Where did my mother go?
Speaker AIt's a question that so many adult children ask when Alzheimer's slowly reshapes the person they've always known.
Speaker AOne day she's laughing at an old family story, and then, over time, she doesn't remember your name.
Speaker AThe relationship shifts in ways that feel impossible.
Speaker AGrieving someone who's still right in front of you, Navigating the daily heartache of change.
Speaker AIn today's episode, we're diving into the emotional and practical challenges of caring for a loved one with Alzheimer's.
Speaker AHow do you cope with this transformation?
Speaker AHow do you stay present when everything feels like it's slipping away?
Speaker AAnd most importantly, how can you support both your parent and yourself in a way that honors the love you've always shared?
Speaker AMy guest today brings insight, experience and guidance for finding steadiness in the midst of the unknown.
Speaker ASo let's get into it.
Speaker AWelcome to Boomer Banter, the podcast where we have real talk about aging well.
Speaker AMy name is Wendy Greene and I am your host and my guest today.
Speaker AJessica Smith is a care partner and advocate for her mother Patty, who has been living with Alzheimer's and Lewy body dementia since 2014.
Speaker AJessica is very passionate about dementia education and how mindfulness supports the caregiver.
Speaker AThe guiding principles Jessica employs in caring for her mother stem from her work as a meditation teacher and as a student of Eastern philosophies.
Speaker ACompassion, presence, impermanence and going with the flow.
Speaker AThese tactics help her show up for her mom consistently while remaining tethered to peace.
Speaker AWhile they do not live in the same state, Jessica lives in North Carolina.
Speaker AHer mom is in Florida.
Speaker AThey see each other very frequently and for long stretches at a time.
Speaker AThey also speak daily and Jessica helps her stepdad make the difficult day to day decisions that he's faced with.
Speaker ATogether with Jessica's husband Ken, the three of them serve as her mom's constellation of support.
Speaker AJessica has studied mindfulness and meditation with many esteemed teachers including Ram Dass, Sharon Salzberg, Michael Singer, Jack Cornfield, and Joseph Goldstein.
Speaker AShe also recently went through training to become a death doula, studying with Alua Arthur at Going With Grace.
Speaker AAnd if you'd like to learn more about the topics that we talk about here on Boomer Banter, then sign up for the Boomer Banter newsletter.
Speaker AReal Talk about Aging well.
Speaker AWe cover topics like finance, relationships, health and purpose and they're told in little bite sized stories.
Speaker AThings that you can try to implement right away.
Speaker AYou can sign up right now by going to Bitbit Ly Navigate Aging.
Speaker ASo hope to see you there.
Speaker AAnd now I would like to welcome Jessica to our program.
Speaker AHello, Jessica.
Speaker BHi, Wende.
Speaker BHow are you today?
Speaker AI'm great.
Speaker AAnd I so appreciate you joining us for this very important conversation.
Speaker BIt's my pleasure.
Speaker BI'm.
Speaker BI love talking about this topic.
Speaker AWell, let's start at the beginning.
Speaker AHow you've been, like, traveling this journey since 2014.
Speaker BYeah.
Speaker BSo, you know, initially I started noticing some changes with my mom in 2012, 2013, and, you know, I kind of kept them close to my chest at first.
Speaker BAnd then I started sharing my concerns with other family members and letting them know I thought something was up.
Speaker BTook quite a bit of convincing, but we finally got some other family members on board and presented what we were thinking to my mom, who, of course, naturally, was very resistant at first, understandably.
Speaker BYou know, no one wants to be told that they think they're sick and, you know, so it took a lot of coaxing, Many, many family meetings.
Speaker BWe finally got my mom to a doctor, and in 2014, she was diagnosed with early onset Alzheimer's disease.
Speaker AHow old was she?
Speaker BShe was 60.
Speaker B60 years old at that time.
Speaker BSo very young.
Speaker AYep.
Speaker BIt was later in our.
Speaker BMuch, much, much later in our journey, 2024, over the summer, when she was diagnosed with a secondary diagnosis, which is Lewy Body dementia, which has been present the whole time, now that I know the symptoms of that dementia.
Speaker BBut we just got that clarity last summer, so.
Speaker ASo, I mean, that had to be hard for you, too, to see your mom start down this journey.
Speaker ASo what's that emotional toll been like for you?
Speaker BI would say the first emotions that I sensed about all this were confusion.
Speaker BConfusion and uncertainty as to where to start, who to go to, what to do.
Speaker BYou know, it was funny, really interesting timing, but in 2013, my employer had someone from the Alzheimer's association come and speak to our office.
Speaker BYeah, it was just phenomenal timing.
Speaker BI actually could not believe it.
