We're joined by three exceptional women Jen Vesbit,
Speaker:Maya Grobel and Gina Davis. Each carries a
Speaker:unique story, tales of decisions made around leftover
Speaker:embryos and the contemplation of using donor
Speaker:embryos. Their candid revelations promise to inspire,
Speaker:inform and perhaps even challenge your own
Speaker:perceptions. And before we dive in, a quick note for our
Speaker:listeners. Do visit the Fempower Health website, where you can
Speaker:find content tailored to your interests or life stage.
Speaker:And if this episode resonates with you or sheds light on areas
Speaker:you've always wondered about, please take a moment to leave us a review.
Speaker:Your feedback helps spread the word and ensures our content reaches
Speaker:those who need it most. And if you find value in our discussions, don't
Speaker:forget to share it with friends and loved ones. So now let's set
Speaker:sail on this introspective journey, exploring the intricacies of the
Speaker:decisions that shape lives.
Speaker:Thank you all so much for joining the
Speaker:FemPower Health podcast. We are here to discuss
Speaker:a difficult but really important topic, and
Speaker:that is embryos. And I'm so honored that all of
Speaker:you can join. And I definitely want you to do the round of
Speaker:introductions where you also share your personal story. But
Speaker:what's exciting is this is the first time I've had four people
Speaker:on. I think the most I've had is three total
Speaker:people. And so I'm really excited that there's going to be four of us
Speaker:here to connect. And I'm just
Speaker:really excited for everything you all have to share because
Speaker:embryo donation, whether you have leftover embryos, what to do with
Speaker:them, you want to donate or you need donated embryos,
Speaker:it's all tough. None of it is perfect. And so that's what we're here to
Speaker:talk about today. All right, so why don't we go around
Speaker:and what I would love to start with is tell us who you
Speaker:are, your background, and whatever you're comfortable sharing about
Speaker:what brought you here today. So, Maya, why don't
Speaker:we start with you? Okay.
Speaker:Thank you for having us.
Speaker:I am. I'm Maya. I'm a licensed clinical social worker
Speaker:and psychotherapist in the field of reproductive medicine. And
Speaker:I had a four plus year
Speaker:fertility journey that ended with
Speaker:the birth of my now eight year old daughter who was
Speaker:conceived through embryo donation. And embryo
Speaker:donation wasn't exactly the path
Speaker:I intended to build a family with, but that's where I landed,
Speaker:and it taught me a lot of different things in the process.
Speaker:My husband and I also made a film called One More Shot
Speaker:that came out on Netflix, and it documented our journey to parenthood.
Speaker:And after that film came out, because it was in all English
Speaker:speaking countries, we got emails from people
Speaker:who were offering us their embryos. And it was the
Speaker:first time I even conceptualized this as an option.
Speaker:We really didn't know a lot about embryo donation. I had done
Speaker:IVF. I'd done obviously, IUIs
Speaker:sort of the gateway into the fertility treatment. But we did IVF.
Speaker:We did not create any embryos ourselves. I have diminished ovarian
Speaker:reserve. And so we very quickly went to IVF,
Speaker:and my sister ended up donating eggs to us at
Speaker:some point. And we did a lot. And we
Speaker:learned about embryo donation just through a clinic based program. And
Speaker:we thought, okay, I guess you don't really know a
Speaker:lot. And then once the film came out and I
Speaker:saw people reaching out and then realized you don't even think about having
Speaker:remaining embryos when you can't make any yourself, in a way. Right? So
Speaker:I didn't even consider this, and I thought, oh my gosh, these people, they're
Speaker:sending photos of their children. They're saying, if you need help, we
Speaker:can help you. And at that point, I already had a child
Speaker:and wasn't really ready to jump into anything
Speaker:again. But anyways, it really just opened
Speaker:up this concept of people have remaining embryos and
Speaker:they're willing to help other people grow their family. And what does that mean and
Speaker:how do you make sense of sharing
Speaker:genetics in this way? And as I started really learning about the
Speaker:landscape of embryo donation, I learned a lot of things that I thought were
Speaker:challenging on both sides. And I also learned that there
Speaker:are well over a million embryos being stored around this
Speaker:country. And embryo donation is
Speaker:not that popular. I mean, it's becoming more and
Speaker:more popular. But anyways, I just realized
Speaker:there was a lot of work to be done in this space, especially in terms
Speaker:of education and supporting people. I transitioned my career
Speaker:to really focus on reproductive
Speaker:medicine and fertility patients and third party reproduction.
Speaker:And that was, I guess, a decade ago. And so now here I am
Speaker:with these two lovely ladies, and we created EM-POWER together.
Speaker:And did I cover everything? Did you mention the
Speaker:part about where you are a psychotherapist and also
Speaker:specialize in reproductive medicine? Correct. So you have, like, deep, deep
Speaker:knowledge and empathy for what people are going. Through outside of just even
Speaker:your absolutely. And I was a therapist for a good amount of
Speaker:time before I became a fertility patient and then transitioned my career.
Speaker:And my background is child welfare, and I worked with kids
Speaker:and families who were really struggling. And I think that's also given me
Speaker:a lens to think about the whole family
Speaker:when you're talking about whether it's embryo donation or third party
Speaker:reproduction. And it felt like a little bit of a missing link in
Speaker:some ways that really understanding the needs of the
Speaker:children who are conceived in this way. So anyways, it's just
Speaker:an added kind of lens and it's something we focus on at Empower is just
Speaker:really helping people create long term healthy
Speaker:families because it's not just about getting pregnant, it's know
Speaker:all the different players, all the different people involved. So
Speaker:Jen, tell us about yourself and your journey.
Speaker:I'll cut to the end and then I'll go back. I am an
Speaker:embryo donor myself, which know why
Speaker:I work in this field, am attracted to this field, think about
Speaker:embryo donation all the time. My history
Speaker:with infertility is I was in
Speaker:a marriage at the time where we were diagnosed with male factor
Speaker:infertility. It was the typical try for one year.
