We're all so lucky to have each other. I do want to share something that
Speaker:I've been hearing in my work with Heart valve Voice at these conferences I've
Speaker:been attending. Mental health is starting to get a buzz
Speaker:post treatment mental health. We're really trying to get
Speaker:the buzz going because it is a common theme
Speaker:in all the patients I talk to and no one is made aware
Speaker:of the potential mental processing that you need to
Speaker:do after you go through any type of a
Speaker:treatment that, you know, we all process differently.
Speaker:Welcome to Open Heart Surgery with Boots. I am
Speaker:your host, Boots Knighton and I'm excited to
Speaker:bring back Robin Peacock today for our
Speaker:Hope for the Holiday series. This has been such a
Speaker:great series. If you're just now finding us, welcome.
Speaker:I am honored that you have found this podcast and it
Speaker:is such a privilege to bring this
Speaker:to heart patients every week. And so please do find us
Speaker:on social media. You can find me on LinkedIn, go back and
Speaker:listen to previous episodes. I'm building a spoken
Speaker:library for heart patients and their caregivers
Speaker:and healthcare providers. So thank you for being part
Speaker:of this podcast. But today I am
Speaker:so happy to bring Robin Peacock, who has become a friend of
Speaker:mine, back to give us an update on her
Speaker:bicuspid journey. Robin, you are such a
Speaker:force of nature at 61 years old and
Speaker:you are thriving. You're giving back to heart
Speaker:patients. It really is amazing to
Speaker:see some heart patients just go about with their
Speaker:lives and that's fine. We're all here to do different things in the
Speaker:world. But you have made it a mission now to serve
Speaker:fellow heart patients like myself. And so it was just a no brainer
Speaker:trainer to bring you back for the series. So welcome.
Speaker:Thank you, Boots. It's, it is my pleasure to come back
Speaker:and just knowing you has enriched my life. And I'm just
Speaker:like I've told you, I'm in awe of what you're doing for all heart patients
Speaker:around the world and letting everyone have access to
Speaker:all these great interviews. It's just I enjoy listening to them and so
Speaker:thank you. So here we are a year later. I think I was on your
Speaker:show a year ago and just to give a brief overview
Speaker:of my journey, in 2007, I
Speaker:was diagnosed with an ascending aortic aneurysm and a bicuspid
Speaker:aortic valve. And I was watched for, you know,
Speaker:the next 15 years until my valve became severely
Speaker:stenotic, aortic stenosis. And I started feeling horrible.
Speaker:I started having extreme fatigue six months leading
Speaker:up to the surgery and my brain fog, you know,
Speaker:definitely I was forgetful and tired, and I just
Speaker:felt like I was 30 years older and I didn't understand what was
Speaker:happening. I ended up having surgery in June of
Speaker:2022. Now, really quick going back in 1998,
Speaker:when I was pregnant with my first child, they heard a murmur. And
Speaker:in the 90s, mitral valve prolapse was kind of a
Speaker:thing that people were being diagnosed with when they heard a murmur. So I was
Speaker:diagnosed with that. I did not have that. They missed the bicuspid
Speaker:valve, and they missed the aneurysm. So two full
Speaker:cardiac workups in 1998 and 2002, they missed
Speaker:it both times. And so it wasn't until I did a coronary
Speaker:calcium scan in 2007, and that's how it was
Speaker:diagnosed. That's where they found the aneurysm. And then
Speaker:through that, we found the bicuspid valve. So that just kind of brings you up
Speaker:to speed to 2022. 2022, I had open
Speaker:heart surgery at Cedars Sinai. It was super successful. I have
Speaker:recovered 100% physically, mentally.
