Is it the case that folks who had been hospitalized at a for profit had lower patient centered care and higher betrayal than folks hospitalized at a nonprofit?
Speaker AAnd basically what we find is.
Speaker BWelcome to another episode of the Global Health Pursuit podcast.
Speaker BThe podcast where we explore the world's most pressing health challenges daily through a beginner's lens.
Speaker BMy name is Hetal Bamman.
Speaker BI'm a biomedical engineer turned social impact podcaster and I'm your host.
Speaker BDr.
Speaker BMorgan Shields, Assistant professor at the Wash U.
Speaker BBrown School in St.
Speaker BLouis, is back for a part two after sharing her very personal experiences with the inpatient psychiatric setting.
Speaker BIf you haven't listened or watched part one, make sure to go back one week and hit play.
Speaker BWe ended the episode speaking about how we are actually capable of creating humane and dignified settings for patients within inpatient psychiatric hospitals, that things can be improved.
Speaker BBut it seems like in the United States, psychiatric healthcare has been divided into two ideologies.
Speaker BOn one side, people are pushing for expanded inpatient psych beds.
Speaker BSo basically add more beds and space for patients and we'll be okay.
Speaker BAnd the other is the complete abolition of psych hospitals.
Speaker BSo get rid of the hospitals and we'll be okay, right?
Speaker BTwo very extreme differences of opinion.
Speaker BSo which is it and what could be the reason for how polarizing these two solutions are?
Speaker AI view the polarized advocacy around inpatient psychiatric care in the United States as one reason why we lack accountability in data.
Speaker AWe lack robust efforts to think about quality improvement.
Speaker AWhy would we organize ourselves around doing that if there's not any sort of pressure coming from advocacy groups and the advocacy groups who may be the ones who would otherwise be putting that pressure on our systems or our payers, our regulators are worried that if they put energy and effort towards what they call conditions improvement of hospitals, that it would take resources away from community inclusion.
Speaker AAnd actually, you know, if you think about these advocacy organizations as being resource constrained themselves, it is true that they only have so much time and energy.
Speaker AAnd so if they are focused on trying to understand what's going on inside of these hospitals and advocating for reform, that that is time and energy that that is taken away from really focusing on advocating for expansion of community based services.
Speaker AAnd I think that there might also be a concern that sustained reform efforts would require taking money from community based services towards hospital care.
Speaker BCommunity based services.
Speaker BWhat are they?
Speaker BI was a bit confused and maybe you are as well.
Speaker BWhat does Dr.
Speaker BShields mean when she says this?
Speaker BIs community based services simply outpatient psychiatric care, or is it something more?
Speaker BAnd if There is something more.
Speaker BWhat else is there?
Speaker BWas she saying that in order to reform inpatient services, we'd have to take money from those outpatient services?
Speaker AYes, I.
Speaker AOutpatient mental health care, but also social support, social welfare services.
Speaker AWhat a lot of people might need extends beyond just clinical care and includes, you know, housing and other types of social supports, transportation, et cetera.
Speaker AAnd some people do need, you know, maybe even temp temporarily, not necessarily long term, but sometimes long term they need more intensive services to live a meaningful life in the community, which might look like a team of people coming out to a person's home and having more regular contact with them rather than just, you know, once a month therapy session.
Speaker AAnd so that takes investment and takes resources.
Speaker ASo that's some of the history.
Speaker AThe, you know, maybe the disability rights advocates, maybe back in the 1980s, were the ones putting pressure on our systems to improve accountability and conditions of institutional care.
Speaker AThey are sort of dedicated towards other efforts at the moment.
Speaker AThey are justified in that.
Speaker AIt just means, though, that there is a consequence of that sort of vacuum of advocacy.
Speaker AAnd on the other side of the spectrum, there is a push for expanded inpatient services.
Speaker AAnd that is kind of a more complicated, I would say, contingency of folks.
Speaker AIt's pretty diverse.
Speaker AI would describe it as including family who are feeling like they don't know what to do.