Speaker:I was in my thirty s at the time, and then if nothing happens,
Speaker:you can see a fertility specialist. So we did that.
Speaker:We did everything we could to increase sperm count,
Speaker:acupuncture, anything you could think of. And then finally at
Speaker:the end it was like, okay, really the only way for you
Speaker:to conceive a child outside of some sort of miracle
Speaker:is IVF and ICSI.
Speaker:So we did that. We went through one cycle,
Speaker:and at the end of that cycle there were two viable
Speaker:embryos. They transferred both. This is back when they were still transferring
Speaker:two embryos. This is pre genetic testing. I mean,
Speaker:they were doing it, but not a lot at the time, and so I did
Speaker:get pregnant. And then when I went to the eight
Speaker:week check for heartbeat, there was not one so
Speaker:very devastating time in my life, as a lot of your
Speaker:audience probably understands. And
Speaker:I felt like, I don't even know if I could go through it one more
Speaker:time. And I know that there are people that go through many, many rounds of
Speaker:IUIs and IVFs, and for me
Speaker:it was very difficult, but we did decide
Speaker:to give it one more shot and
Speaker:we moved across the country. So I currently live in Portland, Oregon,
Speaker:and we used a fertility clinic here and we were successful.
Speaker:So this time around, at the end, we had three viable
Speaker:embryos, they transferred two. I became pregnant with
Speaker:twins, I had twins in 2012,
Speaker:and then I had one single remaining embryo.
Speaker:So as many people with remaining embryos can
Speaker:relate to, I would get my annual storage bill saying,
Speaker:what would you like to do with these? In my case, I hadn't
Speaker:recalled filling out a disposition option before IVF
Speaker:because my focus was just to be a mom and I just would sign whatever
Speaker:and not really think about long term consequences.
Speaker:So the storage bill would come. For the first couple
Speaker:of years, it was a no brainer to just continue to pay storage
Speaker:because we had newborn twins and then toddler
Speaker:twins. But then around the time that the
Speaker:twins were four, we really started thinking about, okay, what are we going to
Speaker:do? My partner preferred to donate to
Speaker:science or medical research, and I either
Speaker:wanted to try for another child on my own, or if that
Speaker:wasn't going to work for us as a family, I wanted to
Speaker:donate. So in the end, we decided to donate.
Speaker:My clinic at the time was not doing any sort of directed
Speaker:open donations, and that was important to me. So I went
Speaker:off on my own and found a recipient. When my
Speaker:twins were five, she had a baby
Speaker:boy. And so sometimes
Speaker:you think, okay, that's where the journey ends. Like, I made my decision,
Speaker:she got a baby, I have my twins. But what I
Speaker:found is really that's when a new journey began, and that is
Speaker:how to navigate talking to our children
Speaker:about teaching them from a very young age. My
Speaker:twins were five years older, so I sort of have done a lot more of
Speaker:that. And now that he's six, she is talking to
Speaker:him more. But it's been quite a learning
Speaker:process and a beautiful experience to see how the children
Speaker:conceptualize the fact that they have a full
Speaker:genetic sibling living in another household.
Speaker:And I could go on and on and on about that and how it's been
Speaker:and the ebbs and flows throughout the years, but I will just say that
Speaker:it's really been a beautiful experience. I should also say
Speaker:that I have my master's degree in counseling. Around
Speaker:the time when I had my miscarriage, I was graduating.
Speaker:And so I became a nationally certified counselor. And
Speaker:so when I was going through the process of
Speaker:my recipient becoming pregnant and having her child, I really felt
Speaker:like, where are my people? Where is anybody that knows what this
Speaker:feels like? And I couldn't find anybody. So I started my own web
Speaker:community website and started running support groups for people
Speaker:with remaining embryos that either had donated and
Speaker:were kind of navigating the feelings of donation or
Speaker:had not made their decision and were needing to hear from
Speaker:others who had made similar decisions. So I did
Speaker:that for a few years, just free online groups on my
Speaker:own. And that's what led me to meet, I think, Gina first
Speaker:and then Maya. And so maybe this is a good transition into
Speaker:Gina's story. Thank you so much. And it's funny with each of your stories, I'm
Speaker:like, I have a million questions, but we're going to try to cover
Speaker:the broad areas. But what I really appreciate is people being able
Speaker:to hear the personal stories because everyone has such an experience. And
Speaker:I know when I went through my four year fertility journey. It was truly
Speaker:the experience of others because it's like a different world.
Speaker:People who didn't have to go through this don't understand. And it's not
Speaker:a negative thing. It's a just if you haven't done it, it's just different. And
Speaker:so the community is huge. So, Gina, tell us your
Speaker:story. So, yeah, my story begins
Speaker:a little earlier because I actually went into the field of infertility
Speaker:right out of college. I knew I wanted to be a genetic counselor in
Speaker:infertility, so I was working as a medical assistant from the time I was 21.
Speaker:I was working with fertility patients, and then I went to graduate
Speaker:school, became a genetic counselor, got my dream job, was working
Speaker:at UCSF. I was working with some of the best and the brightest IVF
Speaker:doctors. Seeing patients and never really imagining that I was going to be in
Speaker:their shoes. I mean, I know the stats. So I was like, well, there's a
Speaker:possibility. But it wasn't like I went in there thinking I was going to be
Speaker:a fertility patient. I just really connected with the experience of
Speaker:how do you make meaning of going through fertility treatment and
Speaker:making genetic testing decisions and all the complication. Like, I like
Speaker:science and all that stuff, but I like the human aspect of
Speaker:science. So anyway, I had been working as a genetic counselor in a fertility
Speaker:practice for several years before my husband and I started trying on
Speaker:our own. And we started trying for a kid for our first
Speaker:baby and was surprised because I was really young.
