

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chest open or something, even though that somewhat irrational and just

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being so nauseous and so nauseous like, I don't

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remember the pain. I remember the nausea and just trying to, like, fight

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that off. I ended up spending seven days in

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the hospital. I had a small

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complication. I mean, realistically small complication. One of my lungs collapsed

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post surgery. Just meant I got another tube and.

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But, yeah, I was, you know, after seven days, discharged from the University

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of Utah, and surgery seemingly went well. And those

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were really crappy seven days, though, I will say that. Yeah.

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What was. What was crappy about it? I mean, yeah, you had the collapse lung.

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That doesn't help the nausea. Oh, my God. Like, I threw

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up 25 times after my open heart surgery.

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Yeah. Like, I broke record.

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Yeah. And so for listeners who haven't heard my story,

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I had my surgery right down the street at Intermountain hospital

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down in Utah. And, yeah, at the time, the ICU nurses told

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me I broke the record for a number of times. Vomited in, like, a

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24 hours period. Yeah, don't

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recommend that. So she rubbed

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me for good luck. See, these are the kind of stories my wife.

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My wife comes home with. So I like to

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expect. I'm sure people were talking about me,

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certain. But, yeah,

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that's. So seven days. I mean, I got out

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lightning quick despite my time with the puke

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bucket. But how old were you when you had your

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surgery? I was 30. Yeah. Okay,

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so I was 30 years old. And, you know when you're in there,

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and here's the thing they say to you, and to be totally honest, when you're

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in there, they're like, oh, we don't get patients like you all the time. Like,

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oh, what are you doing here? You know? Or like, stuff like that. That doesn't

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make you feel better. It's like, okay, well, yeah, what am I doing

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here? Yeah, my surgeon said he only operates on fat

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people, and so he didn't know what to do with me. Yeah,

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yeah, no, I. That's, you know, and I was pretty mobile on my own, and

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I think that was something that they were like, oh, here, let me help. I

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was like, no, like, don't touch me. Like, I'm going to get myself up right

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now. And like I said, I was a bad patient. Like, a

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few things, they make you walk, right? You know, and they make you stand up

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and do these, like, short walks once or twice a day. And

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I was. I was pretty depressed, like, not that I couldn't walk, I just didn't

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want to walk. And I was just laying in the bed, basically, just staring at

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the ceiling tiles. And I didn't watch tv once.

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Like, I thought I was going to, like, read a book or, like, listen to

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music. I didn't do any of that. I sat every single day staring

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at a wall or staring at the ceiling. Sometimes I'd have them, like,

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sit the chair, because they had a chair in the room, and they'd face me,

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like, out towards the mountains, and I could, like, see the

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helipad and, like, just, like, watch the helicopters come in and go out.

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And that's all I did. I didn't even, like, look on my phone much.

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And, yeah, they'd have you walk, and they'd be like, oh, don't you want to

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walk? Like you're, you know, a mountain person? You love walking, all this stuff, yada,

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yada. I'm like, I don't want to walk, you know? And they're like, well, you

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have to. I'm like, but, yeah. And that was where I think having my wife

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really helped, because I'd be like, I'm not going to walk until my wife gets

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here and she can walk with me. And they'd be like, well,

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you know, we usually don't let family members do this. We usually. And

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the charge nurse there and my nurse kind of knew my wife, and I was

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like, just go talk to the charge nurse. Just. And, you know, and then the

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physical therapist would come back and be like, okay, okay. Yeah, well, when your wife

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gets here, she can help bathe you or help this or that

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or stuff. And so that was

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nice because I can see if you don't have someone who

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works in the healthcare system who's maybe even friends with some of the people there,

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it's like you have strangers doing all this to you. And that was something that

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was frustrating to me. Like, all I wanted was to have my

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wife there helping me do these things. And the nurse that primarily took

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care of me, he was on for. Luckily, I got him for a full round

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of shifts for three days because I was in the Cvicu for

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two days, and then I was in the floor unit,

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the cardiac floor unit for five days, and he was with me

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when I got to the floor. And that was great. He was super

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nice, kind of friend of a friend, things like that. Like, knew

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Diana, so that was, that was really helpful. And

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I think having gone through that, like, I have a lot of empathy and

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for people who don't have that. And, like, if I was in there on their

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own, even if I had family come and visit, oh, hey, you know, like, that's

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fine, but really having someone walk you through stuff and help

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you with things that. That made a huge difference, or at least seemingly made a