Speaker BI felt like it was kind of like looking back, I feel like it was a little gift from the universe, gift from God, to be like, okay, here's a path.
Speaker BCheck this out.
Speaker BYou know, I learned quite a bit from that person.
Speaker BAnd that took my confusion and sort of morphed it into a sort of action.
Speaker BNow, I'm the oldest of three.
Speaker BI'm the oldest of three girls.
Speaker BI am a woman that is very much like my mother.
Speaker BPatti is a very determined person, and she does not back down.
Speaker BSo I wasn't scared of this person.
Speaker BI have had scary times along the journey but at the beginning, that confusion just turned into action and I just wanted to get my mom some help and support and learn more about this.
Speaker BSo, you know, at first it wasn't, it wasn't too overwhelming for me from an emotional standpoint.
Speaker BBut as this disease progresses and anyone who has someone that they know or love living with dementia will tell you, things definitely get more intense as this disease progresses naturally.
Speaker BYou know, it's a degenerative disease of the brain.
Speaker BParts of the brain just stop functioning the way they once did.
Speaker BAnd there's a lot to face emotionally as a daughter, as a loved one.
Speaker BSo you start to get a sense that time is sort of slipping through your fingers.
Speaker BSo I would say that is something that came pretty early on that I quickly turned into again, sort of like a motivation.
Speaker BAnd that motivation was to spend as much quality time with my mom as possible.
Speaker BAnd that's the reason for my involvement.
Speaker BEven though I'm states away, that's the reason why I show up for my mom and my stepdad in the way that I do.
Speaker BBecause as you mentioned, I went through my death doula training and one of my things about dying is I living.
Speaker BI don't want to have any regrets.
Speaker BSo through that analysis, I was like, you know what, I'm just, I'm going to be here with her, even if it's uncomfortable, even if it's hard, and I'm going to walk through this journey with her.
Speaker AYeah, and you have a full time job too.
Speaker ASo how are you, how are you balancing time with mom and time with your job and time with your husband and helping your stepdad?
Speaker AAnd it's a lot.
Speaker BI would say what keeps me going and keeps me centered through all of this are my mindfulness practices.
Speaker BI do just a few minutes of meditation in the morning, a few at night.
Speaker BCurrently I have a yoga practice that I am strict about staying on top of.
Speaker BI just try to remember that through all of this, even though I am walking this journey with my mom, what is of utmost importance is my own health and well being.
Speaker BEven though a lot of people in my life demand things from me or I like to give parts of myself to other people, ultimately, if I'm not tending to my own needs and my own well being, I'm not going to have anything to give anyone else.
Speaker BAnd it sounds kind of cliche, you know, the whole you put your mask on first and then put the mask on others on the airplane, you know, it is sort of cliche, but there is so much truth to that because Sincerely, if.
Speaker BIf we're depleting ourselves, there's nothing left to give anyone else.
Speaker BSo I really just focus on tending to my own needs, no matter how big or small those are.
Speaker BIf that's.
Speaker BI need to not call my mom one day, you know, I won't call them one day.
Speaker BIf it means when I go to Florida, if I have to shorten my trip by two days because I have other commitments or just because I need to rest, that's what I need to do.
Speaker BI try not to let the sneaky thoughts of, oh, you're not doing enough, or oh, you could do more, take over.
Speaker BBecause we all could be doing more.
Speaker BWe could all be giving more of ourselves to others.
Speaker BBut the relationship we have with ourselves is ultimately, in my view, the most important one and spills out into everything else we do in life.
Speaker AYeah.
Speaker ASo I want you to expand on that.
Speaker AThat's the self talk and the self awareness and.
Speaker AAnd so expand on that a little bit.
Speaker BAbsolutely.
Speaker AIn ways that could help the audience.
Speaker BTotally.
Speaker BSo, you know, we all have this chatter that's going on in our mind that is judging everything outside of us based on our senses.
Speaker BSo we see something, we judge it, we are experiencing something, we have a commentary about it that's going on in our mind.
Speaker BWe may have woken up on this Monday morning and thought, ugh, you know, the, the week is too short.
Speaker BRight.
Speaker BWe all have this.
Speaker BAnd the practice of awareness allows us to clearly see there are thoughts that are always telling us how we're experiencing this life.
Speaker BRight.
Speaker BWe're always with this, this is always going on.
Speaker BThis voice, this chatter, this non stop talk is also to ourselves.
Speaker BIt's the voice that says, you know, you can't do that.
Speaker BYou know, it's the voice when you're working out and you're on your third set of crunches or something.
Speaker BNobody loves core exercises.
Speaker BOkay, you're on your third rep.
Speaker BIt's that voice that says, I can't do this.
Speaker BIt's that voice where you're in traffic and you're like, ugh, all this traffic, this is so annoying.