Speaker:I was 27 when we first started. And I was just thinking,
Speaker:I looked at all the data and I was like, I think we're going to
Speaker:be fine. So I really didn't take it very seriously when we weren't getting pregnant
Speaker:right away, lo and behold, I had unexplained
Speaker:infertility, and we went through some stuff, as
Speaker:many people do. I went through several IUIs I went through
Speaker:several surgeries. Again, it was unexplained, but there were things there's
Speaker:always something, okay, well, maybe these dermoids are in the way and
Speaker:we'll get these out so we can do stimulation. And then they found
Speaker:later, they found a septum in my uterus and there's just like a couple of
Speaker:different things. But I was not really prepared for really
Speaker:good news. And when I had my stimulation, I
Speaker:stimulated like an egg donor. I made so many eggs that I was like,
Speaker:whoa, this is a good problem. I could only see it as I'm winning the
Speaker:lottery. Oh my gosh, we're going to have a child.
Speaker:I was on a high that we had so many eggs. They were
Speaker:monitoring, and I was like, okay, I was doing the numbers. I'm like, there's just
Speaker:unless something is really crazy, I'm going to have a baby. So I was just
Speaker:really excited. My IVF cycle was actually
Speaker:quite fun in the grand scheme of things because I was
Speaker:like, okay, this is finally going to happen.
Speaker:Ultimately, we had all these eggs and I was like, well, what are we going
Speaker:to do? We had put all our entire life savings at this point into our
Speaker:cycle. It was in the middle of a recession. There was a lot of financial
Speaker:reasons, but we decided fertilize all of them and then found out that we
Speaker:made a ton of embryos. So ultimately I felt like I had won the
Speaker:lottery and I saw all these patients that I had been working
Speaker:with and I was just like, I couldn't believe that this
Speaker:was kind of how it ended for me. Then we had
Speaker:our transfer. We waited a little while. We transferred our
Speaker:first embryo and it took. And that resulted in the birth of our
Speaker:son, who's now twelve years old. So it feels like
Speaker:almost a different lifetime for me, honestly, when I think about this. But
Speaker:when we had him, it really hit home. I had 18
Speaker:embryos transferred, one got a baby. So I'm like, oh my gosh, I have
Speaker:17 embryos in the freezer. What am I going to do? That is a lot
Speaker:of embryos. And I started just starting just kind of do
Speaker:the math in my head of how many kids can I have? How can I
Speaker:handle this? And then I was really looking at myself as a mom and going,
Speaker:this mom thing, it's way harder than I thought and
Speaker:it takes more of my soul than I ever really
Speaker:understood. And I started just conceptualizing this whole piece
Speaker:so differently of like, how much can I give to
Speaker:one child, let alone a lot more? And it really started to
Speaker:weigh on me that there were a lot of embryos in the freezer and there
Speaker:were a lot of parents that could be amazing parents, but they didn't have the
Speaker:luck I had. We ended up transferring another embryo down the line. That's my
Speaker:daughter. So our two transfers worked. We have two wonderful kids.
Speaker:I had hit my bandwidth and I was like, I don't think I can I
Speaker:have more in me to be a good mom to more than
Speaker:two. And I really wanted to be a good mom. I had had such a
Speaker:hard childhood myself that I was like, it is such an important thing to
Speaker:me to be present and engage with my kids and walk through life with them.
Speaker:I don't want a huge family so that I'm so diluted. I've diluted
Speaker:in my life that's my experiences, I dilute my efforts
Speaker:all the time. I'm like, I want to do everything and I try to do
Speaker:everything and then fail miserably, right? Like, I'm constantly learning
Speaker:that I'm human and there's limits. And I didn't want to do it with this
Speaker:chapter of my life. I wanted to write it differently. So it was really
Speaker:intentional that I reached out for support that. I looked for support
Speaker:everywhere and I couldn't find it. The only thing I could find,
Speaker:which is how I met Jen, is she was only one talking about all the
Speaker:emotions that went into this. And I was like, yes, that's what I'm talking about.
Speaker:All the people in my clinical circle I had know, I
Speaker:knew professionals. Nobody was talking about the emotions, it was just the
Speaker:mechanics. And I knew how clinics ran, I knew why it
Speaker:was, but I saw this huge gap and nobody was talking about this stuff
Speaker:that so many people are dealing with because so many people use
Speaker:IVF now. And it's not an exact science. You typically don't
Speaker:end up with just the exact amount that you had planned to have your family.
Speaker:And it's like nobody then the math doesn't make any sense, right? You don't even
Speaker:know what the variables are going in, like how many kids you want, how many
Speaker:kids you can handle. All that stuff is just all a
Speaker:gamble. I ended up donating to my uncle and his wife as our
Speaker:first recipient. And that happened because I was gathering family
Speaker:history and I asked, does anybody have any updated
Speaker:information? I'm going to be donating my embryos. I know this is a weird thing,
Speaker:but hey, I just want to get the best information I can. And my
Speaker:uncle reached out to me and said, do you have any extra that you would
Speaker:be willing to donate to us? And it really got me thinking, and
Speaker:then it's been the most beautiful experience. Their little girl is five
Speaker:years old as of yesterday. So I
Speaker:have my twelve year old and my daughter who's eight, and then they have a
Speaker:five year old daughter who is amazing. And we have this very unique
Speaker:relationship where she's just like this amazingly special cousin. They know she's
Speaker:her sister. Genetically, of course, everybody knows in the family, but we've really
Speaker:had to, really had to unpack how families
Speaker:conceptualize this because our family was like, oh, what is
Speaker:she to you? Everybody's kind of like walking on eggshells
Speaker:at the very beginning, not knowing how to even talk about it in my extended
Speaker:family because she's technically my cousin, even though
Speaker:she's genetically my daughter. And so it's just a little bit we have a little
Speaker:bit of that family dynamic thing. It's kind of a long story,
Speaker:but we do have seven remaining embryos that we're still
Speaker:planning to donate. I'm going to be on our platform very soon. We have a
Speaker:matching platform, which I'm sure we'll talk about, but I'm going to be on the
Speaker:platform soon because we're looking for our next recipient and I'm
Speaker:hoping that those are going to become babies as well.