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huge difference for me. She's your. And Diana's your person, you know? I

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get it. Like, it's. Yeah, it's. It's such a

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hard, scary moment in life, and we need

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our security blankets, which are our partners or close

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friends or family members. Yeah. And you're right. Not everyone

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has that. That gift of

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having a person. And that's one of the reasons for

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this podcast. It's like, I want to. This episode and all the

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other episodes, it's like, I want it to feel like a hug for

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those who don't have someone close

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to them. Like, we heart patients don't have to do life

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alone, and it's even better if we do have a

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partner. Totally. Not that any of the other care providers at the University

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of Utah were bad. It's just. It's really nice when you have someone who you

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know well to help you with some stuff. Like,

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the example is at one point, they're like, okay, we're gonna. We're gonna give you,

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like, a sponge bath and kind of clean you here. And

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very nice young medical assistant. And I just looked at how I was like,

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hey, man, can we just wait till my wife gets here and she can do

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it? And he's like, again, well, we usually don't let family members, you know, yada,

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yada. And I was like, just go talk to Mike. He was my nurse. I

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was like, just go talk to Mike. He comes back in, like, a minute later.

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He's like, oh, okay. Yeah, yeah, I know when your wife gets here, she can

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help you. And I'm just like, that kind of stuff was helpful.

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Yeah, yeah. Well, I mean, with heart

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surgery, I can't speak to other surgeries, but, I mean, it's

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such a vulnerable act of

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going through heart surgery. And, I mean, our hearts have

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actually been touched by other humans, and that in and

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of itself is so much to process and then to continue to be

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poked and prodded with all the tubes for the next however

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many days. And, I mean, it is all

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dignity goes out the window. And so it's like, whatever

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dignity we can hold onto is so

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important and necessary for our self

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respect. I mean, I remember I got so violently ill a

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couple of times, and I was so embarrassed to ask for

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help, and I just wanted Jason, my husband, to help because

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I was like, I'm so embarrassed. Like, it was so. I

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was so sick, and it is such a vulnerable

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few days in the hospital. And even though these people do it as a living

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and they want to help and they signed up to help, it is still so

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weird to have. Yeah. A stranger you don't know at three in the

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morning coming in to clean you up. It is. It is

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tough and I just want to normalize

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that for listeners. And I'm sure there are people right now listening to this

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going, yep. It is as part of heart

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surgery that we aren't prepared for ahead of time.

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And I hadn't, I'd had things happen in my life, like orthopedic injuries, other

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things like that, where I'd been in the hospital, things like that. But this is

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on a whole other level in it. And it is, it's, it is a

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little demoralizing, but you get through it and that's the nice thing.

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Yep. And so let's talk about that. So, okay, sure. You

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were in the hospital for seven days. None of us are going to judge you

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that you weren't a great patient. I have a feeling you weren't nearly as bad

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as you're making yourself sound.

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You're thriving. Walk us through your recovery

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and how you got back

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to climbing 8000 meters peaks. Well, I did have

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a hiccup and I'll get there in a second because it wasn't all like smooth

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sailing. I had a pretty major hiccup. But

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one of the things that's interesting with heart surgery is, again, I'm used

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to other styles of injury on my friend. It's like you get hurt,

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you get a surgery, you do rehab. For me, I was like, well, what

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do I do now? You know, like they, they have you on the sternal precautions

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and they're like, right now you just, you chill. And then after

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like two. And I, when I walked like that year to that

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February 2019 was one of the biggest February's of snowfall on record in

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the wasatch. So that was also a little hard.

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And, yeah, my house here is kind of like

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a road stop for a lot of my friends going up and down the Cottonwood

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canyons to go skiing. So I have my friends over all the time. They're all

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like, dude, it was the best day ever. You know, like I, and, uh, which

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I was psyched on and I was, I was genuinely psyched on that. And that's

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another thing I'll, I'll get to in a second of kind of how I've changed.