Speaker BWithout considering that you too are the traffic.
Speaker BIt's that voice.
Speaker BIt's that voice, Wendy.
Speaker BAnd you know, we, we have to bring awareness and begin to notice what that voice is doing, because that voice is our reactions and our responses to ourselves and to life.
Speaker BSo when we begin to notice what that voice is saying, we start to understand, wow, I'm pretty hard on myself.
Speaker BWow, I'm pretty hard on others.
Speaker BWow, maybe I would like to bring some more compassion to my own life, to myself, you know, or maybe I just want to believe in myself.
Speaker BAnd instead of saying I can't do this or I can't deal with this feeling of discomfort that dementia is making me face, maybe instead we notice that habitual pattern pop up in our mind.
Speaker BMaybe instead we say, you know what?
Speaker BNo, I can handle this.
Speaker BAnd it's not a toxic positivity situation.
Speaker BDon't get me wrong.
Speaker BNoticing yourself talk and bringing awareness to this non stop chatter in our mind is not to forego any feelings that we have by any means, but it's to start to realize that there is the tiniest bit of control that we have over how we're perceiving this life and how we're speaking to ourselves.
Speaker BAnd there's a lot of power in that, Wende, you know, but most of us, just to no fault of ourselves, we were, most of us weren't taught this.
Speaker BYou know, most of us don't even know that voice is happening until we take a minute and we say, what is that?
Speaker BShe's right.
Speaker BAnd you really start to notice this if you start to employ a meditation practice because you're sitting there in the silence with your thoughts and they're coming up and they're coming up and you're like, wow, I'm kind of rough on myself.
Speaker BSo that's a way that I have really been able to prioritize my well being is just by getting a handle on what's going on in here, in my inner environment.
Speaker BThe place that only I live, just like the place that only you live, Wende is completely different.
Speaker BAnd you're the only one experiencing that and knowing what's going on in there.
Speaker BSo it's good to bring some curiosity to that.
Speaker AYeah.
Speaker AAnd I like what you said, Jessica, about the voice doesn't go away necessarily, but we become aware of it.
Speaker AAnd just to be able to say to ourselves, wow, I'm really hard on myself.
Speaker ALike you go into this situation, situation, you're really going to try and be, you know, more compassionate or calmer or more peaceful or whatever it is that you feel like you need to do when you're caring for someone and you don't, it doesn't work, right?
Speaker BBecause I mean, we're human beings and we've been reacting mindlessly for, for however many decades, however many years.
Speaker BYou know, I'm in my mid-40s, you know, I didn't start paying attention to this voice for it's been maybe 10 years, but I Had been training myself to just react to that voice and react to my thoughts, you know, prior to that.
Speaker BSo, you know, it takes a long time.
Speaker BAnd not only that, but one of my teachers, Ram Dass, says, you know, if you think you're enlightened in any sort of way, go spend a week with your family.
Speaker BBecause, I mean, but that is the reality of life, you know, is our family just knows these triggers intentionally.
Speaker BI do it to my sisters, you know, and I always.
Speaker BMy husband, like, what?
Speaker BWhy do you think that of me?
Speaker BWhere I'm coming from a different place.
Speaker BBut anyway, it's true.
Speaker BIt's just.
Speaker BIt's more difficult when it comes to our family and those we're closest to.
Speaker AYou know, it's so true.
Speaker AI love that I'm going to remember that one.
Speaker AThank you, Rob.
Speaker BYep.
Speaker BYep.
Speaker BIt's one of my favorite quotes in his.
Speaker ASo you said in your bio that you talk to your mom every day, whether you're there or not.
Speaker AAnd I'm curious, 10 years into her Alzheimer's journey, does she still have language?
Speaker ACan she still talk to you?
Speaker BI love that question.
Speaker BThank you.
Speaker BSo she, at this point, you know, about ten and a half years, we're almost to the eleventh year.
Speaker BComing up in April will be eleven years.
Speaker BHer vocabulary has dwindled quite substantially.
Speaker BWith Lewy Body Dementia and Alzheimer's comes something called aphasia.
Speaker BAphasia is a symptom of an inability to communicate, utilizing words in the way that they once did.
Speaker BSo my mom may be trying to communicate something to me at this stage, and she may say words like blue cookies, I'm going to get you a new shirt.
Speaker BShe has sort of a limited vocabulary of maybe like 20 words or like 10 phrases that she uses to convey many, many different things.
Speaker BAnd so my conversations with her are very different than they were four to five years ago in terms of how she communicates back with me, the words that she's actually using.
Speaker BBut through this process of mindfulness and awareness and just investigating all of life, I am able to just hear what she's saying through those words that may not make sense to me.