Speaker:Wow. Well, thank you. Thank you all so much for sharing your
Speaker:stories. I agree with you, the mechanics
Speaker:aren't always fun, but I do think it's important to discuss
Speaker:one element of the mechanics. So I'm assuming people who are listening to
Speaker:this episode already understand IVF
Speaker:and what an embryo is and all that. So we're going to skip past it.
Speaker:And if there's anyone who happens to be listening who wants to understand all of
Speaker:this, you can go to the FEMpower Health website and there's a whole section
Speaker:on trying to conceive infertility where there's all sorts of information
Speaker:to educate us around those types of things. So sticking to
Speaker:embryo donation in and of itself. I know, Maya, when we were first getting
Speaker:to know each other, you were sharing how there really isn't like a
Speaker:system or process. What are the issues
Speaker:that people are facing because there isn't a great system
Speaker:around it until what you all have built now. So maybe, Maya, you
Speaker:can start and share a little bit about that. Yeah. What are the challenges? Well,
Speaker:how long do you have? Georgie
Speaker:and I do want to be solution focused because I think that's
Speaker:what we're really focusing on. But one of the bigger challenges or
Speaker:gaps that we saw when we got together and really started
Speaker:exploring the space is like a real lack of education
Speaker:around embryo donation or just embryo disposition
Speaker:in general. When you go through IVF and have remaining
Speaker:embryos, or if you have remaining embryos, you sign a form at the
Speaker:front end of your cycle that says, what do you want to do?
Speaker:Do you want to, whatever, continue storing? Do you
Speaker:want to discard thaw and discard them, which is essentially get rid of them? Do
Speaker:you want to donate to science or do you want to donate to somebody else?
Speaker:How somebody can make that decision on the front end if they're going to donate
Speaker:their embryos that they don't know if they have or not to some other
Speaker:person. In what way? In an anonymous way, in a
Speaker:known way, in giving to my uncle kind of way.
Speaker:It's not really a fair question on the front end in some ways, but everybody
Speaker:signs these forms for legalities and the clinics need to
Speaker:have an understanding of what people want to do. So the
Speaker:first thing I think that we really see as a challenge is educating people
Speaker:on what are their options and what do these options mean? And
Speaker:now that PGT genetic testing has become really
Speaker:popular, people get a lot more information about their embryos. They
Speaker:get sometimes told a percentage chance this has to become
Speaker:a child. They get the sex of the
Speaker:embryo sometimes. And so people's conceptualization around
Speaker:these remaining embryos and what they mean can be very complicated.
Speaker:And we've researched a lot in this field. There's not a ton
Speaker:of research. But what we've learned is that people really struggle for about
Speaker:five years with what to do with the remaining embryos and that the
Speaker:disposition dilemma is really strong. And so what do people do?
Speaker:They get paralyzed and they go, all right, let's just pay for storage for another
Speaker:year. Let's just pay for storage. And so for about five years down the line,
Speaker:if you really go, well, okay, we're not going to need these embryos,
Speaker:then you got to shit or get off the pot. Essentially. You got
Speaker:to figure out what you're going to do. We're literally at that five year mark
Speaker:now and going through the exact same thing now with my uncle.
Speaker:Yeah, it's almost like clockwork. We're like, oh, we really need to make a
Speaker:decision now. It's getting to be and choice fees. Are increasing now too, because there's
Speaker:not enough space. And embryos are teeny tiny, but it takes a lot
Speaker:of effort and resources and protection
Speaker:to store these teeny tiny embryos. And with egg freezing becoming more
Speaker:popular in the last, let's say, five to ten years, it's just
Speaker:becoming a challenge. So the challenges are
Speaker:multifaceted in some ways. The challenges are for the
Speaker:patients, specifically patients who have remaining embryos and have to figure out what to
Speaker:do, what they want to do. And the challenge is also for the
Speaker:clinic. So the clinics are really struggling with we have all these
Speaker:embryos. Historically,
Speaker:clinics have sometimes offered embryo donation, but in a very
Speaker:anonymous way, so that patients could essentially
Speaker:give their embryos to the clinic, relinquish custody
Speaker:or legal custody of these embryos to the clinic, and then the clinic decides what
Speaker:to do with them. So we've seen and we've gathered information
Speaker:about just different protocols and processes where somebody could
Speaker:have twelve embryos. I mean, or look at Gina situations. Let's say 16
Speaker:embryos and then they're given to one family and then you have
Speaker:16 potentially genetic full siblings living in likely
Speaker:the same geographical area. I mean, it's problematic.
Speaker:Once 23ANDME and ancestry really hit the scene
Speaker:in an intense way or in a significant way, it changed the
Speaker:landscape of donor conception. Anonymity does not exist.
Speaker:And it's taking the clinics and
Speaker:the industry a little bit of time to kind of catch up and figure out
Speaker:what to, you know, donor conceived people are speaking
Speaker:up and laws are being changed. And Colorado is the
Speaker:first law, first state to pass a law about not
Speaker:allowing donor anonymity in the same way that it's been allowed in
Speaker:this country. And so there are a lot of things at play at the same
Speaker:time that I think create this challenge, but also a real opportunity
Speaker:for us as an industry to shift to
Speaker:a family centered, child centered approach to
Speaker:alternative family building. Anyway, so we created this
Speaker:moxie matching as our matching platform where people can
Speaker:connect, meet and match. And then we can facilitate
Speaker:some of these early, like helping them navigate these early relationships that
Speaker:are very new and nuanced. But because we have this professional
Speaker:experience with clinics and understanding the pain points
Speaker:at the clinic level, it also allows us to help
Speaker:journey, manage and help people figure out, okay, if I'm going to ship
Speaker:embryos. How do I do that? And the legal piece of it. And
Speaker:we really follow ASRM guidelines in terms of making sure people have
Speaker:genetic counseling, making sure people have
Speaker:psychological support, mental health counseling, and then also
Speaker:legal, which are the three kind of
Speaker:ancillary supports that people can have so that
Speaker:everybody gets set up. Well, the foundation of this
Speaker:next path is really set up. I
Speaker:would say, like, each of these areas warrants its own deep dive. And it
Speaker:sounds like your organization will have a lot of those resources for people
Speaker:who really want to dive in deep. So,
Speaker:Jen, given that you've built this
Speaker:community and have helped people have those
Speaker:conversations and dialogue, what are some
Speaker:surprising things that people may not find or discover
Speaker:if they're googling these tough choices and what to do?