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But, but, yeah, I walked a lot. I walked around the neighborhood and it was

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funny because I walk around these blocks and there's all this snow on the ground,

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and usually I'm a professional mountain guide, and there's, like, a patch

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of ice on a sidewalk, and I'm like, whoo. Got to be careful. Like, let's

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get around this carefully. You know, like, I could, it was kind of

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funny how my mindset shifted there, but, yeah, they didn't have me on any kind

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of, I mean, they're like, yeah, this is a standard cardiac rehab, but, like, you

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don't, this is going to seem silly for you. So I walked. I walked a

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lot. Like, I got obsessive with my walking. And then as I

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was able to walk more and more and they lowered my sternal precautions, I started

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to go to the climbing gym where I'd walk on an inclined

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treadmill. I still wasn't allowed to, like, hold on to the

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treadmill because of the sternal precautions, but I put the

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incline treadmill as steep as it would go, and I would walk

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for hours, literally hours. I'd be there for, like, five, 6

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hours just walking. I mean, I had jokes like, I ain't got nothing else

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going on. I might as well just do this. And you can only walk, like,

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you know, 1 mile an hour. I did 10,000 foot vertical days on the

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treadmill. You know, like, that's pretty messed up, uh, in

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terms of the monotony of just, like, that's what I did.

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And honestly, until they took me off the sternal precautions, that is what I did.

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I walked like a crazy person, and I walked on that incline

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treadmill. That thing became, like, my best friend. Like, I would bring, like,

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sandwiches and food onto the, like, no one does that, you know, no

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one, like, is on a treadmill, like, eating a sandwich.

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People would, like, look at me weird, and I think one of the problems with

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heart surgery is you put a shirt on and you don't look like you

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just had an accident or something. You know, you don't look like you just

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had a surgery, so you look relatively normal. And there's, at the climbing gym,

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there's even these big, heavy doors that, like, I couldn't open,

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particularly when, when I was on the sternal precautions. And I'd have to sometimes

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wait outside the climbing gym for someone to open the door for me. So then

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I could, like, scoot in and then, like, the common courtesy would be to hold

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the door for the next person. I'd be like, hey, sorry, I can't. Gotta go.

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You know, like, kind of look like a, a jerk not holding the dog for

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someone, but, yeah, you don't have, like, a shirt on that says, like, on

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sternal precautions, you know, watch out. But that's, honestly, that's what I

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did. I walked as much as I could, and I walked on that incline

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treadmill at, like, one, one and a half miles an hour, uphill all

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day. That's, like, what that, like, was the only thing at that point in time

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that was making me happy. So were you. Would you say you were battling

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depression? Oh, definitely. I've been pretty fortunate with my mental

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health through most of my life. And other than that period,

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I mean, that was, like, by far the only time that I can say I

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felt, like, truly depressed. And, like, again,

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I had all these plans. I'm like, during my recovery, I'm gonna, like, do this

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writing. I'm gonna do that writing. I'm gonna help with this project. I'm in that

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pride. I did nothing. Like, I did absolutely nothing.

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Honestly, the biggest thing I did at one point, I think because my

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parents came and visited for a bit, and, like, my mom got me, like, a

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Lego set. I made a little Statue of Liberty out of

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Legos. That's what the Lego set was. That's the only thing I did,

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because I just couldn't focus on anything.

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But I have a lot of great friends, and I've got good family, and this

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is my wife. Like, my friends coming over and hearing about their ski day and

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things like that, that actually was. That was awesome, you know, and that really

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helps. And even the texts, the cards, things like that,

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I used to probably would have been like that. Whatever, don't worry about it. But

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that stuff actually does make a difference. It does. And it makes you

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feel better, and I feel bad because a lot of them, you know, I didn't

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even respond to. I was kind of so not out of it,

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but I was so, like, disconnected that, like, I. I feel bad now

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that I didn't respond to half of them, you know, or I responded to a

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lot of them, like, a month later. And, yeah,

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I wasn't prepared for that because, again, I'd been prepped on. Okay, you'll feel a

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little post surgery depression. That's pretty common, things like that. But

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I wasn't prepared for that level of it. It's real,

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and I think it's something that's maybe was the part of

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my treatment or recovery that I felt like I was least supported in or

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at least prepped for. Yeah. And a lot of

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heart patients would nod. There had some agreement with you

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and me included. It's. I was warned about it, but I

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wasn't warned about how intense it would be and how dark

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it would get. Yeah. Yeah. And I think.

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I don't know what it would have done if I was. If I had known

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to the extent. But it was definitely. That's something that I'll.

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Yeah. Never forget from that experience as well.

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How long did that last for you? Honestly, this is gonna

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sound really cliche, but probably till I could start skiing again. And I.

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And I remember. So February 1,

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March. So around April 1, I know this

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sounds crazy, but April 1, they said, hey, you could start doing some light activity.

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Some three months post surgery, they said, some light activity. And

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me being the dummy that I am, I was like, okay, well, light

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activity to me is light different than light activity to that person. Yeah. But I.