Speaker BYou know, I am.
Speaker BI'm able to tune in and knowing past conversations that we've had, using that as kind of like clues, I can sort of understand her general gist through that we have a conversation.
Speaker BAnd I can tell you, Wendy, that is something that has helped me continue to enjoy my time with my mom, is not needing things to be a certain way.
Speaker BI don't have these conditions on my relationship with my mom, whereas in order for me to enjoy the time with her, I need her to respond exactly the way she always has.
Speaker BAnd when we set up those conditions for ourselves, we really set ourselves up for a lot more suffering on this dementia journey.
Speaker BBecause there has to be a sense of being malleable through all of this and really, moment by moment, and I get caught up all the time still, moment by moment, sort of be where they are, understanding where my mom is in, you know, it doesn't have to be in this, in this black and white sort of way, as it always has been.
Speaker BShe doesn't have to use this beautiful vocabulary she used to have.
Speaker BWe can just sit there and share space, you know?
Speaker AYeah.
Speaker AAnd I remember when we spoke the first time, we were talking about, you know, trying to make her happy.
Speaker ARight.
Speaker ALike we, we have this desire to make sure that they're happy, that they feel good, that everything's okay, and, and we really have to recognize how much of that we can control, if any of it.
Speaker BYes, that was a very difficult part of this journey for me, Wendy.
Speaker BIt was that, you know, I would consider myself a recovering people pleaser now.
Speaker BAnd the only reason I have started my recovery journey is because dementia has been like this mirror in front of me showing me exactly who I am and what my motivations are for being.
Speaker BAnd I realized over the past five years, the last five years, that, wow, I really want people to be a certain way via the service that I provide them.
Speaker BI wanted my mom to be happy because I was giving her these things to be happy about.
Speaker BAnd the reality is, is that you can't control everything.
Speaker BAs you just said, you can't control everything.
Speaker BAnd not only that, I feel like maybe my motivations were sort of askew, you know, like, was I making my, Was I trying to get my mom to be happy for my mom or was part of that also?
Speaker BI was trying to get my mom to be happy for myself because that's the outcome I desired.
Speaker BAnd also I would just rather things be happy.
Speaker BRight.
Speaker BHappy is a comfortable feeling, you know, sadness, the Eeyore vibe.
Speaker BI use that term sometimes with my mom.
Speaker BIf she just feel seems like ho hum, she's like eeyore.
Speaker BYou know, that's uncomfortable.
Speaker BAnd so, you know, you realize in life we're always trying to get what we want and not get what we don't want.
Speaker BAnd you see that really clearly in the dementia journey.
Speaker BAnd when those don't align, it doesn't feel that great.
Speaker BSo, yeah, I was always trying to get her to feel comfortable and happy, I had to come to a place of realization that that's not always my job.
Speaker AI know it's a hard one.
Speaker AThat's a hard one.
Speaker BIt's really hard.
Speaker BEspecially when it's a parent or maybe a spouse, and I can't speak to that.
Speaker BBut I have spoken with many, many other people whose spouse has a form of dementia.
Speaker BAnd, you know, when it's just someone so close to you.
Speaker BRight.
Speaker BWe want the best for everyone.
Speaker AOh, we do.
Speaker BThat's not always possible.
Speaker AYou know, it's not.
Speaker AI promise.
Speaker AWe'll be right back with this conversation, but I do want to take a moment to share my appreciation for Greenwood Capital as a sponsor of Boomer Banter.
Speaker AAs you know, this month at Boomer Banter, we're talking about relationships.
Speaker AAnd having a relationship with your trusted financial advisor will give you a comfort level that they understand your needs and your goals and will keep you on a path to achieving them.
Speaker AAnd I have such a relationship with my financial planner at Greenwood Capital.
Speaker AThey are a fiduciary and a registered advisory firm, and they must place your interests above their own.
Speaker AGreenwood Capital has compensated my business for this testimonial and we are grateful for their sponsorship.
Speaker AFor more information about how they can help you make a financial plan, go to greenwoodcapital.com now let's get back to my conversation with Jessica Smith about caring for mom and caring for herself.
Speaker ASo, Jessica, as a care partner, we want to feel like the person that we are taking care of is, is well cared for.
Speaker AAnd you have had some challenges, I guess, on caring or helping other people who are kind of resistant to the help.
Speaker ASo can you talk to me a little bit about that?
Speaker BYes, I would love to.
Speaker BWende, this is a part of this that I really think we can all start to better ourselves about, and that is accepting help.
Speaker BSo I will first start to speak about this from my mom's perspective and working with her.
Speaker BSo one of the most difficult things from the onset of this entire journey was getting my mom to accept help.
Speaker BMy mom is the most independent woman that I know.