Speaker:What might be some considerations,
Speaker:or what have you found to help people
Speaker:get over this hump or the consideration
Speaker:sets they should have as they go through their journey? That's a great
Speaker:question. I think one of the first basic questions
Speaker:that I don't know that everyone thinks about is really how do you
Speaker:conceptualize an embryo when you're
Speaker:considering donation? What are the reasons you're
Speaker:considering donation? Do you feel like because of your faith? Do
Speaker:you feel like this is a must for you when you have no choice, no
Speaker:matter what difficult feelings come along with it? Do
Speaker:you make a decision based on wanting to help another
Speaker:person who has been through something similar
Speaker:to you, whether it's failed IVF or miscarriage or
Speaker:just in general, sort of a giving back? For me, I was in the
Speaker:latter category. For me, in the end,
Speaker:I chose to donate because I felt like it gave almost more
Speaker:purpose to all the pain I had been through by helping somebody
Speaker:else. So when people come to me and they're
Speaker:really struggling with decisions, it sort of starts at that base.
Speaker:Like, how do you conceptualize this embryo and
Speaker:really what are the options you do feel comfortable with?
Speaker:I think another thing that makes embryo donors
Speaker:unique when they're considering this is they all
Speaker:have children, right? And we talk about feelings changing over time, and
Speaker:Maya talked about the disposition option in the beginning. I mean, not
Speaker:only do you not know if you're going to create embryos, you also don't know
Speaker:how you will feel once you have your own children and you see
Speaker:these beautiful people in the world and you know that there are other
Speaker:genetically related embryos somewhere that can go
Speaker:somewhere. And so I think that's sort of a two part thing is you
Speaker:start to think about an embryo differently sometimes once you see your own
Speaker:children. And at the same time, it can
Speaker:cause a lot of fear or
Speaker:trepidation, like, well, if I do donate this embryo and I have an
Speaker:open relationship, will this child feel like mine?
Speaker:Will it. Be really difficult for me if they look like one
Speaker:of my children or myself. And so there are a
Speaker:lot of fears that kind of go into
Speaker:considering donation. And so we talk about those fears and
Speaker:like you said, nobody else is really going to understand
Speaker:unless you are in this particular position. And I know
Speaker:exactly what you mean. Like, you almost don't have to say anything.
Speaker:You either get it or you don't. And I had a lot of very wonderful
Speaker:girlfriends that were helping me through this when I was trying to decide what to
Speaker:do with my embryo. They were fantastic, but at the same time,
Speaker:they didn't really get it. And I would get comments like, oh,
Speaker:I could never do that. And that would immediately make me shut down
Speaker:because I was so sensitive. And I felt like, judged.
Speaker:And so having these peer support groups
Speaker:and people that have been through it and know how it feels is very
Speaker:important. So I think the biggest thing, and
Speaker:my biggest message to people and know what Gina picked up on when
Speaker:she was reading my stuff, is you don't know
Speaker:exactly how you're going to feel. You can't plan for how you're going
Speaker:to feel if you do choose donation, but the best thing that you can
Speaker:do is to let yourself feel. So if those feelings
Speaker:are like absolute joy from the moment that you
Speaker:find the person that you're going to donate to and the child is born
Speaker:and it's wonderful. And then a lot of people have these sort of extended
Speaker:family relationships, that's great. But if you're
Speaker:afraid that you might feel jealous at times, like, I
Speaker:had those own fears and I experienced them and
Speaker:I spoke about them, and so I think it's really just
Speaker:that sharing and openness and being able to
Speaker:say it out loud that really gets you
Speaker:through it in a positive way, in a supported way. And then
Speaker:again, there are some people that have come out of my support groups and decided,
Speaker:this isn't for me. They really explored
Speaker:how they might feel and they decide at the
Speaker:end, I'm going to donate to science or lab
Speaker:research or whatever, which is great too. Like Maya
Speaker:said, we believe in embryo donation because
Speaker:we're living it at the same time. It's definitely not for
Speaker:everybody. And by the way, I just want to also say for anyone who is
Speaker:listening, we cannot judge anyone for any
Speaker:decision they make because it is so hard.