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So I started skiing April 1, and at this point, I felt

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pretty good. Like, you know, my walking, I think, actually helped. Like, I think it

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really helped. And I felt pretty good. And I remember ski touring up to some

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of these runs right above the town of Alta called the Emma's. And I did

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some Emma laps, and, you know, it was great. And had some friends there. My

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wife. And then the next day, I decided to go ski off Mount

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Superior, which is an even bigger peak above town, and. But we skied off

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superior, went back up, did another lap, and then skied this semi

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technical line called the heart of darkness, and then

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went up and skied this other semi technical line called the rampage.

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And I was with my friend Colby, and I just remember the whole time, my

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friend Colby's just like, you better just not. Something better not happen, or else I'm

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going to get in trouble here. Like, you sure this is okay? The whole time?

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You sure this is okay? I'm not taking the heat for this if something happens.

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And. But realistically, at that point, I just started skiing as

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much as I could, and I actually. I felt pretty good. Like, yeah, my. My

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chest kind of creaked and ached and stuff, but I felt

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pretty good. And as my doctor and my surgeon

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had said, like, just kind of let pain and stuff be your guide. And, you

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know, he said, everything's healed. Well, like, we like what we see. But because

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I would be like, hey, I just did this. Is that okay? They'd be like,

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okay. I think they didn't really understand what it was when I tell them, oh,

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I skied this run or that run, but they seemed okay with it to

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the point where I felt good enough that my friend Adam

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and Noah and our friend Ben asked me to go to

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Alaska in May. And I was like,

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yeah, I mean, I don't see why I can't. And we were going to. We

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kind of started planning a trip to Alaska that may to the point where

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mid May, I don't have the exact date, but by mid May, I

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skied a run called the Archangel ridge on Mount Forker in like a

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big alpine push with, with those guys. And we put

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in a first descent on a peak called Weske Hilton, a peak. And the trip

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kind of culminated in us all skiing the Mesmer cooler on Denali. And, you

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know, I'm like four and a half months or whatever, four and a half

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months post surgery at that point, which is amazing. Like, to

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me, that's still amazing. Almost like it didn't happen to me. Almost

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like it was someone else that that happened to or did that.

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And I didn't. Again, like, I didn't do any crazy rehab other

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than just I walked a lot. And when I could start doing activity

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again, I did do some weight training, as you know, to kind

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of help get myself back into shape a bit and get some

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more power and stuff. But the endurance, I never felt as if I really lost.

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And I don't know if that would have been different if I didn't do the

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walking. But from the endurance standpoint, I actually felt

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pretty good. It was more strength and power that I lost during the

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surgery, not as much endurance. And it'd be

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interesting to have more of like a technical conversation with a

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cardiologist or a trainer, you know, maybe both, and stuff

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like that. But, but that was my experience there. But the, here's the

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hitch. On that trip, I started to notice something that became

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pretty significant over the next year was on that trip,

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I noticed I had a lot of JVD. Like my jugular vein was

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kind of constantly swollen. And I felt like I had this tightness in my

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neck. And I get back from the trip and I go

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to my cardiologist, I said, hey, this thing, I'm getting like, this tightness

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in my neck. And they said, oh, that's probably just your, you know,

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your muscles figuring everything out from, you know, we did slice

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your, crack your rib, you know, your rib cage apart and spread it.

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And so it's probably just something like that. After that trip

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that brought me into my summer guiding season at examined. And what I'd start to

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notice through that summer was not only did I have this JVD,

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I start to feel tingliness in my hands, and I would feel

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lightheadedness if I bent over things like that that

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progressed into the fall, it just kept getting worse and worse and worse. The point

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where I'd be, like, I'd be rock climbing, and I'd have to, like, find these

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weird positions to stop so I could, like, let the tingliness go away and. And

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stuff. And somewhat long story short, they ended up finding I had this

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thing called SVC syndrome, which a

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result of my initial surgery. The scarring in my superior vena

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cava caused clotting. Kind of get that

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turbulent flow and caused clotting. And my

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superior vena cava was essentially almost fully occluded, like, it was

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almost fully blocked. And what that does is that

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prevents the proper return, blood return, from everything,

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from your head, neck, shoulders, and arms. And the layman's

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analogy they like to give you on this one is the highway analogy, where

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imagine you have a six lane highway, and that highway is now closed, and

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you have to deviate around on side streets. And

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fortunately, yeah, fortunately, you have

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these collateral veins that can bypass the SVC, and

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you have your azygos vein, which can bypass the SVC. So you still have return.