Speaker AThey have a family member who is in crisis or constantly in crisis.
Speaker AAnd the only way to get them any sort of crisis care is if they are really in an extreme state and they're at imminent risk of hurting themselves or others.
Speaker AAmong family members, there can be almost like a resentment that develops towards the rights that currently exist to protect patients or, or individuals from unnecessary institutionalization.
Speaker ABecause sometimes it's seen as really getting in the way of being able to intervene, which might require using involuntary methods.
Speaker AYou have to sort of allow your family member to decompensate to a certain point before there's any sort of intervention to, to seemingly help them.
Speaker AThen you also have other stakeholders which I would include, you know, CEOs of the.
Speaker AThese for profits inpatient psychiatric facilities as being part of that contingency.
Speaker AAnd medical professionals and providers who are working on the front lines and who might have a view that is a bit constrained towards crisis.
Speaker AAnd so maybe what they see is in the emergency department, there's a lot of ed boarding.
Speaker AWe have a lot of people who are coming and we cannot place them, and that must mean that we don't have enough beds.
Speaker AIt's logical to think that the solution is to expand this service and create more beds.
Speaker AThe situation is a bit more complicated than that for a lot of people who end up boarding in the emergency department.
Speaker AThe people who are more likely to board tend to be the folks who might be, quote unquote sicker.
Speaker AThey maybe were brought to the hospital by the police.
Speaker AMaybe they're viewed as being a risk of being dangerous or violent.
Speaker AThere's characteristics about their disposition that might make a receiving hospital not want to accept them.
Speaker AIt's not the case that there are just no beds.
Speaker AIt's a bit more complicated.
Speaker AAre there organizations who want to accept that patient, given their risks and who their payer is and how much they're going to pay?
Speaker ABecause it is a market based service in the United States.
Speaker AAnd so, you know, maybe unlike other areas where it's a single payer system and sort of mostly everyone goes to like the same type of hospital and it really is just a matter of beds or capacity.
Speaker AIt is a bit more complicated in the United States in that regard.
Speaker AThinking that just expanding inpatient services is going to solve all of our problems is pretty short sighted, not very creative, and obviously neglects the utility of these services.
Speaker AWe don't know what is happening to people inside these institutions.
Speaker ARight?
Speaker AThere's a lack of accountability and a lack of curiosity or an expectation for actual therapeutic benefit.
Speaker ASo almost like it's just assumed that containing them and putting them into a hospital is going to provide necessary benefit.
Speaker ABut we actually don't have evidence for that.
Speaker AAnd we do have evidence that there's a lot of harms being caused.
Speaker AThat's the tension here is, well, wait a minute, what actually do we want patient services to be doing for individuals and are they achieving that goal?
Speaker BWhat really stands out to me Here is how Dr.
Speaker BShields mentions that there is a lack of accountability when it comes to putting patients into a hospital.
Speaker BThey think that simply by admitting someone that patients will automatically benefit.
Speaker BAnd in part one, she also mentions that the psychiatric hospital setting is almost like a black box.
Speaker BShe says that we don't really even know what's happening within the walls of the hospital until patients speak up about their experiences after the fact.
Speaker BDr.
Speaker BShields has even conducted surveys in her research asking patients about their experiences.
Speaker BYou can find those studies in the show notes.
Speaker BAnd we just spoke about how one reform ideology is to increase the number of beds in psych hospitals.
Speaker BBut on the other end of the spectrum, there are people who want to get rid of psych hospitals altogether.
Speaker BAnd my question is really, where does this ideology come from?
Speaker BWhy do they use the term abolition?
Speaker BAnd do these people think that we just completely get rid of crisis support for these patients altogether?
Speaker AWell, what I can also say just to, to be a bit more sympathetic towards that side, because I actually align in spirit more with that side.
Speaker ASome of this might be a difference in language and what we mean when we say things like abolition.
Speaker AIn practice, there's been a push to deinstitutionalize.