Speaker:It's something that I think what I'm learning two and a
Speaker:half years out, I thought that I was one and done, and I had recovered
Speaker:and moving forward. And recently I participated in a
Speaker:therapeutic support group, and they brought me to tears because I
Speaker:think I still have some reconciliation to do about the magnitude of
Speaker:what I went through. And I'm a super positive,
Speaker:upbeat person, and I think I'm not allowing myself to
Speaker:feel some of the fear that I think
Speaker:I need to process now. So I'm. That's kind of where I'm at in,
Speaker:you know, the end of 2024. I'm starting to feel like I need
Speaker:to do some more introspection, some more therapy, work
Speaker:on kind of releasing. The fear of what
Speaker:I went through never allowed me to have. Never allowed it to happen.
Speaker:So, anyways, that's kind of where I'm at now on the
Speaker:mental side. Physically, I'm great. Physically, I'm great. I go for my
Speaker:checkup next month, and I'm looking forward to another
Speaker:great echo and another year of no
Speaker:appointments. But the greatest thing. Can I just share with you what I'm
Speaker:so excited, and I know you know about it, Boots, but I'm so excited to
Speaker:share with all of your listeners, is that through this journey, I
Speaker:have found a new purpose. I have found something that gives
Speaker:me such great fulfillment. And
Speaker:I am so excited to wake up every day because I get to Talk to
Speaker:patients. I get to go out and reach out to people. I accepted a
Speaker:role with Heart Valve Voice Us, and I am the director of patient
Speaker:engagement, which means I get to go out and talk to people. I get
Speaker:to listen to stories, I get to share resources,
Speaker:I get to make connections. And
Speaker:it's so fulfilling to me. I've always been in the
Speaker:nonprofit world and now focusing on
Speaker:heart health and women heart health, men heart
Speaker:health. It just makes me so happy when I hear someone
Speaker:come back to me and say, oh my gosh, I shared your story with
Speaker:my neighbor. And she ended up getting an
Speaker:appointment because she wasn't feeling well. And she's
Speaker:now, you know, having tavr because her valve was failing
Speaker:or. I just love it. I just absolutely love
Speaker:that I get to be out in the world meeting people and talking
Speaker:to people. And I feel like, I mean, I was super
Speaker:grateful after my open heart surgery in terms of just
Speaker:getting my, quote, second heart start is what I've always called it. But
Speaker:now I just feel like I'm. There's a reason
Speaker:why my heart got started the second time,
Speaker:and I get to just be out there and listen and help
Speaker:others through their journey. A lot of people I speak to are newly
Speaker:diagnosed and there's a lot of fear and
Speaker:uncertainty. And so between
Speaker:our other organization, Women Heart and Heart Valve Voice,
Speaker:you know, I pretty much have all bases covered. I can talk to people all
Speaker:over the country, all over the world, and just be a
Speaker:shoulder for some people. Yeah, so it's, it's super
Speaker:exciting. So there's, there's kind of where I'm. At today, and you turn
Speaker:into a glow bug when you talk about all of that. So it's very obvious
Speaker:that you are in your purpose. And, you
Speaker:know, it's interesting. I'm glad you bring up that. Processing the
Speaker:fear piece. Through my own journey of
Speaker:processing a variety of traumas, physical
Speaker:traumas in my life, what I've noticed is when an
Speaker:emotion is ready to be processed, it comes up.
Speaker:And when I think about facing heart
Speaker:surgery, you know, you and I and those listening
Speaker:who are going through the same thing, we don't have time
Speaker:necessarily to feel all our feelings because we're trying to
Speaker:survive. We, you know, we have to get to right to
Speaker:business of surviving, then healing. And
Speaker:then there's the expectation that we're going to
Speaker:return to our lives and get on with our lives.
Speaker:And I want to give permission to
Speaker:a feel whatever's coming up, but be just
Speaker:recognized that 2022 wasn't that long
Speaker:ago. No, no, you make a great
Speaker:point. And the emotion will come up when it.
Speaker:When you're. When it's ready or when you're in. A space to feel
Speaker:it, when the soul, the body, feels safe. And so
Speaker:you just mentioned all these incredible people that you get to.
Speaker:To mentor and network with. And
Speaker:you're working for Heart Valve Voice. We're heart buddies.