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It's just poor. It got to the point where my face started

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swelling up so bad that I was, like, almost

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unrecognizable. Like, my face was swollen. It looked like the

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rest of my body looked normal, and then it looked like I had gained, like,

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100 pounds. And this was actually a much more

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complicated thing to deal with. I saw thrombosis

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and kind of surgical teams at the University of Utah

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intermountain Healthcare. I consulted with physicians back

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east in New York, and a lot of them were like, hey, this is kind

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of a weird thing. The more common way people get SVC

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syndrome is from a chest tumor pushing up against their superior

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vena cava and causing that clotting. And a lot of the solutions

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and the stenting procedures for that are often just palliative, because

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those people with the chest tumors, it's probably so bad at that point that they

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only have so long to live anyways. So it was kind of a weird

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thing. And it wasn't until I was kind of

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recommended to a interventional cardiologist at

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the primary children's Hospital, a pediatric

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interventionalist. Her name is doctor Martin. She's great. Like,

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she was probably the best healthcare provider I had the

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entire time. And she said, I've done this stenting

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procedure for people with your

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condition and have. Who have had the same style of

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surgery. The first surgery I had was called a warden procedure, and she

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said, the only difference is, I think the oldest person I've done it on is

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15 or something. You're 30. Or at this point, I was probably

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31. And just to give you an idea, though, the timeline here is,

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I started to realize that stuff in May of

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2019. I didn't get it fixed until

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May of 2020. So it was

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almost a whole year of me trying to figure that out. And

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that was also the height of COVID Uh, so for

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that, I. I was able to just have a catheter procedure and

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the stenting just all done through a cath procedure, which was awesome.

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But that was an interesting experience, having to do that and go through all

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that during COVID which I'm sure you're a little familiar with. Like, it was not

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as easy, and there was a lot more unknowns. Like, she. She was very honest

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with me. She's like, we don't know if we'll be able to get in and

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fix this with the cath. If that doesn't work, we may have to do another

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open heart surgery, or we may just have to figure something else

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out. But luckily, she, uh. She did

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great. We got in there. We got it done. And, um,

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I now have a few different stents in my spiramina cava, but

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I'm, like, back to normal at this point. From then on, I haven't had any

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other issues since that. Since 2020. That feels more

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intense to me than the open heart surgery. That's a lot.

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Yeah, it was. It was definitely more. It was more anxiety, because while the

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procedure, in the end, was more simple, I was on blood thinners at that point.

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I was on eliquis, and, you know, and again, maybe don't tell them, but I

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kept skiing, and I just wore a helmet. That was my. That was my

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mitigating factor there. I just wore a helmet. And,

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I mean, but I had. I had people saying, like, hey, we, this. You know,

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you might have to kind of stop guiding, like. And they'd ask you these quality.

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They'd be like, well, what if I. I mean, are you okay with the situation

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as it is? I'm like, no, no. They're like, oh, okay, so

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you want us to do something? I'm like, yeah. Like, I can't live like

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this. And that was when I found out you really have

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to advocate for yourself, and you really have to let them know who you are

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and what your life is, because sometimes, you know, their care plans

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are often determined by quality of life outcomes,

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and quality of life for everyone's kind of different, and that's okay. And I

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really had to push for a solution for that that was going to allow me

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to get back to the quality of life that I

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knew and wanted. Now, that said, I was also. There was a part of me

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that was preparing for a different quality of life. Like, I had

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enough physicians tell me, like, hey, this. Even if we do get in there,

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like, you might not be able to, like, be back to where you were because

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you might not have the same returning blood flow and things like that.

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Yeah, I started, like, I started looking at jobs, I started to think

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about different careers. I started to, like, think about different hobbies

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and stuff, and, like, those things started happening for me. And

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luckily, we didn't have to go to plan b. We stuck with plan a.

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But, yeah, that was 100% happening in my mind.

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You were coping ahead, which is a skill that we

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heart patients have to do. Yeah, we have to cope ahead for

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all the possibilities. It's a way to prep your nervous

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system, which, I mean, I've. Do you have

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a therapist? You know, I've never seen

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a counselor. Like I said, I've been pretty fortunate with my mental health,

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but I would not hesitate in a heartbeat,

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pun intended, to do that. I've had many friends have good success with

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it. Yeah, it's something I talk a lot about on this

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podcast, and, I mean, it's

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obviously such a personal choice. And the

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grief road that we all have to travel when we're

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diagnosed with heart conditions is so personal.