Speaker AWhen I think there is diversity among those of us who want to see more humane, patient centered care, who do believe in patients rights and lean in spirit more towards those principles.
Speaker AThere's diversity among us in the extent to which we actually think it's possible to sustain a society without inpatient psychiatric care.
Speaker AFolks who do advocate for that, they are not necessarily imagining a world where we have no crisis services at all.
Speaker AIt's just a bit different.
Speaker ASo as opposed to the standard hospital setting where it's sterile and directed by psychiatry in the United States, to be the director of an inpatient psychiatric hospital, you have to be a medical doctor, you have to have an md, so you have to be a psychiatrist.
Speaker AIn most states, it's in state regulations what those requirements are.
Speaker AAnd in most states that is the requirement.
Speaker AAnd so it forecloses other sorts of mental health providers being able to lead these institutions like clinical psychologists or social worker or whatnot.
Speaker AAnd so it's a certain type of professional who has a certain orientation towards certain treatments like medication.
Speaker AAnd they have a certain ethos and a culture around power and authority over patients.
Speaker AThe folks who want to see abolition want to see alternatives to that.
Speaker AThey want to see crisis services that perhaps are run by peers, people who have lived experience of mental health conditions, mental health services and crises, leading these services in a more homelike setting as opposed to a hospital.
Speaker AThe thinking being that that's more therapeutic.
Speaker AThese are called peer respites.
Speaker AThere is some evidence that peer respites can be beneficial to patients.
Speaker AThere's been some randomized control trials, even sort of comparing peer respite to inpatient psychiatric care.
Speaker AI mean limited randomized control trials that have demonstrated superior benefits of peer respites.
Speaker AThere's challenges in doing this type of research, right?
Speaker AAnd there's challenges ethically and randomizing people to, to different types of crisis care, especially if they're at risk of hurting themselves or someone else.
Speaker AThere are limits in what we learn through standard research designs.
Speaker ABut all evidence points to peer respites or other alternatives as being worthwhile interventions to consider investing in and potentially Expanding.
Speaker ABut you know, if it's expanding those services and scaling them up, there's obviously going to be a lot of implementation questions and how do you best sort of scale that up and you know, who are those best for and who might do better in a traditional hospital setting?
Speaker AThere are always exceptions.
Speaker AIt's not that folks want to see just a closure of hospitals and then absolutely no services for folks.
Speaker AThey want to see a reimagined alternative to the hospital.
Speaker BI did a little research on peer respites because this is a new term for me and it might be a new term for you.
Speaker BAccording to the National Empowerment Center, a peer respite is a voluntary short term overnight program that provides community based, non clinical crisis support to help people find new understanding and ways to move forward.
Speaker BWe apparently have them all over the United States and many even offer free stays for those in crisis for up to seven days.
Speaker BThey are staffed and operated by people with psychiatric histories or people who have experienced trauma and or extreme states.
Speaker BI'll link this website in the show notes if you're curious about learning more as well.
Speaker BWhen it comes to inpatient psychiatric care, there are also two buckets of hospital settings.
Speaker BI know this is all really complex and confusing.
Speaker BThere's the for profit and the nonprofit hospital setting.
Speaker BWhat I wanted to know was what does it mean for care when it comes to these two different types of facilities?
Speaker BDo they run any differently?
Speaker BDo patients get treated better in one facility or the other?
Speaker BYou would assume not, right?
Speaker ASo some people will tell you there's probably not much difference between a for profit or nonprofit.
Speaker AIn practice.
Speaker AA lot of big nonprofit medical centers operate just like a for profit in terms of being very profit oriented.
Speaker AIt's just that they reinvest those profits within their organization.
Speaker AIt goes to salaries or a new building.
Speaker AIt just doesn't go to shareholders or it's not held as profit by leadership per se, but certainly it can go to their salary.
Speaker AThat is generally the case when it comes to general hospital care.
Speaker AWhen it comes to psychiatric care, however, and other types of medical settings such as nursing homes.
Speaker ABut say that the theory and the evidence maybe is a bit different.