Speaker BShe did not let my stepdad or my father do anything around the house.
Speaker BI mean, my mom was the one on the roof pressure washing.
Speaker BShe was the one that would change the light bulbs, change the doorknobs, change.
Speaker BShe fixed everything.
Speaker BShe cut the grass.
Speaker BShe had a full time job of 25 years plus.
Speaker BShe did everything.
Speaker BShe made all the food, all of the things, everything.
Speaker BAnd so when it came to accepting help, from myself or anyone else.
Speaker BShe had trained herself up until 60 years old to never accept help.
Speaker BYou know, I remember being a kid and living in the house with her, and my mom would be in there vacuuming, complaining about vacuuming, and I would offer to help.
Speaker BHey, mom, can I do that for you?
Speaker BNo, I've got it.
Speaker BAnd I'm sure many of us can relate to this.
Speaker BYou know, I myself, when I started to tune into this, I was like, wow, I never accept help either.
Speaker BFrom the small things, like, you know, someone asking me if I needed help finding something in the grocery store, to my husband asking if he could do a simple task for me, to a friend asking if they could help, 99% of the time, I too, would turn it down.
Speaker BAnd I realized that my mom's resistance to accepting help was, unknowing to her, a trained behavior.
Speaker BShe had trained herself all these years to never accept help, and I had conditioned myself in the same way.
Speaker BAnd when it came to dementia, of course, my mom didn't want to accept help at the beginning when.
Speaker BWhen she got the diagnosis, as the disease progressed, she refused help when it came to, like, helping her dress or pick out clothes or any of the personal care tasks.
Speaker BShe did not like to accept help with making food or literally anything that she did.
Speaker BAnd I pretty quickly identified this is a problem.
Speaker BBut not only that, I also identified that it's a problem a lot of us have.
Speaker BA lot of us who are healthy and are living with a healthy brain have.
Speaker BAnd that is we are conditioning ourselves to never accept help.
Speaker BThat's because we think we got it all.
Speaker BWe think we have to handle it all.
Speaker BAnd I'm here to tell you, we are all doing ourselves a disservice by acting that way.
Speaker BBecause one day we may be in a situation like my mom is in, where she doesn't have the mental faculties to decide that she wants help, and her brain is defaulting upon what it knows.
Speaker BAnd that is independence.
Speaker BThat's not needing help.
Speaker AEven still.
Speaker BEven still.
Speaker BAbsolutely still.
Speaker BSo I am at the point.
Speaker BI am at the point in life where I am a huge proponent of people starting to accept help.
Speaker BAnd I'm not saying in the big waves.
Speaker BI'm not saying, you know, take.
Speaker BYou know, it doesn't have to be a big thing.
Speaker BI'm talking small.
Speaker BLike, for instance, when I go into a store now, if somebody asks me if I need help finding something, I make myself say yes.
Speaker BI say yes every time.
Speaker BWhen it's a small thing, like a coworker Says, hey, do you want me to just handle that for you?
Speaker BYou know, nine times out of 10, I would say no.
Speaker BNow, I always say yes.
Speaker BSame with my husband.
Speaker BBecause I am on.
Speaker BI am trying to discipline myself, recondition myself to accepting help.
Speaker BSo one day, if I do really need it, that will be my default.
Speaker BMy default will be to accept help.
Speaker BBecause it's not just my mom, Wende.
Speaker BThis is most people on the dementia journey.
Speaker BMost people living with dementia have this same issue.
Speaker BAnd it's just simply because none of us are good at accepting help.
Speaker AYou know, it is hard.
Speaker BI mean, are you, like, I'm curious, are you.
Speaker BDo you.
Speaker BDo you accept help?
Speaker AYou know, if I, I, I'm okay about asking for help.
Speaker BRight, Right.
Speaker ABut if somebody just says, oh, I'll help you with that, it's.
Speaker AIt's much more likely that I'll be like, no, it's okay.
Speaker AI got it.
Speaker BRight.
Speaker BRight.
Speaker BAnd I feel like that's where the sweet spot is.
Speaker BJust realizing in those moments, you know, maybe I'll say yes this time, and you don't have to be extreme like me and try to, like, you know, take it, help all the time.
Speaker BBut I would say the first place to start is to just notice and see what you do.
Speaker BYou know, see what your natural habit is to say yes or to say no.
Speaker BAnd just know down the line, it may be impactful to you.
Speaker AYeah, it seems like noticing is a lot of what we're talking about today.
Speaker BYes, yes.
Speaker BAwareness is the key to life.
Speaker BI am very convinced of that.
Speaker BYou know, we go through life very blindly most of the time.
Speaker BWe go through life, as I mentioned earlier, reacting.