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And a lot of what we bring in, like, life

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experience prior to the diagnosis

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day really does impact how you process

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that moment and time. And I. But when you're throwing

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curveballs like this, it's hitting me differently.

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And, you know, where just because I'm your fellow heart

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buddy, you had this open heart surgery. You got on with living your

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life. Heck, he went and skied the messner. Like,

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that's amazing. And then to be thrown this

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curveball when you think that, you know, you've got everything in the

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rear view mirror, and this curveball is really

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consequential. I don't want to belittle that in any way. And I just.

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It is such a 90 degree term. Are you on

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medications now for it? The only thing I'm still taking

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is baby aspirin once a day. And I've even spoke

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because now I'm seeing this congenital team, a really, really good

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team of providers at the University of Utah. We've spoken about whether I actually

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need to be on that or not. I think there's a pretty small

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cost benefit either way. So just out of habit, I

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just take my 1 or 81

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milligrams of aspirin every day, and that's it. My understanding with what

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I've got going on, the long term kind of outcomes

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are pretty good. I think I was pretty fortunate to. What I've

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had was they had good solutions. And really, one of

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the biggest things is maybe some weird heart arrhythmias,

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and they're not super serious heart arrhythmias is my understanding.

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It's just because of the tissue densities and stuff around the sinus node

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were changed from my initial surgery. So my biggest follow ups are more

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checking my rhythms and stuff, and I'll have to wear monitors.

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It's like every two years, I'll do a two week monitor and things like that.

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So pretty easy road in the

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future, hopefully. Okay. And then do you have, like,

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imaging every year? No, not every year.

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Every. At this point now it's going to be every few

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years. I think they want to check both the heart and the stent, but,

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yeah, it's because I think a standard echo wouldn't really look at the

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stent as much, but I think it's always going to be in my order now

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to check both. But it's mostly just an echo, is my understanding. Maybe every other

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year. Okay. Wow. I'm grateful you're here.

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Before we wrap up, what has given you the

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confidence to return to activity in the mountains,

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despite, I mean, yes, you. You walked us through walking on the

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treadmill. I'm hearing a healthy dose

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of determination and

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maybe a little bit of hard headedness that we all need to

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play in the mountains. It

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does serve us well at times. But what ultimately

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gave you the full confidence that you could get into the back into the

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mountains and not worry about dropping dead? Yeah.

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Yeah, right. You know, I've thought about this actually quite a bit. For me,

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I think a lot of it was, like, really understanding what I

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had and what happened to me, you

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know, what. What the surgeries involved entailed, you know,

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and this isn't like the COVID style. Like, yeah, I did my own research

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on the Internet, you know, I tried to speak with as

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many, particularly cardiac health

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professionals or cardiac specific health professionals, and really understanding

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what I had done to me, what could be the

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potential issues there and what to look out

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for. And the more I understood about what I had,

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and as one cardiologist said to me, hes like, youve got a pretty serious

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problem with a pretty good fix. So I got lucky. I think in that

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sense that the style of procedure that was done to me and, you

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know, a lot of it's how they manipulate the heart structurally

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and stuff. Some things are better than others, right? Because the heart's a

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small machine that has different parts and things. And so I

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think really understanding what my condition entailed,

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what my fix was and what that meant

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gave me confidence and I think a good example and just educating

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myself as much as possible on this, you know, and I already did things right.

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Like, I'm not a smoker, you know, I'm, I'm, I

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drink alcohol at a pretty moderate level. I'm

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active and I think, you know, I eat a good diet. Like, I didn't need

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to change anything from a diet standpoint. Like, I already was kind of there, which

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I definitely would have. Side story, my dad had sextuple

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bypass surgery, um, two or three years ago. And he's like

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totally changed every, you know, his, it's like mediterranean diet

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is the Bible basically to him now. That's what we call it. We call his

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mediterranean diet book the Bible. But that's a whole other story.