Speaker ASo let me back up and say theoretically.
Speaker ATheoretically, if we're looking at this through an economics theory lens, healthcare has what we call lots of market failures in the United States.
Speaker AIt's a market based service.
Speaker AYou have these private enterprises and it's not just the government that's providing services.
Speaker AIt's a market based service.
Speaker ABut there are market failures, meaning that patients, first of all are not the ones who are usually paying for care.
Speaker AThere's the insurance company as an intermediary.
Speaker ASo that makes things complicated.
Speaker APatients don't always have full information about care quality and they're not able to make decisions on where to go for care.
Speaker AIt just means that the market doesn't provide natural consequences to providers for providing care that's poor quality.
Speaker ASo there's not always a natural incentive for providers to make sure they're providing care that is high quality and meets patients preferences that is exaggerated when it comes to inpatient psychiatric care.
Speaker ARight, because there's even more constraints on shopping.
Speaker AThere's the use of involuntary admissions, patients perceptions are totally discounted, et cetera.
Speaker ASo it's even more severe when it comes to inpatient psychiatric care in conditions where you have these market failures.
Speaker ATheoretically, we expect that for profits will intentionally exploit those market failures to maximize profits.
Speaker BOkay, I want to say the sentence again.
Speaker BFor profit hospital settings intentionally exploiting those market failures to maximize profits.
Speaker BThat's a powerful statement.
Speaker BAnd to understand it a bit more, let's actually rewind.
Speaker BLet's think about what actually constitutes a market failure in this context.
Speaker AWhat's called information asymmetry.
Speaker ASo providers knowing more about the care quality that they're providing than patients, especially before they experience care.
Speaker ASo that's a market failure because it means that the consumer is not able to take all of the information about the product and make an informed decision on whether or not they want to buy that product.
Speaker AAnd it means that providers have more power in that sense, that they have insight into the product they're providing, but that the consumers don't necessarily have that insight, especially before they end up as patients.
Speaker AAnd, and, and they may experience care, then they do have more insights, but their ability to use that information to change the behavior of their future selves or others is constrained because they don't have as much agency as you do.
Speaker AIf you're, you're shopping for shoes where you can read reviews, see how people like you appreciated the shoe, or if the shoe gave them back pain, you can do all of your due diligence and then you make the decision if you want to buy that shoe or a different shoe.
Speaker AIt's not the case with inpatient psych.
Speaker AYou end up at an emergency department.
Speaker AYou then are sent to a hospital that has a bed that is willing to receive you.
Speaker AYou don't even know the name of the hospital.
Speaker ASometimes it's not necessarily like they even ask you, is this the hospital you want to go to?
Speaker AIt's we found you a bed, so now we're going to transport you to this place.
Speaker AWe theoretically expect for profits to exploit those market failures, which is just to say to not be that motivated to care about care quality in the same way that they would if they had to really compete for business.
Speaker AThey're not really competing on quality, you know, because there's not consequences.
Speaker AAnd so this might look like for profits not investing in staffing in the same way that they would if there were more clear financial consequences, because it's rational.
Speaker AIf there's not any financial incentive for them to invest in their staffing, then why would they.
Speaker AIt becomes a tougher business proposition to truly invest in the patient experience of a hospital if it's not clear how that's going to financially benefit them.
Speaker AAnd if they think that they're able to make a lot of profits by keeping all of their beds filled at maximum capacity, even if it means having two to four patients in a given room where there could be conflict between patients, risk of violence, that might generate a lot of revenue, there is risk of lawsuits and there is risk of staff turnover.
Speaker ASo, but that's a calculation.
Speaker ABut the calculations might end up being in favor of, let's just sort of keep these beds filled, let's see how low we can get away with having thin staffing.
Speaker ALet's use a lot of medications, right?
Speaker ALet's keep patients mostly sedated then also we don't have to worry too much about conflict and staffing.
Speaker AIf everyone is sedated, you can see how that can lead to over medication and death and how that is in conflict with therapeutic evidence based models for violence prevention which are based in relationships and require the hard work of building trust with patients and being mindful of power imbalances.