Speaker:And like you said, Jen, I think all of you have alluded to. This is
Speaker:like you can never predict what you may decide
Speaker:at given stages because each bit of data gives
Speaker:you new information. I'm so grateful,
Speaker:but I play in this space of grateful. And why
Speaker:didn't I get to choose? Like, I would have loved to say I'm done with
Speaker:one. And by not having the ability to choose,
Speaker:I felt slighted so to speak, even though
Speaker:I'm also grateful. So it's like these mixed emotions
Speaker:and I'm assuming you guys will all say as you're nodding, like it's
Speaker:okay, I'm grateful and sad all at the same
Speaker:time. It helps to make the rest of your life easier if
Speaker:you can actually land on something like, oh,
Speaker:well, I didn't anticipate that I was going to have to make
Speaker:these decisions. I have to bend my idea of the future. Oh
Speaker:my gosh, what does that even mean? And so I
Speaker:think for me, I think that it really was
Speaker:coming into contact with all the intentionality of my
Speaker:life, the things that I was able to control, the things I wasn't able to
Speaker:control, and just finding space to be okay with being in the
Speaker:middle somewhere. And I think you're really talking to something important. Georgie
Speaker:when it comes to the idea of, you know,
Speaker:very few mean, I guess if you're in a same
Speaker:sex relationship and you need the alternative technologies
Speaker:to have a family, but for the most part, when you
Speaker:find yourself in a fertility clinic, it's not by choice. It's by
Speaker:choice, but it's not because you want to be there, essentially. And so I
Speaker:think for those of us who get
Speaker:to the path of embryo donation, that's generally after a lot of other
Speaker:stuff has happened, you spent a lot of time, emotional
Speaker:resources, financial resources, that mental gymnastics
Speaker:of, okay, now I'm going to shift to an egg donor. I mean, even just
Speaker:embracing IVF or
Speaker:having a doctor be part of your family building, there's a lot of
Speaker:pieces of this and I think sometimes it can be very traumatic for people
Speaker:and it changes for some people. You go in, you do
Speaker:your thing and you get out by the skin of your teeth and you have
Speaker:a family. But I think for other people who've really had to let go
Speaker:of pieces of themselves, like literal pieces of themselves, whether that's the
Speaker:ability to carry or the opportunity to carry or your genetics,
Speaker:it feels like you're landing somewhere where you don't have choices. I have to do
Speaker:the only way I can do this is to have a family. And when you're
Speaker:pushed up against a wall like that as a potential recipient, let's
Speaker:say, of embryos, it can be a little bit challenging. And
Speaker:I work with a lot of people just in my
Speaker:private practice on sort of transitioning through some of this
Speaker:trauma and history and emotional experience to a place of feeling really
Speaker:confident with how you're moving forward. And it's
Speaker:expanding your definition of what makes a family
Speaker:or know people come with a lot of fears, which
Speaker:know, jen's talking about the fears for embryo donors in some ways, but there are
Speaker:a lot of fears on the other side too. Will this child feel like both
Speaker:parties are feeling? Will this child feel like mine? This child's going to feel like
Speaker:somebody's, right? But people are having
Speaker:these common experiences and
Speaker:how do you just make sense of it when the gap between
Speaker:what you expected to happen in your life and the reality of what's going
Speaker:on? Plus, I don't have a lot of time to do
Speaker:this. Everybody's freaking out because it's like you wanted
Speaker:this to happen yesterday and our age matters in the
Speaker:fertility world and stuff. So I think we're really dealing with I don't have a
Speaker:lot of options, I don't have a lot of choices. And what we've really tried
Speaker:to do at Empower is not to sound too cliche, but
Speaker:really empower people to understand what their choices are and to feel like they
Speaker:have choice. And part of that is the idea of having a directed
Speaker:opportunity where you can self select, you can match with
Speaker:each other. You're not going in and ordering an embryo
Speaker:from a clinic. And as a donor, you're not just giving up or giving
Speaker:your genetics your embryo for somebody else to
Speaker:make a decision about, because there are things beyond what color
Speaker:hair you have and your height and whatever
Speaker:that connect for people. But again, it's certainly back
Speaker:to what are my choices and how do I understand these choices and how do
Speaker:I feel comfortable and confident with my choice rather than I don't
Speaker:have a choice here, I have to just find an embryo that works and if
Speaker:they have red hair, great or whatever. Right. And so it's just changing the
Speaker:narrative around this a little bit. Right. So
Speaker:a question to that, as you were talking, what occurred to
Speaker:me also is we're in this society where
Speaker:things are quick fix, so to speak, because
Speaker:everything is just moving at such a fast pace and I think all of us
Speaker:want answers yesterday, or solutions. We want the pill
Speaker:to fix everything. And it's clear that this is not that
Speaker:kind of a situation. But as you also said,
Speaker:Maya, our bodies are on a clock and
Speaker:this is mean. Yes, someone may be listening to this episode
Speaker:and say, OK, my question is, do I donate my
Speaker:embryo or do I use a donated embryo?
Speaker:But it's bigger than that because
Speaker:I want a family. How does it happen? What are
Speaker:all my options? Oh, by the way, I'm Gina
Speaker:Fast. And it's very
Speaker:stressful because you're both racing for an
Speaker:answer every month. You don't know what's going to happen
Speaker:with that cycle, but then you also know
Speaker:you have to make a decision. Oh, by the way, you're also emotionally.
Speaker:Stressed because I meet with people that are considering going on
Speaker:our matching platform and they'll come and they'll say, I know I
Speaker:want a boy, I know I want this and I know I want that. And
Speaker:what we try to do is, yes, great, let us help you. But
Speaker:at the same time, leave some space for your feelings changing.
Speaker:Like you might really connect with a donor that has
Speaker:girls, and that could be okay too. So we really try to help
Speaker:people through this urgency, and this is what I
Speaker:want, especially in 2023, where, again, technically,
Speaker:you can say, okay, here's a boy, you can check off the
Speaker:boxes. But because
Speaker:it's a lifelong journey and so it's that
Speaker:leaving space for feelings, changing over time that I think
Speaker:helps sort of people through this. And we're very
Speaker:supportive through the process, and we help with matches and we
Speaker:help communicate needs and wants and all of that.
Speaker:So hopefully the people that sort of come through our system,
Speaker:yes, feel that intensity, but at the same time feel very
Speaker:supported with the decisions that they
Speaker:make, whether or not it's what they thought they wanted the
Speaker:day that they first called us. And two,
Speaker:also with our education materials with we talked
Speaker:about we've talked about the spectrum of relationship options. So somebody
Speaker:might come in thinking, I want this, I want
Speaker:very little contact, or I want a very open relationship, and then
Speaker:they might watch our webinar and learn, okay, there's
Speaker:other places where my feelings can go. And I think that's
Speaker:also important. Like you mentioned, if you have a partner involved, because again,
Speaker:the decision not everybody has the same
Speaker:thing in mind. So we try to do a lot of support
Speaker:and education around all of that. The truth is that it
Speaker:is just an entirely new journey that you're on when you embark
Speaker:on embryo donation as either a recipient or as a donor.
Speaker:And that making space for you to grow, for your family to grow,
Speaker:for other narratives to be involved, for other people's feelings to be involved.