Speaker:You've made heart buddies through other avenues. And
Speaker:so, dare I say it, your body is probably finally
Speaker:feeling safe enough to allow that fear to come up.
Speaker:That's. That's good. When I'm in a room filled with
Speaker:heart patients, it does feel safe. It's very
Speaker:interesting you bring that up. I know we just saw each other at the Mayo
Speaker:Clinic for the symposium. And one of the
Speaker:things I always come away from those meetings is
Speaker:I'm surrounded by people who get it. And it's
Speaker:very therapeutic to listen to other stories and how they
Speaker:overcame certain things and how they processed.
Speaker:And we're all in this life together.
Speaker:And I don't know, there's just such value to
Speaker:be able to share stories and to listen to other stories
Speaker:and be able to kind of help process your own
Speaker:journey. It's definitely helpful. So that's a. That's interesting
Speaker:you say that. That it's because. Remember my. I think I said
Speaker:it in the first episode, all Faith, no fear.
Speaker:May 6. I was told I was having surgery in 30 days, and I just
Speaker:went on this high plane of all faith, no fear. And I just didn't allow
Speaker:it. I had no other option, no other choice. I had to get
Speaker:to business, like you say, I had to get through open heart surgery. I had
Speaker:to survive it. I had to prepare my family. I had to prepare
Speaker:the household. For me to be, you know, not able to
Speaker:maintain it for a month or two, there was just so much to do. I
Speaker:went on this higher plane, and I do. I do believe in God, and
Speaker:I do believe that he and the angels were with me. And so
Speaker:that is a very big part of my story, is my
Speaker:faith. But I. Interesting. I am in a
Speaker:much safer space now. You are correct, and I'm
Speaker:so grateful. And that's one of the many purposes of this
Speaker:podcast, is also to provide a safe space. Right. And
Speaker:so we helped you tell your story
Speaker:a year ago, and that started you on a really
Speaker:interesting path. But then reaching out to other heart patients,
Speaker:and if I may pat myself on the back here,
Speaker:you're not the only heart patient that I've helped find.
Speaker:Like, several heart patients have found their purpose through this
Speaker:podcast. And that is what this is all about. It's
Speaker:like we are going to carry each other
Speaker:over the finish line of open heart surgery because we
Speaker:can't expect the medical community to do it for us. Yes,
Speaker:they can save our lives. They can fix our valves and our
Speaker:myocardial bridges and clogged arteries, and thank
Speaker:goodness for that. But then we have to hug each other
Speaker:afterwards. We have to help with the mental spiritual part that
Speaker:the, that the Western medical community just isn't trained to do, nor do
Speaker:they have the time or the bandwidth. We need to know what we're getting
Speaker:when we go there. And it's not necessarily an empty well for
Speaker:water, but it's close. Right. And so. Right. Just enough
Speaker:to quench our thirst, Just enough to save our lives. And then,
Speaker:and then this podcast, Heart Valve Voice,
Speaker:Women, Heart achd, American Heart association,
Speaker:all these other nonprofits are, are here to
Speaker:help educate us and help us, teach us how to advocate for
Speaker:ourselves. You know, that's absolutely. A hundred percent. That is.
Speaker:You know, one of my greatest takeaways is because, you know,
Speaker:my husband calls me the hypochondriac who's always right. Because I'm a
Speaker:huge advocate for myself and I
Speaker:pursue it until I'm satisfied with the answer or satisfied
Speaker:that I've pursued enough of the options out
Speaker:there, not just for open heart surgery, but for anything that I've experienced over
Speaker:my life. You know, definitely, I am the expert on me.
Speaker:So we're also lucky to have each other. I. I do want to share something
Speaker:that I've been hearing in my work with Heart Valve Voice at these conferences
Speaker:I've been attending. Mental health is starting to get a
Speaker:buzz post treatment. Mental health. We're
Speaker:really trying to get the buzz going because it is a
Speaker:common theme in all the patients I talk to.