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I'm not going to go there. So I think for me, yeah. Really understanding what

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I had done, what I could look for and things like that. And I think

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the good example here is I just got back from

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finally I made it to Pakistan and we

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skied. Me and my two friends, Adam and Brendan skied

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gasherbrum one and gasterbrum two. Two 8000 meters peaks

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and going to gastroom one. We did gastroom two

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first and in between. And I, you know, for the first time

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in a while, put a heart monitor back on. I did that. I wore a

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heart monitor quite a bit after my surgery. And then a few years go by,

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I kind of stopped wearing them and stuff and. But I put one back on

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for this trip and was kind of monitoring my vitals and things and really

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paying attention again because we were going to be stressing our bodies and

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ways we hadn't before at those altitudes. And

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when you're climbing these peaks, particularly without oxygen, like we were doing, like, you're

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putting a lot of stress. Like, you're not getting muscle fatigue, but you're getting

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like system fatigue more. And in

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between the two peaks, I noticed I was getting some of those pvcs, like

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they were coming back and I'd feel these quick shortnesses of breath.

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And I remember texting my wife and texting some friends in the knowledge and

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they said no, like, that's probably okay. That's not what you'd

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be more or less. Long story, like, on that. That's just even if I had

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had my heart stuff or not, I'd probably be getting those pvcs anyways, because they're

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often associated with fatigue, lack of rest, potentially

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dehydration, things like that, which I probably was. And really

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understanding that kind of stuff helped me have the confidence to then say, hey, I

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can go do the next peak. We did the gaserobon one about a week later.

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I'm okay to do this. You know, this is just probably

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things that were happening from other issues rather than my

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heart issues. So I wasn't like, I'm going to drop dead on this climb now.

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And that would be one of my biggest pieces of advice to people, is

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it may seem annoying, but, like, educate yourself as much as you

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can, because I think particularly if you want to return to high level activity,

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that's going to help give you the confidence. And. And that definitely helped

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me, amongst other things. Helped me. I mean, like, I can't say enough about how

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much my wife helped and friends and family and stuff, but I. I would say

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that's the one kind of specific thing that helped me. Knowledge is power.

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That's a cliche for a reason. There's a lot of

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research about facing

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head on any medical issue. There's even an app. So

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I broke my leg nine months ago. Now, at the time of

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this recording with you, and I have been using

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an app that is called recognize, and

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it actually has me flashing

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either the right leg or the left leg. And I have to

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choose the discrimination between right and left. How this came

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about was researchers did. They looked into

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people with back pain and those who would not

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look at their backs after open back surgery, like an actual back

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surgery. Those who didn't look at them almost said open heart. But, yeah.

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Anyway, those who would not look at their backs

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actually had persistent, lifelong pain. Those

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who did look at their backs and, like, face the

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surgery, looked at it in the mirror, their back pain went away.

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So if we choose to face any

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situation head on and not be afraid

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and learn about it, what it actually does is it regulates the

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nervous system, which turns down the pain response. So

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that makes sense. Yeah. And I think I remember reading it. It was like.

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They called it, like, acute cardiac awareness. Like, after heart surgery,

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you're more, like, in tune, and sometimes maybe a little bit of

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in a hypochondriac style way, like, in tune with what's going on in your heart.

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But I don't think that's a bad thing? I think after this,

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like whole experience for me, I'm much more in tune with

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everything going on in my body and I not to like an

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obsessive way, I think in a healthy way, you know, and I really pay attention

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to myself a little bit more when I need rest, when I need sleep, you

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know, when I can kind of push harder, things like that. Like I've become a

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better athlete through this, I think, because I'm much more

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aware of my body and my biometrics and stuff like that.

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And I think that's true for us mountain folks anyway, because

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a way to stay alive, especially you, who's doing these

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really consequential climbs and, you know,

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8000 meters peaks. For those listening who

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don't understand, I mean, you were, you were really

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high up in altitude and you do have to have a different level

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of awareness of your body because it's not an

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easy rescue. It's not like you can just run back to the trailhead and

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drive home. Yeah, no, you definitely can't. So

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you have to have an level of awareness. Yeah, I could

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have just, you know, winged it, but I'm glad I didn't. So,

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Billy, we could talk for hours about this

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is, before we close, is there any

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lingering nuggets of wisdom you want to impart

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on those who are going to come after you and I with heart

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surgery? What is like the nagging piece of advice

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you just want everyone to know to be able to thrive

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post open heart surgery? I guess the first thing is

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every, you know, if you have a sternotomy and

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you have open heart surgery, like there, there's lots of different issues

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and, you know, I'm a good success story in that

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I was able to basically return to my activity at

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the same capacity. And I understand that that's not going to be the

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same for everyone, you know, like these structural issues

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that we have with our hearts, like, they're all different and they all have different

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fixes and solutions and outcomes and stuff and. But

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for me, probably the biggest thing was, I don't want to say I