Speaker:It's like the life lesson we learned through all this is that,
Speaker:oh, it's not just about what I had intended for
Speaker:my future. It's like all these other people are involved in my world
Speaker:too now, and how do I make space for that? It's
Speaker:really beautiful. That's the thing, is that this changed completely from
Speaker:and that's why the logistics, mechanics of it are just
Speaker:the top layer. And it's like all this other stuff that you're learning along the
Speaker:way that you're like, there was a reason I was meant to go on this
Speaker:journey. I would never have chosen it for myself
Speaker:if I could have scripted out what my journey of life would have
Speaker:been. But honestly, wow, what a gift
Speaker:to have been able to see through the lenses of all these different
Speaker:people, because that was part of why it was so hard for me,
Speaker:was I had all this fear of a child that would never be able to
Speaker:forgive me for in my mind, giving them away
Speaker:and not being able to be that for
Speaker:that child. That maybe what they needed, what they thought they needed. And how much
Speaker:was that projection of my own childhood experience? It took me a long time
Speaker:to unearth the fears that I had and to really stand back and
Speaker:say, well, there are things I can do to be my best self in
Speaker:this, in what decisions I make today. And that
Speaker:was what has really called me that I'm like, oh my gosh, it is a
Speaker:gift, even though it was not again, a gift I would have wanted to
Speaker:accept at the time. It's been really beautiful.
Speaker:Right, well, I was just going to know on the other side of this, like
Speaker:what you're speaking about, georgie also or touched on this idea of
Speaker:time and relationships and all of
Speaker:that, know, my husband and I were in this
Speaker:for about three and a half years before we landed on embryo donation.
Speaker:And it became very clear to me that if we don't get out
Speaker:of this life of being fertility patients, we
Speaker:might not make it out of this.
Speaker:It's really hard. And I mean, that's what our film is really about.
Speaker:And when we were
Speaker:filming it, that was sort of our trauma narrative and
Speaker:we kind of filmed and just kind of went through the process a bit. But
Speaker:when I look back at it, I can really see it was a really critical
Speaker:moment for us to pivot and to really think of what is
Speaker:the best, also fastest and also not
Speaker:super expensive. We didn't have the money. I
Speaker:mean, I was just getting out of grad school. We bought a place and then
Speaker:literally fertility stuff happened. We just didn't have
Speaker:$100,000 to go through X, Y and Z
Speaker:multiple times. So we had to make smart decisions and we had to make them
Speaker:fast and we wanted to stay
Speaker:together if we could. And I could see what was happening to me and to
Speaker:our dynamic. So the thing about embryo donation is these embryos
Speaker:exist, they're there, and it is a faster path for
Speaker:some people. It is a really good option for some single
Speaker:women who may have we've worked with several, like
Speaker:they froze their eggs in their late thirty s and now are in their forty
Speaker:s and it's a different opportunity
Speaker:for different populations who've been a bit underserved by embryo donation
Speaker:in general because of various kind of politics
Speaker:around embryo donation. But it's faster and it's also the
Speaker:only truly altruistic gamete donation. You don't pay
Speaker:for an embryo, you match and you have to go through the process.
Speaker:But it's a much more affordable option, which I think fertility
Speaker:treatment is expensive and insurance coverage
Speaker:has changed over the last decade. Since I was a patient, I didn't have any
Speaker:coverage and a lot of people still don't. And so I think that there
Speaker:are different reasons why people come to embryo donation as a recipient,
Speaker:but the time factor and the cost factor might also play a role in
Speaker:it. So I do have a question here, which is
Speaker:bringing up the A word, which is the next episode in
Speaker:this series on family building, which is adoption,
Speaker:so many will say, you're so
Speaker:privileged to go through these options of IVFs
Speaker:embryo donations. Like, how could you? There's all these children
Speaker:who need a home. Why aren't you adopting? Or why aren't
Speaker:you a foster parent? Again, I know there's not
Speaker:an easy answer that is, like, hard, and so I don't know if we
Speaker:leave it at, yes, it's hard. Listen to the next episode if
Speaker:you're looking at that path on how you might handle
Speaker:those dynamics. But I don't know if there's anything to
Speaker:just mention here, to just acknowledge sometimes
Speaker:those dynamics likely from people who aren't in your
Speaker:shoes to know how freaking hard this is.
Speaker:Adoption is an amazing choice. I started down the pathway,
Speaker:honestly, when I was going down the pathway, I
Speaker:was told by adoption specialists, I went to multiple
Speaker:meetings, that it's a hard time to adopt. I was told
Speaker:the expense of it is quite expensive
Speaker:and you're going to talk to Erin next episode, and she's a friend of ours,
Speaker:and we love her, and she's done some amazing work to make this a more
Speaker:affordable path for people. But when I was looking into it, it was upwards
Speaker:of $30,000 plus. And after you've gone through fertility
Speaker:treatments, you've gone through loss, you've gone through genetic grief,
Speaker:I was like, if I can give birth to my child, that would
Speaker:be a huge win. And that was my own personal feeling. But for people who
Speaker:aren't as connected to that or who have other challenges
Speaker:with carrying a pregnancy, adoption is an amazing option. But I don't think
Speaker:it's like, you're a fertility patient, therefore you should just
Speaker:adopt. I don't think it's as simple as that. I think it's you're trying to
Speaker:build a family. Let's look at what's there and what is going to feel like
Speaker:the best path forward. So I think adoption should be included
Speaker:in the fertility space. 100%
Speaker:embryo donation shares some commonalities with adoption, but it's
Speaker:quite different in a lot of ways. But it's parenting a non genetic child.