Speaker BAnd that's because, you know, one of my other teachers, Joseph Goldstein, says, unchecked, our thoughts are like little dictators of the mind.
Speaker BOur thoughts are telling us what to do.
Speaker BOur thoughts are.
Speaker BWe are reacting to those thoughts.
Speaker BAnd when you start to bring awareness to those thoughts, to your actions, to your habitual ways of being from that place, you can just start to see, like, you know, maybe I want to make some adjustments.
Speaker BMaybe you don't.
Speaker BMaybe you're like, wow, I just noticed.
Speaker BI'm incredible just how I am.
Speaker BAnd if that's you, I want to meet you.
Speaker AThat's right.
Speaker BGood for you.
Speaker AI'm sure you're incredible in many ways, but we all have those things that.
Speaker BWe all have our things.
Speaker BYep.
Speaker AYeah.
Speaker AThat we react to.
Speaker AAnd like you said, a lot of them come with the family because they know how to trigger us.
Speaker AYeah.
Speaker ASo as the Eldest daughter, how has being the prime or one of the primary care partners for your mom from a distance impacted your relationship with your siblings and your stepfather?
Speaker BSo with my sisters, we definitely have gone through some rocky periods.
Speaker BAnd I in the thick of those rocky periods, I thought it was about them changing.
Speaker BI thought it was about them showing up more for mom or more in the ways that I thought they should show up for mom.
Speaker BBut with some investigation, I figured out, wait a minute, this is about me changing my expectations of others in terms of realizing that everyone is reacting to dementia in their own way.
Speaker BEveryone, whether I think so or not, is doing, literally doing the best that they can at any given moment.
Speaker BSo, you know, we, we went through Apache period for sure, where it was like a tug of war emotionally, I would say, and we loved each other through all of it.
Speaker BThere was never that, you know, there was never a period where I felt like worried about my relationship long term with them, but there was a period of time where I certainly thought, I don't know if I'll be able to see them in the same way.
Speaker BBut I realized that all of that was for me because, like, we're never going to be able to control all of life to a.
Speaker BIn a way that suits us, whether that's the traffic or the way my sisters show up or the way sue at work emails me, like, we're never going to be able to control everything, to be this perfect little way that makes us feel good.
Speaker BSo what can we control ourselves, you know?
Speaker BSo I applied that to my sisters and I was like, you know what?
Speaker BI gotta change myself.
Speaker BAnd I am consistently going through the same challenge with my stepdad.
Speaker BIt's a little bit more difficult for me with my stepdad because we are going in this together.
Speaker BAnd I fundamentally don't agree with a lot of his choices and have had to learn to, to remember that my mom picked this person and, and, and see things from that place and, you know, realize that not everything is mind to control.
Speaker BSo it's been, it's been challenging for sure.
Speaker BBut changing my own perception is what has been getting me through this.
Speaker BChanging the way that I approach my stepdad is, is what's getting me through this.
Speaker BLike, there's always going to be someone or something that we don't agree with in life.
Speaker AYeah, yeah.
Speaker AI mean, yeah, you're speaking my language, you know, because I'm the eldest and I do feel a lot of need to control things and manage and organize and all of that.
Speaker AAnd not everybody sees it my way.
Speaker BRight.
Speaker AWhat?
Speaker BRight.
Speaker BI mean, it's like the best.
Speaker BI'm kidding.
Speaker BBut, I mean, that is.
Speaker AThat's a struggle.
Speaker AThat's a struggle when you're that personality.
Speaker BYeah.
Speaker AAnd.
Speaker AAnd I think you're brilliant to say, you know.
Speaker AWell, it.
Speaker ALike we would say in coaching, it's a learning opportunity for you to look at yourself and realize all you can control is yourself.
Speaker ASo thank you for that.
Speaker AThat's brilliant.
Speaker AYeah.
Speaker AI wanted to ask you about one moment with your mom that, despite all these challenges, still brings joy or reminds you of the love that you share with her.
Speaker BProbably listening to music together.
Speaker BI have had times where.
Speaker BWell, first of all, my mother is a huge music lover.
Speaker BBoth my mom and my dad, music is just like, in their soul, in their blood.
Speaker BMy dad was a musician from a very young age.
Speaker BHe played drums.
Speaker BHe no longer plays, but my mom was a singer.
Speaker BShe was an actress all of her life, up until her.
Speaker BHer adulthood.
Speaker BI got that from them.
Speaker BAnd so from the very beginning stages of this music was a way of connection with my mom.
Speaker BAnd my.
Speaker BMy husband collects records, so we would.
Speaker BAnd he loves psychedelic rock, just like my mom.
Speaker BSo we have had periods of time when, you know, she was more cognizant where we would put on records, and he would think it was very obscure, and my mom would immediately know who it was.