Speaker AIt's potentially a lot easier and cheaper to just make sure everyone's on a sedative.
Speaker ATheoretically, we should all be concerned that there's been a rise in for profit in private equity ownership of psychiatric hospitals.
Speaker AThat that actually should just be our baseline.
Speaker AOur baseline should not be, I'm sure everything's okay, and, and until we're proven otherwise, we're just going to be very happy that now we, you know, we have more beds in our community.
Speaker AI think the assumption should be this is a setting with a lot of market failures.
Speaker AAnother word is extreme vulnerability of individuals.
Speaker AAnd why is there so much for profit and private equity investment?
Speaker AHow are they making their profits?
Speaker AAre they sacrificing care quality?
Speaker AThe argument for it is that they're able to be more efficient.
Speaker AThere's economies of scale.
Speaker AMaybe they're able to negotiate for higher reimbursement from providers because they are a more powerful organization.
Speaker AIf they own most of the hospitals in a network, then perhaps they are able to negotiate for higher reimbursement.
Speaker ASo I just want to sort of validate that.
Speaker AThat could be a mechanism empirically.
Speaker AAs a researcher, it is very hard to study a variation in care quality across psychiatric hospitals empirically.
Speaker AI'm a bit constrained in what I can say is the actual difference between the nonprofits and the for profits.
Speaker AI can say that nationally I've done some analyses looking at staffing.
Speaker AThe for profits have lower staffing ratios than the nonprofits.
Speaker AThat aligns with what we would expect.
Speaker AThey also have lower staffing than the government owned hospitals.
Speaker AThe same is true with private equity owned hospitals.
Speaker AThey have lower staffing.
Speaker AI did some research looking at complaints, regulatory complaints and use of restraint and seclusion in the state of Massachusetts.
Speaker AThe for profits in that state also had higher rates of complaints and higher rates of use of restraint and seclusion, which also makes sense.
Speaker ABut you can imagine, you know, a hypothesis being that maybe the for profits are actually targeting folks who have private insurance and who are maybe less complex.
Speaker AAnd there's evidence that at least the big corporate chains are making most of their profits from Medicaid.
Speaker AThese are people who are poor.
Speaker AThey are not making most of their profits from private insurance.
Speaker AIf we're talking about residential substance use treatment facilities, the opposite is true.
Speaker AResidential substance use treatments seem to be targeting out of pocket pay and private pay.
Speaker ABut with inpatient psych, they seem to be targeting Medicaid and poorer populations.
Speaker AIf you are working with a disenfranchised population who may already have low expectations for care quality, you might be able to get away with providing poor quality care to a greater extent and with less scrutiny and less pushback than if you were providing care to folks who are more well off in their families.
Speaker BThe takeaway that I hear from these differences in care quality between the nonprofit and the for profit hospital setting is that we can't simply assume that care facilities are doing the best for patients out there.
Speaker BBut it's important to have advocates in our lives, whether it be our friends or family members.
Speaker BAnd it's important to have a support system that will ask the questions to get you to the best care possible instead of just blindly following the system.
Speaker BI do want to take a moment though, because if you're listening to this, it all might sound quite daunting.
Speaker BAnd I want you to know that I'm also learning right beside you.
Speaker BAfter I posted part one, someone bravely commented this on YouTube.
Speaker BThank you so much for speaking out.
Speaker BBeing an inpatient back in 2008 was the most traumatizing and harrowing experience of my life, changed my perspective of the healthcare system and only led me down a rabbit hole.
Speaker BFor a long time, I was anti vax.
Speaker BAnd while I no longer hold those beliefs, I still stand by the fact that the psych ward broke me down and led to a fear of doctors that persists to this day.
Speaker BThis is just one person's experience, but it's a powerful one, and it's one where it can completely change the way you view healthcare and the people operating within it.
Speaker BWe want to trust our physicians, we want to trust the nurses, we want to trust the system.