Speaker:I've spent a lot of time thinking about those questions, and I
Speaker:think primarily because there wasn't a lot written about embryo donors
Speaker:that I really started to engage in that literature, trying to understand
Speaker:the dynamics. And some of the things that are very different for
Speaker:adoption versus embryo donation is the life path
Speaker:of the genetic parents, essentially. Is
Speaker:that like, Jen and I and many embryo donors, we've already
Speaker:created our families. We've already been through a whole lot, and so we're kind of
Speaker:at the tail end usually, and we're in a
Speaker:different place where we're conceptualizing things. And I think it's very different
Speaker:for many, not all. I mean, there's plenty of
Speaker:adoptees that are second or third children or whatever to a
Speaker:birth mom, but I think it's a different experience for a lot of people
Speaker:that place their children for adoption. And so
Speaker:from that perspective but I also think that it's not for every on the recipient
Speaker:side of things, on the parenting side of things, the ability to
Speaker:take on the dynamics and take
Speaker:on the child's needs in various situations can be very
Speaker:different. And we really have to prioritize the
Speaker:child's needs above everything. And so I think it's really important
Speaker:that only people that are called to adoption, adopt
Speaker:and that feel capable of meeting all those things. And
Speaker:a lot of fertility patients are traumatized after their
Speaker:experience with fertility and not to the point that they're
Speaker:necessarily every single one of them should be
Speaker:adopting. They're both really amazing options for
Speaker:family building. They both have unique needs
Speaker:and it's not like we're competing against
Speaker:that. Embryo donation is
Speaker:an option and adoption is an option. And I think there's a lot of kids,
Speaker:there's a lot of embryos that are available.
Speaker:But actually adoption, it's harder, that's actually harder to find.
Speaker:I don't know that whenever somebody talks to me about
Speaker:that, I don't consider my embryos
Speaker:competing with space in families for the
Speaker:same places that children that would be adopted would be.
Speaker:A lot of people choose embryo donation even if they're
Speaker:using surrogate. And so I
Speaker:think I'm thinking of this one case, for example, of
Speaker:two women who were cancer survivors.
Speaker:Neither one was able to create embryos
Speaker:before very early intervention to create
Speaker:embryos, neither were able to carry, but one donated her
Speaker:embryos to the other. So now they sort of have this extended
Speaker:family because they're raising genetic
Speaker:siblings, but they also have this past bond
Speaker:over this experience of
Speaker:cancer survival. So even if you're not able to
Speaker:carry the child yourself, a lot of people are
Speaker:choosing embryo donation with surrogacy because
Speaker:of whatever meaning it might bring to that sort of extended
Speaker:family feeling. I love that. Thank you.
Speaker:So just to kind of summarize, here one.
Speaker:I am so honored that each of you shared your
Speaker:story and like so many of us in women's health,
Speaker:we have struggled and we are here to
Speaker:say let's help others. And a lot of the
Speaker:they're called femtech companies are coming out because of
Speaker:that. It's not just fertility. There's a lot of
Speaker:conditions in women's health that are underresearched,
Speaker:underfunded, not well understood. And
Speaker:if those ahead of us couldn't make the change, we women
Speaker:who've struggled are. And I really appreciate you
Speaker:sharing the honest dynamics that people who
Speaker:are trying to build their families need to think about and
Speaker:acknowledging that it's hard. And I hope those who've listened, who
Speaker:maybe aren't going through it, but know someone who is, have a lot more
Speaker:empathy for how darn hard and scary this is
Speaker:and can be supportive. So to
Speaker:end on such a beautiful, even more beautiful note, I don't even know how this
Speaker:has been such a beautiful discussion, who would like to share the
Speaker:story? Each match that we're working with
Speaker:and supporting is just uniquely sweet and special and
Speaker:beautiful. But I'm thinking about one particular match of
Speaker:a single man, and we don't hear a lot about single men. Not not a
Speaker:gay man, a single straight man who after
Speaker:a divorce went through fertility,
Speaker:right, went through trying to build a family with an egg donor and a
Speaker:surrogate and was successful and had remaining
Speaker:embryos and decided he'd like to give another single
Speaker:person an opportunity. And let me tell you, for single men
Speaker:going through this kind of process, it is hard. It is really
Speaker:hard. And there's stigma and there's all kinds of stuff. But anyways, he's just a
Speaker:lovely, lovely person and has a child
Speaker:who's I believe six or somewhere around there and decided he wanted to
Speaker:help another single person and they matched on
Speaker:our platform. And it's one of those things where we're just
Speaker:like we just love them anyways. And we're getting to
Speaker:the end of the journey management piece and hopefully the beginning of a new journey
Speaker:for this recipient. And
Speaker:there are moments where it's like she's still surprised that this has happened for
Speaker:her. Anyways, it just
Speaker:warms my heart and that we're able to help people
Speaker:find their families. And probably in this case, it
Speaker:will be an extended family kind of scenario, and the children will know each other,
Speaker:and we'll be able to provide this long term family support so that they have
Speaker:the language and the tools to talk to these children who are full
Speaker:genetic siblings with different homes and different single parents that are
Speaker:awesome. And I don't know, that's just top
Speaker:of my mind because we're really in it with them right now,
Speaker:right? Yeah. Wow, I love that because
Speaker:you're right, everyone's story is so different. It's like, how do you pick? Because there
Speaker:are and this is definitely not a game,
Speaker:so to speak, on who gets the best option. But I'm
Speaker:glad I asked the question because that is such a beautiful story because
Speaker:I know right now women are
Speaker:underfunded, under researched. We women need more. We deserve better. But
Speaker:I actually have a lot of men come to me and say, but there's a
Speaker:lot for men you don't understand yet either. And here you go with
Speaker:that example. So thank you. And thank you
Speaker:all so much for making time. And the show notes
Speaker:will have all the information on how to stay in touch
Speaker:with you all. And are there any last requests or
Speaker:statements or have we covered this in every
Speaker:perspective possible in a short episode? Yeah, no,
Speaker:I think we could. I know. Anybody want to
Speaker:talk about embryos? But no, we just really appreciate
Speaker:we appreciate the work that you're doing and the way you're educating and informing
Speaker:people, and we're just so grateful to be a part of it because we know
Speaker:this is a real topic for a lot of people
Speaker:going through fertility and yeah having embryos. So
Speaker:thank you for having us. Awesome. Thank you. And I'm so happy the three of
Speaker:you were brought together to do this.