Speaker BAnd through the years, you know, as her memories have faded, she may not be able to say the name.
Speaker BShe no longer maybe sings the song or sings the melody any longer, but she still is very in tune with the way that it sounds.
Speaker BAnd she and I can connect over these songs, and it's just.
Speaker BIt's just beautiful.
Speaker BI.
Speaker BIt's funny.
Speaker BI've had moments in the middle of singing a song with my mom.
Speaker BHer favorite.
Speaker BSome of her favorite musicians are the Beatles, Simon and Garfunkel, the Moody Blues.
Speaker BYou know, these are some of her favorite artists.
Speaker BSo she started saying, this is my favorite song all the time.
Speaker BShe would say, we would put a song on.
Speaker BMy mom would say, this is my favorite song.
Speaker BSo I started a playlist.
Speaker BIt's called this is My Favorite Song by Patti.
Speaker BSo I have this playlist that I have spent years compiling, and, you know, I'll play that for her.
Speaker BAnd she doesn't sing the words anymore, but we sway and, you know, it's funny, because I don't know the words to a lot of these songs.
Speaker BI know the melody.
Speaker AThat's my generation, right?
Speaker BWell, I mean, yeah, but, I mean, I grew up with this music, so I know it, but I'm just.
Speaker BI'm pretty bad with lyrics overall.
Speaker BI'm more of just a music type person.
Speaker BBut anyway, so.
Speaker BSo it's funny because I often think to myself, you know what?
Speaker BI don't know the words either.
Speaker BSo what.
Speaker BWhat are words anymore?
Speaker BYou know?
Speaker BSo it doesn't even bother me that she doesn't remember certain things.
Speaker BBut I've had times when I'm playing this playlist for her, Wendy, and I'm like, wow, this is.
Speaker BThis is going to help me when things are really quiet, like when my mom is no longer speaking, which will happen most likely, you know, most likely we'll still have the music.
Speaker BAnd there may be a time where she can no longer even sway, but maybe it's a grabbing of my hand, maybe it's a.
Speaker BJust sensing her energy in that moment, you know, So I know that music is going to be.
Speaker BContinue to be the connection point until.
Speaker BUntil her last breaths.
Speaker BI.
Speaker BI'm just confident about that.
Speaker AYeah, I.
Speaker AI think, you know, music is one of the last things to go.
Speaker AIt just touches a nerve in us.
Speaker AIt touches a brain spark in us.
Speaker AAnd, you know, I know my mother used to volunteer at the Alzheimer's support rehab center where she lives, and music would just light people up, even if they couldn't get out of their chair or their bed or they just could feel the music.
Speaker ASo, yeah, that's.
Speaker BI often think of that old movie with Robin Williams called Awakenings.
Speaker BI don't know if you remember that.
Speaker BAnd I loved that movie when I was a kid.
Speaker BAnd it's interesting that I loved that movie so much as a kid and now experiencing a similar experience because it truly does, you know, light my mom up and wake her up and in a.
Speaker BIn a sense, and it's so beautiful.
Speaker BSo music is our thing.
Speaker BI.
Speaker BI just.
Speaker BI'm so grateful for.
Speaker BFor all of the times we've connected over that.
Speaker AYeah, I'm grateful that you've discovered that.
Speaker AThat's cool.
Speaker BYeah.
Speaker ASo if you could go back 10, 11 years to your talk to yourself at that beginning part of the journey, what kind of advice would you give yourself?
Speaker BI would tell myself two things.
Speaker BI would tell myself to go easier on myself.
Speaker BDuring the first seven years of this journey, when my mom was staying with me or when I was in Florida, I would rush through every shower.
Speaker BI would hurry to get ready.
Speaker BI would put my own needs dead last.
Speaker BAnd just to make sure that she was okay, to make sure she was happy to go back to what we were Saying so I would just tell myself, take it easy.
Speaker BTake it easy on yourself.
Speaker BBecause the next thing I would say is, you don't have to fix everything.
Speaker BAnd with that one, though, Wendy, I'm gonna take it a step further.
Speaker BOkay.
Speaker BNot everything is ours to fix.
Speaker AOh, yeah?
Speaker BYeah.
Speaker BBecause you know what part of living this life is.
Speaker BEveryone needs to go through their own stuff, whatever that stuff is, you know, not everything is ours to fix.
Speaker BWe as the eldest, we as the type A personality, myself as a Virgo, you know, we just want to fix everything.
Speaker BWe want to control and fix, but every single person has to go through their own life experiences.
Speaker BAnd dementia is part of my mom's.
Speaker BIt's not to shame her or anything.
Speaker BJust like part of my life experience to go through is stress.