Speaker BBut when you experience something like this, it's kind of difficult.
Speaker BWhat do we do first?
Speaker BAnd how can we serve this vulnerable patient population?
Speaker BI wanted to know simply what Dr.
Speaker BShields is researching to learn more about this unique patient experience and what opportunities there are to improve care qualities.
Speaker BThis is what she's currently working on.
Speaker AI'm finishing up publishing papers from an online survey that we did a couple of years ago, where data is lacking and it's almost impossible to go around and systematically recruit psychiatric patients in order to get at prevalence of experiences.
Speaker AWe did an online survey, so we just recruited a convenience sample.
Speaker AWe had about 800 responses.
Speaker AThese are all people who had been hospitalized in an inpatient facility within the previous few years.
Speaker AAnd we gave them a measure of patient centered care.
Speaker ASo this measure includes questions like, did you feel that you were involved in your care?
Speaker AWere you able to ask questions easily?
Speaker ADid you feel that you were respected and treated with dignity?
Speaker AWe also measured what is called institutional betrayal, which is inversely associated with patient centered care.
Speaker ABut institutional betrayal is a concept developed by Professor Freed, who is at a university in Oregon, and she's a clinical psychologist.
Speaker AAnd it's basically this concept that when a.
Speaker AWhen an individual is dependent upon an institution to protect them, and that institution fails to protect them or even causes harm to them, that the psychological impact can be profound, especially if there's no sort of attempts by the institution to apologize or to make amends with the individual.
Speaker AAnd so inpatient psychiatry is a setting where patients are very vulnerable and they are very dependent on the institution to protect them.
Speaker ASo this concept, this institutional betrayal concept, seems to fit really nicely with the setting of inpatient psychiatry.
Speaker AWe had a measure of institutional Betrayal.
Speaker AWe also looked at COVID 19 mitigation strategies.
Speaker AThat's its own paper that's been published.
Speaker AWe were really interested in understanding the relationship between patient centered care, institutional betrayal and whether the patient reported that their hospitalization reduced or increased their trust in mental health care providers, reduced their willingness to engage in post discharge care, whether or not they had a 30 day follow up visit, post discharge, et cetera.
Speaker AWe also looked at variation across ownership.
Speaker AWe linked these data to secondary data on facility characteristics to see is it the case that patient centered care, if that's really the nucleus of care quality, is it the case that folks who had been hospitalized at a for profit had lower patient centered care and higher betrayal than folks hospitalized at a nonprofit?
Speaker AAnd basically what we find is very, it's intuitive, it's an alliance with theory.
Speaker AThere's a strong relationship between their experience of patient centered care or institutional betrayal and all of those outcomes I mentioned.
Speaker ASo trust and willingness to engage, 30 day follow up and patient centered care was lower at for profits and institutional betrayal was higher at for profits compared to nonprofits.
Speaker ASo that provides some evidence beyond, you know, our existing measures of care quality are so limited.
Speaker AAnd so this was the first time we were able to demonstrate that there is a relationship between experiences of patient centered care and these outcomes and that these experiences differ between for profits and nonprofits.
Speaker AThere is now empirical evidence for that.
Speaker AAnd then in the same survey we did ask people in a free response box, what are your suggestions for care improvement?
Speaker AA really simple question.
Speaker AAnd we had over 500 responses.
Speaker ASo it's a lot of qualitative data to analyze.
Speaker AMost people did not actually write suggestions.
Speaker AIf they did, it was anything, that's the opposite of what I experienced.
Speaker AAnd then they, they took it as an opportunity to share their story.
Speaker ASomething that I have found in my research is that folks who have lived experience really want to be heard, they really want to share their experience.
Speaker AAnd they feel like there isn't an outlet to share their experience and to be believed and to be taken seriously.
Speaker ASo I find them to be very engaged in our research projects.
Speaker AAnd with this particular question, we did have essays from participants where they were just describing that, you know, their experience in these narratives.
Speaker AAnd so we wrote a paper and published that this year.