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had this nice reinvention of myself, but there are

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upsides. Like, I am definitely a different person

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in some ways, you know, and I'm still, you know, kind of, I don't

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want to say intense, but I'm still very focused and dedicated to the things that

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I do. But I definitely, in a good way, see things

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differently, you know, like, it's okay for me now to have to

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be at home dealing with something else while my friends are having a good powder

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day. Like, I used to not do well with that. Like, if I was missing

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out fomo, right? Like, that used to be hard for me, you know, if I

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had a trip that didn't go well, I'd be all bummed, like, ah, it didn't

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go well. Like, I'm definitely okay with

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success and failure more. And I'm much

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happier when I see friends or others doing things

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that are really, really cool. Like, I'm happy for them where maybe back in the

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day, when I was younger, in my twenties, I would have been like, damn, I

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didn't do that whatever and stuff. So call

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it this cathartic experience if you want. And I think focusing

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on things like that is important. And,

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yeah, that's definitely something that I thought quite a bit about. And like I said

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when I had that instance of, oh, you may not be doing this again, like,

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I'm okay now. If something happens to me, say I have a really bad knee

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injury and I can't return to skiing the way that I used to, like,

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I know what I'm going to do. Like, I've got this kind of plan b

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in the back of my head, and I'm okay with that. And I've, like, come

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to peace with it. And, yeah, I guess generally just I'm a little bit more

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relaxed. This sounds, like really

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down, like an emotional rabbit hole. But I listen to a lot of

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music, you know, when I'm on trips and stuff. And I Warren Zevon, someone who

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I really like, and there's a really good Saturday Night Live or not Saturday Night

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Live Letterman interview with him. And he at the

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time, had been diagnosed with cancer and had only so many months to live.

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And he kind of knew that during this interview. And he has this, like,

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line that I think became somewhat well known that says, you know, enjoy

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every sandwich is something like that. And that I

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felt that, like, you know, it was kind of like every trip, every moment. Like,

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you know, this is cool. Where for me it used to be

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I'm very objective oriented, goal based. Like, I need to accomplish this and then move

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on to the next thing. So the advice there, I guess, would be,

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you know, embrace, like, changing yourself through these, because

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oftentimes that change can be. Can be pretty positive and

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just kind of see where it will take you. Because, like, I look at my

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dad's experience, and he's a different person than he was prior. And. And, you know,

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my dad's always been a great person, but I'd say he's a healthier, better person

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than he was prior. So just focus on the things

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that you can control and then, you know, let everything else

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just do its. Do its thing. So that's a great place to

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stop. Enjoy every sandwich. I love it.

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Yeah. I'm grateful for you, Billy. It's a good Warren Zevon quote.

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Yeah. Thank you. Thank you

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so much for this. I'm

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better for it. I needed this today and I

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am just continuously amazed at the power of the

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human spirit to overcome the biggest of

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challenges. And you are. You

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exemplify that today. So where can listeners find

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you? I have a pretty modest Instagram account

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so that I unfortunately don't put enough stuff on,

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but that's one place. And then I'm. I work with a

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website called the high route.com dot. When you type it in, you got to do

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the hi route.com.

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but soon I should have an article on that

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and it's going to come out in print as well. That goes in a little

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more depth to my experience with my heart

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surgery and my return to skiing, as well as other articles. I do a lot

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of stuff on that, just beyond just trip reports and things. That's kind of my

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biggest platform. It's cool. And if you like skiing,

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it's a good thing to take a look at. Great. And I'll have all

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that in the show notes too, so it'll be easily clickable. But

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Billy, thank you so much for your generosity with your time today.

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And I know listeners are going to love this. And for

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those who are wanting to follow along,

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sure that you have subscribed to this podcast and

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there are a couple of things that are so helpful to someone like me

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who is an independent podcaster, believe it or not. Reviews

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on Apple, Spotify, wherever you get your

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podcasts really do matter, as well as

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following the podcast. And I have a

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Patreon community I'm just now launching in 2024,

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September of 2024, and it's going to have

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two options for Zoom meetups every

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month. I am hoping to accommodate those

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globally. So there will be one in the morning and one in the evening,

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mountain standard time to catch some of my european

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listeners. I would love it if you'd consider becoming a

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member of Patreon. You can find me at Patreon.

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It's a way to keep this podcast going and I

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so appreciate you coming back every week to listen. Be sure to

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come back next week for another episode of open Heart surgery with boots.