Speaker:And no one is made aware of the potential
Speaker:mental processing that you need to do after you go
Speaker:through any type of a treatment that, you know,
Speaker:we all process differently. So what. What affects me might not
Speaker:affect you. And. But there is a mental health buzz starting, and
Speaker:I'm super excited about it because I'm bringing it up with
Speaker:every physician I talk to, every conference I attend. Like, well, what about
Speaker:the mental health piece after you see the patient? Are you referring. Is
Speaker:there a questionnaire? Can we develop a questionnaire? Can we start a
Speaker:module to train on, you know, a CME
Speaker:basis to look out for certain things?
Speaker:Yeah. And I know when I was pregnant with my second
Speaker:child, I went through a Super deep postpartum depression after
Speaker:I gave birth. And thankfully, my OB was trained in
Speaker:the signs and called me in because
Speaker:he knew something wasn't right and I didn't
Speaker:see it at all. And I'm so grateful that he had
Speaker:that training is what I'm saying. And I think if we can continue to work
Speaker:in the cardio world for that training, that would be great. And
Speaker:that's a great segue. To wrap this up is to wrap up the
Speaker:series. I interview Dr. Laura
Speaker:Suarez Pardo, who you and I had the pleasure of
Speaker:meeting at the Mayo Clinic together. Oh. And
Speaker:she and I. I've already interviewed her. I'm going to air
Speaker:it in December of 2024. And we
Speaker:had a brilliant conversation on the
Speaker:connection between mental health and cardiovascular
Speaker:outcomes. And so I thought that would be a great way
Speaker:to bookend Hope for the Holidays. Oh, I'm so
Speaker:excited. It's a brilliant conversation. So for
Speaker:those listening, you know, in real time, her
Speaker:episode comes out after this one, so be
Speaker:sure to be looking out for, if you haven't already subscribe to the
Speaker:podcast number one, and then number two, then be
Speaker:looking for that episode. And you know what? Not only is
Speaker:she just brilliant, but just the nicest human
Speaker:and is really, really deeply
Speaker:invested in our mental health. We heart
Speaker:patients. And it shows. So
Speaker:fantastic. That gave me hope for the holidays.
Speaker:Good, good. Holidays are hard. They're not easy.
Speaker:Golly, get me through these things. But when January
Speaker:2nd rolls around, I'm, like, made it through another one.
Speaker:Hallelujah.
Speaker:Well, Robin, any, like, quick advice you'd like
Speaker:to give heart patients now that you've had a year to reflect since
Speaker:our last recording? Listen to your heart,
Speaker:listen to your body. I mean, that's, that's. We can't drum
Speaker:that loud enough and we just can't. Just
Speaker:listen to yourself and trust yourself, trust your gut, trust that you
Speaker:know something is off. I just heard someone yesterday talking about sharp
Speaker:pain between her shoulder blades, and she knew
Speaker:something was off. And sure enough, something was off.
Speaker:And you just know, you have an instinct, you
Speaker:know? So please, please, please listen. And I hope everyone
Speaker:takes good care of themselves for the next year and every year after that.
Speaker:Thanks, Robin. Thanks for coming back. Thank you. It's always good to see you. All
Speaker:right. Happy holidays. Yes, and thank
Speaker:you, listeners. Like I said, be sure to tune in
Speaker:for as the series wraps up. And then I'm going
Speaker:to re air a couple of episodes episodes to round out 2024,
Speaker:the ones that have been downloaded the most in 2024. So
Speaker:our greatest hits. And I want to thank
Speaker:listeners in Peru, Lebanon
Speaker:and Paraguay. I've been on the Apple
Speaker:charts all the way up to number four in Paraguay,
Speaker:actually just this week. And so I am seeing you in
Speaker:Peru, Lebanon and Paraguay way. Thank you for finding me. I'm
Speaker:so glad you're here. Do let me know what you need in those
Speaker:countries. You can send me an email bootsheartchamber
Speaker:podcast.com and most importantly,
Speaker:know that you aren't alone. I love you and your
Speaker:heart is your best friend. Come back next week.