Speaker AIt's in the Journal of Patient Experience where we describe that text.
Speaker AAnd it was a tricky thing to try to frame since we were asking for suggestions for improvement.
Speaker AWe kind of framed it as opportunities for quality improvement through the perspective of former patients.
Speaker ABut it is, you know, what we might expect really investing and improving relationships within these facilities, respecting patients rights and autonomy, improving continuity of care and efficiency of systems, information sharing.
Speaker ASo actually answering patients questions and telling them what medications they are being given and a step beyond that is actually engaging in shared decision making with patients regarding medications.
Speaker ABut a lot of folks I speak to and who we sort of interview in our research say, I have no idea what meds I was given and nobody told me what meds I was given.
Speaker AAnd so that's, that's at.
Speaker AThat's a very low level.
Speaker ALike, so to actually get to shared decision making is.
Speaker AIs many steps above that is we have people who said, I just wish I knew.
Speaker ANo one would answer my questions.
Speaker AThis feeling of being treated like you're less than human, that you're a piece of trash.
Speaker BCan you imagine being treated like this or feeling like you're less than as a patient within the inpatient psychiatric setting?
Speaker BNo one wants to feel this way.
Speaker BI wanted to know, is there a way that after gathering all of this research to provide recommendations to improve care quality?
Speaker BAnd if there is, who do you provide these recommendations to?
Speaker BIs there a dance you have to do to make sure you don't quote, unquote, upset someone who works in these types of facilities?
Speaker BHow do you make someone listen or even simply have a conversation around it?
Speaker AI have not thought about sending out recommendations to individual inpatient providers.
Speaker AI have found that even having a conversation with inpatient clinical leadership, who are often psychiatrists, can be really tricky because they're on the front lines.
Speaker AI'm sort of an outsider.
Speaker AI don't really want to come across as though I'm telling them how to do their job.
Speaker AThat triggers pretty extreme defensiveness.
Speaker AAnd they basically see people at their most extreme state.
Speaker AThey don't always see the continuum of services or a person's life and what is possible.
Speaker AUnfortunately for folks working within these types of facilities for a long time, they have almost become institutionalized in their thinking.
Speaker AI find when I try to gently report back to people in leadership positions, there's extreme defensiveness.
Speaker AAnd I'm not someone who goes into these conversations and says, I think we should burn down all of the hospitals.
Speaker AI try really hard to be diplomatic and to validate that they have their own expertise that I don't have and that this can be a really hard job when people are in crisis.
Speaker ANow, working with people in crisis can be really hard and not always fun.
Speaker AAnd burnout is real.
Speaker ABut for me, a group that I want to prioritize providing Feedback reports to are folks with lived experience.
Speaker ASo my actual participants in my studies, following up with them and saying, here's what we found, let me know if you disagree with our conclusions.
Speaker AAnd reporting back to that community in different outlets.
Speaker ASo the news sources that maybe folks in that community might be reading, sharing on social media and trying to have conversations with policymakers, they're sort of another audience and payers.
Speaker BIt's not surprising to me that inpatient clinical leadership in these facilities would be defensive if they were to hear recommendations coming from an outsider OR researcher like Dr.
Speaker BShields.
Speaker BShe isn't working day and night within these settings, even though she was a patient at one point in her life.
Speaker BThe remarkable thing that she's doing though is sharing her findings with participants and patients that she's interviewed.
Speaker BTo me, this supports and validates these individuals to know that they simply weren't alone.
Speaker BAnd maybe these facts could even trigger greater grassroots organizations that can fight for change in the future.
Speaker AWe do have in this country what is called P and A organizations.
Speaker APNA stands for PAIMI and basically they protect patients rights.
Speaker AAnd PAIMI was created, I believe in around 1986 or so, maybe it was 1988, to protect people who were in institutional settings, people with serious mental illness, quote, unquote.
Speaker AAnd they are mandated to exist in every state and they have special authority to enter inpatient psychiatric hospitals and to obtain patient records and to observe what's going on.