Speaker BYou know, that's just something that I have always learned to work with, you know, so we, we go through these things in life as individuals.
Speaker BAnd I can't imagine if someone was looking into my life and trying to fix all of these things for me.
Speaker BIt's not.
Speaker BDoes not need.
Speaker BAll need to be fixed.
Speaker BWhat my mom needs is a safe environment, a loving environment.
Speaker BShe needs to be well taken care of.
Speaker BBut outside of that, you know, I don't have to fix everything.
Speaker BAnd I put so much pressure on myself at the beginning.
Speaker BI put so much pressure on myself.
Speaker BI thought I started to allow it to turn into my whole personality that I was going to just fix everything and be the one to everyone.
Speaker BAnd it's not sustainable and it's not healthy for myself.
Speaker BAnd I think that we owe it to ourselves to.
Speaker BTo show up better for ourselves.
Speaker BSo, yeah, I would give my.
Speaker BI would give myself 11 years ago a big hug.
Speaker BYou know, I just.
Speaker BA big hug.
Speaker BLike, you don't have to do it all.
Speaker AThank you for that.
Speaker AYes, a big hug.
Speaker AGive yourself some grace.
Speaker AGive yourself the ability to take a moment and, and take a breath and take care of yourself.
Speaker AYeah, this has been wonderful.
Speaker AI.
Speaker AJessica, you are a very smart individual and, and very caring and compassionate and I appreciate all that you've said.
Speaker AI want to share with, with the listeners on how they can find you and get in touch with you.
Speaker AJessica is on Instagram at Alzheimer's Underscore Awakening so you can connect with her there.
Speaker AShe said that you can email her@alzheimer's awakeningmail.com and she has started a sub stack which is paused for a little while, but I'm hoping she'll get back to it, which was.
Speaker AIt's really well written.
Speaker AIt's called An Alzheimer's Awakening as well.
Speaker ASo reach out to Jessica on one of those platforms and let her know how impactful this discussion has been for you.
Speaker ABut I know it has been for me, so thank you, Jessica.
Speaker BThank you, Wendy.
Speaker BI am also in the process of formalizing my meditation offering.
Speaker BSo that is an Aware Life is my company for meditation.
Speaker BI've started to teach live meditation classes here in my part of North Carolina and offer some things online.
Speaker BSo as soon as that comes to fruition fully, Wendy, I'll pass that along to you.
Speaker AOh, that would be wonderful.
Speaker AThank you.
Speaker AI also want to remind you all to sign up for the newsletter the Real Talk About Aging.
Speaker AWell, go to Bitbit ly Navigate Aging and we will have links to Jessica's recording there as well.
Speaker AAnd oh yes, the podcast that I'm recommending this month, you know, as we're in our collaboration group, is tied in beautifully with Alzheimer's and caregiving.
Speaker AIt's called Fading Memories.
Speaker AAnd the host of Fading Memories is Jennifer Fink and she discusses brain health recommendations, effective caregiving techniques and self care strategies, all crucial for aging well and navigating the challenges of caregiving.
Speaker AAnd Jennifer was a caregiver to her mother with Alzheimer's.
Speaker ASo tune into Fading Memories for practical advice and compassionate support through your caregiving journey wherever you listen to podcasts.
Speaker AI'm also excited to tell you about our episode for next week because I'm giving it.
Speaker BYay.
Speaker AThis episode is near and dear to my heart and has heightened my awareness on some of the challenges of long distance grandparenting.
Speaker AI was and have been a long distance grandparent while my grandchildren were young.
Speaker AAnd now that they're teens and a couple of them are away at school, maintaining close ties has become a challenge again.
Speaker ASo having the connections with our grandchildren that we dreamed about is not necessarily our reality.
Speaker ASome of like what Jessica said, you know, it's about moderating our thoughts and what we can control.
Speaker ASo we're going to explore this and I will share some ideas with you that I believe will help.
Speaker BThat's really cool, Wendy.
Speaker BI love that topic.
Speaker BAwesome.
Speaker BYeah, I'm going to listen to that one.
Speaker AOh good.
Speaker AThank you.
Speaker AI.
Speaker AI really learned a lot putting it together, so I.
Speaker BThat's wonderful.
Speaker AYeah, I love when that happens.
Speaker BYeah.
Speaker AI also want to remind you all to tune in to our spot sponsor, Greenwood Capital and thank them for sponsoring this podcast.
Speaker AIt's an independent registered advisory firm providing wealth management, investment solutions and financial planning to clients in 23 states.
Speaker ASo thank you all for being part of the boomer banter community, for listening, for commenting, and I look forward to seeing you next week.
Speaker AThanks, Jessica.
Speaker BThanks, Wendy.