Speaker AThey oftentimes are legal firm firms.
Speaker ASo like they are advocate through law.
Speaker AAnd I think that they are a very powerful mechanism that could be leveraged.
Speaker AThey are on the ground, they because they have access to psychiatric hospitals and they hear from patients who've had their rights violated.
Speaker AAnd so I think that they are a potential powerful mechanism that we could leverage, we could think about funding them better.
Speaker ABut that they have been the target by folks on the other side of the advocacy spectrum have targeted them and have tried to advocate for defunding them because the argument is they care about patients rights.
Speaker AWe need to defund them because they're getting in the way of being able to intervene and use involuntary methods.
Speaker ASo the polarized advocacy landscape actually has very real world implications that can be very messy, very unfortunate.
Speaker ABut I did want to just give a shout out to the PNAS because I think that they're doing really hard work and they, they technically are doing conditions work.
Speaker ARight.
Speaker AAnd so they, they are an exception.
Speaker BWe're coming to the end of these conversations with Dr.
Speaker BShields and she has given us a lot to think about for example, how people have very different views in terms of reforming inpatient care, from adding new beds to the view of deinstitutionalizing the system and seeking out other types of services.
Speaker BInstead we learned about peer respites and even how care quality could be quite different if you were admitted to a for profit versus non profit psychiatric setting.
Speaker BBut most of all, I think these conversations further solidify the notion that these issues are so complexly nuanced in a way that necessitates that something should and must be done.
Speaker BThe work that Dr.
Speaker BShields is doing is without a doubt crucial, but we do need the backing of more grassroots organizations and people who want to speak out to continue to do the work.
Speaker BThe last thing I wanted to ask Dr.
Speaker BShields was really, what does she hope that people who have gone through an inpatient psych experience or even had family members who have personal experiences take away from these conversations?
Speaker AI would love for them to take away that if they have had negative experiences that they're not alone and that there are many people who believe them and who have also had very negative experiences and that that is not right and they did not deserve that at all.
Speaker AAnd that I hope they're able to meet other people who also have lived experience who can help validate that for and potentially even mental health professionals.
Speaker AI know of many mental health professionals, they tend to be social workers or clinical psychologists.
Speaker ABut I also know psychiatrists who get this and who know and I know that sometimes you need that validation from a professional.
Speaker AAnd so my wish is for folks listening that they have that opportunity if they want it.
Speaker ABut they're also valid in not wanting to engage in our healthcare system at all.
Speaker AI do, I just want to point that out.
Speaker AThat is a valid reaction to a very unjust experience that one might have.
Speaker AAnd if you've had really fabulous experiences while inpatient, that is also valid.
Speaker AAnd for folks who have had extreme states psych like psychosis or mania, what's tricky here is this recognition that sometimes medication is needed and sometimes you do need some sort of intervention that potentially a little bit more forceful depending on where you're at with, with your, your thinking and your reality.
Speaker AAnd, and so I don't want anyone who's feeling like, well, but I really needed someone to intervene and I wasn't in my right mind to, to think that I'm invalidating that, that that is a reality.
Speaker ABut just to say I think we can go about this in ways that are more humane and more humane for more people rather than there just being, you know, the exceptions like, oh, I once had a good experience or I know someone who had a good experience, it should be more of the norm and the exceptions really should be the negative experiences.
Speaker ABut it seems that it is the inverse right now and that that's, you know, really not okay.
Speaker BI want to thank Dr.
Speaker BShields for spending this valuable time to speak with us about her work, her passions, and her experiences.
Speaker BIf you resonate with anything that was said in this episode or last week's episode, please please comment below.
Speaker BIf you're watching or listening on YouTube or Spotify.
Speaker BIf you're listening anywhere else, please feel free to email me@hatallobalhealthpursuit.com any questions, comments or even concerns are totally welcome.
Speaker BI'll link all the resources mentioned in the show.
Speaker BNotes this episode was researched, hosted, produced, edited all of the above by me.
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